{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,17]],"date-time":"2026-10-17T08:40:35Z","timestamp":1792226435756,"version":"4.4.0"},"reference-count":24,"publisher":"Wiley","issue":"10","license":[{"start":{"date-parts":[[2026,10,17]],"date-time":"2026-10-17T00:00:00Z","timestamp":1792195200000},"content-version":"vor","delay-in-days":16,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2026,10,1]],"date-time":"2026-10-01T00:00:00Z","timestamp":1790812800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Euro J of Neurology"],"published-print":{"date-parts":[[2026,10]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Transition from paediatric to adult care is essential for young people with paediatric\u2010onset neurological disorders, yet remains inconsistently structured across Europe. This study aimed to characterise current transition practices, identify key barriers and explore perceived priorities for improving transition care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A cross\u2010sectional web\u2010based survey, developed by the European Paediatric Neurology Society\/European Academy of Neurology Task Force on Transition from Childhood to Adulthood, was distributed to members of both societies between February and April 2025. The 22\u2010item questionnaire assessed institutional characteristics, transition practices, perceived barriers and improvement measures. Responses were analysed descriptively and compared according to the reported presence of an institutional transition programme.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Overall, 328 responses were analysed. A transition programme was reported to be available in the country of practice by 123 respondents (37.5%). Respondents from institutions with transition programmes reported earlier transition initiation (median 16 vs. 17\u2009years) and more frequent structured practices, including joint paediatric\u2013adult consultations (73.7% vs. 27.1%). The highest\u2010rated barriers were lack of multidisciplinary teams, limited adult neurology capacity and difficulty accessing adult neurology services. Key improvement priorities included joint consultations, national recommendations, specialised care networks and dedicated transition coordination. Satisfaction with current transition practice was low; only 7.9% of respondents reported complete satisfaction.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Transition of care for paediatric\u2010onset neurological disorders in Europe remains heterogeneous. Although core elements of effective transition are widely recognised, implementation is limited by organisational and system\u2010level barriers. Coordinated strategies are needed to support structured, patient\u2010centred transition pathways.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/ene.70787","type":"journal-article","created":{"date-parts":[[2026,10,17]],"date-time":"2026-10-17T07:47:33Z","timestamp":1792223253000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Transition From Child to Adult Care in Paediatric Neurological Disorders in Europe\u2014A Joint\n                    <scp>EAN<\/scp>\n                    \u2010\n                    <scp>EPNS<\/scp>\n                    Survey of Current Practices for Healthcare Providers"],"prefix":"10.1111","volume":"33","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4156-6812","authenticated-orcid":false,"given":"Dana","family":"Craiu","sequence":"first","affiliation":[{"name":"Pediatric Neurology Discipline II, Department of Neurosciences, Faculty of Medicine Carol Davila University of Medicine and Pharmacy  Bucharest Romania"},{"name":"Pediatric Neurology Clinic Center of Expertise for Rare Disorders in Pediatric Neurology, EpiCARE Full Member  Bucharest Romania"},{"name":"Romanian Group for Undiagnosed Rare Diseases Genomics Research and Development Institute  Bucharest Romania"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0002-1451-5075","authenticated-orcid":false,"given":"Cristina","family":"Cazacu","sequence":"additional","affiliation":[{"name":"Pediatric Neurology Discipline II, Department of Neurosciences, Faculty of Medicine Carol Davila University of Medicine and Pharmacy  Bucharest Romania"},{"name":"Pediatric Neurology Clinic Center of Expertise for Rare Disorders in Pediatric Neurology, EpiCARE Full Member  Bucharest Romania"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2076-5006","authenticated-orcid":false,"given":"Maria T.","family":"Papadopoulou","sequence":"additional","affiliation":[{"name":"Department of Pediatric Epileptology, Functional Neurology and Sleep Disorders University Hospitals of Lyon (HCL), Member of ERN EpiCARE  Lyon France"},{"name":"Universit\u00e9 Claude Bernard Lyon 1, CNRS, INSERM, Lyon Neuroscience Research Center CRNL U1028 UMR5292, EDUWELL  Bron France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7738-8910","authenticated-orcid":false,"given":"Ming","family":"Lim","sequence":"additional","affiliation":[{"name":"Children's Neurosciences Evelina London Children's Hospital, Guy's and St Thomas' NHS Foundation Trust  London UK"},{"name":"Department of Women and Children's Health, School of Life Course Sciences King's College London  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2180-5321","authenticated-orcid":false,"given":"Kevin","family":"Rostasy","sequence":"additional","affiliation":[{"name":"Children's Hospital Datteln, Pediatric Neurology Witten\/Herdecke University  Datteln Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3835-2824","authenticated-orcid":false,"given":"Anna C.","family":"Jansen","sequence":"additional","affiliation":[{"name":"Division of Pediatric Neurology Antwerp University Hospital  Antwerp Belgium"},{"name":"Translational Neurosciences University of Antwerp  Antwerp Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8057-6194","authenticated-orcid":false,"given":"Leena M.","family":"Haataja","sequence":"additional","affiliation":[{"name":"Department of Pediatrics University of Helsinki  Helsinki Finland"},{"name":"Department of Pediatric Neurology, New Children's Hospital and Pediatric Research Center Helsinki University Hospital  Helsinki Finland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ilona Anna","family":"Kopyta","sequence":"additional","affiliation":[{"name":"Department of Paediatric Neurology, Faculty of Medical Sciences in Katowice Medical University of Silesia in Katowice  Katowice Poland"},{"name":"Department of Developmental Age Diseases, Filia Bielsko\u2010Biala Medical University of Silesia in Katowice  Bielsko\u2010Biala Poland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9937-443X","authenticated-orcid":false,"given":"Kristl G.","family":"Claeys","sequence":"additional","affiliation":[{"name":"Department of Neurology University Hospitals Leuven  Leuven Belgium"},{"name":"Laboratory for Muscle Diseases and Neuropathies, Department of Neurosciences KU Leuven  Leuven 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