{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,21]],"date-time":"2026-10-21T17:57:46Z","timestamp":1792605466372,"version":"4.5.0"},"reference-count":36,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2015,6,29]],"date-time":"2015-06-29T00:00:00Z","timestamp":1435536000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100000030","name":"Centers for Disease Control and Prevention","doi-asserted-by":"crossref","award":["DP002273"],"award-info":[{"award-number":["DP002273"]}],"id":[{"id":"10.13039\/100000030","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Epilepsia"],"published-print":{"date-parts":[[2015,8]]},"abstract":"<jats:title>Summary<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>Self\u2010management challenges facing adults with epilepsy include limited understanding of the condition and treatment, associated psychosocial issues, and lack of community integration. Self\u2010management interventions improve patients' medical, life role, and emotional management. Previous interventions, developed from expert opinion, indicated issues with participant engagement\/retention, and limited follow\u2010up periods. PACES in Epilepsy addressed methodologic concerns by utilizing patient needs assessment data (n\u00a0=\u00a0165) to derive self\u2010management content and program features for evaluation via randomized controlled trial (RCT).<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Participants were adults with chronic epilepsy (n\u00a0=\u00a083), without serious mental illness or substantive intellectual impairment, who were recruited from two epilepsy centers. Participants were assigned randomly to intervention or treatment\u2010as\u2010usual groups. Outcomes included the Epilepsy Self\u2010Management Scale (ESMS), Epilepsy Self\u2010Efficacy Scale (ESES), Quality of Life in Epilepsy\u201031 (QOLIE\u201031), Patient Health Questionnaire\u20109 (PHQ\u20109), and the Generalized Anxiety Disorder\u20107 (GAD\u20107), administered at baseline, postintervention (8\u00a0weeks), and 6\u00a0months postintervention. The intervention was an 8\u2010week group of 6\u20138 adults co\u2010led by a psychologist and trained peer with epilepsy that met one evening per week at a hospital for 75\u00a0min. Topics included medical, psychosocial, cognitive, and self\u2010management aspects of epilepsy, in addition to community integration and optimizing epilepsy\u2010related communication. The treatment group provided satisfaction ratings regarding program features.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>PACES participants (n\u00a0=\u00a038) improved relative to controls (n\u00a0=\u00a040) on the ESMS (p\u00a0&lt;\u00a00.001) and subscales [Information (p\u00a0&lt;\u00a00.001); Lifestyle (p\u00a0&lt;\u00a00.002)]; ESES (p\u00a0&lt;\u00a00.001); and QOLIE\u201031 (p<jats:italic>\u00a0<\/jats:italic>=<jats:italic>\u00a0<\/jats:italic>0.002). At 6\u2010month follow up, PACES participants remained improved on the ESMS (p\u00a0=\u00a00.004) and Information subscale (p\u00a0=\u00a00.009); and Energy\/Fatigue (p\u00a0=\u00a00.032) and Medication Effects (p\u00a0=\u00a00.005) of the QOLIE\u201031. Attrition in both groups was low (8% in each group) and all program satisfaction ratings exceeded 4.0\/5.0, with leadership (4.76), topics (4.53), and location (4.30) as the most highly rated aspects.<\/jats:p><\/jats:sec><jats:sec><jats:title>Significance<\/jats:title><jats:p>A consumer generated epilepsy self\u2010management program appears to be a promising intervention from multiple perspectives, particularly in relation to disability management.<\/jats:p><\/jats:sec>","DOI":"10.1111\/epi.13052","type":"journal-article","created":{"date-parts":[[2015,6,29]],"date-time":"2015-06-29T09:28:03Z","timestamp":1435570083000},"page":"1264-1274","source":"Crossref","is-referenced-by-count":102,"title":["PACES in epilepsy: Results of a self\u2010management randomized controlled trial"],"prefix":"10.1111","volume":"56","author":[{"given":"Robert T.","family":"Fraser","sequence":"first","affiliation":[{"name":"Rehabilitation Medicine University of Washington Seattle Washington 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