{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,5]],"date-time":"2026-09-05T14:07:31Z","timestamp":1788617251639,"version":"build-2803163510"},"reference-count":72,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2018,1,11]],"date-time":"2018-01-11T00:00:00Z","timestamp":1515628800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Epilepsia"],"published-print":{"date-parts":[[2018,3]]},"abstract":"<jats:title>Summary<\/jats:title><jats:p>Given the paucity of information available regarding self\u2010management, the aims of this paper are to synthesize the literature on factors associated with and measures to assess self\u2010management in pediatric epilepsy. Inclusion criteria: youth birth to 18 years with a seizure disorder or an epilepsy diagnosis and\/or their caregivers, published 1985\u20102014 in English, and conducted in countries with a very high human development index. The review was conducted in 6 phases: (1) identification of bibliographical search criteria and databases; (2) abstract assessment; (3) full article review; (4) organization of final citations into categories; (5) identification of predictors, potential mediators\/moderators, and outcomes associated with self\u2010management factors and categorization of factors as influences, processes, or behaviors across individual, family, community, and health care domains; and (6) critique of self\u2010management instrument studies. Twenty\u2010five studies that evaluated factors associated with self\u2010management were identified. Individual and family\u2010focused factors were the most commonly studied predictors of self\u2010management, with psychosocial care needs and self\u2010efficacy for seizure management identified as key factors associated with pediatric epilepsy self\u2010management. Few studies have included mediator and moderator analyses. Measures of adherence were the most commonly used outcome. There has been a predominant focus on pediatric epilepsy influences and processes that are modifiable in nature, potentially at the expense of evidence for the role of community and health systems in pediatric epilepsy self\u2010management. The 6 self\u2010management instrument tools reported scientific rationale and good psychometric properties. Results highlight several key modifiable cognitive and behavioral targets for skills development: adherence, self\u2010efficacy for seizure management, attitudes toward epilepsy, and family variables. Moving forward, a comprehensive pediatric epilepsy self\u2010management model, well\u2010validated measures of self\u2010management behaviors, mediator\/moderator designs to examine the complex relationships between predictors and pediatric epilepsy self\u2010management outcomes, and studies examining the community and health care domains of self\u2010management are necessary.<\/jats:p>","DOI":"10.1111\/epi.13992","type":"journal-article","created":{"date-parts":[[2018,1,11]],"date-time":"2018-01-11T07:48:17Z","timestamp":1515656897000},"page":"509-522","source":"Crossref","is-referenced-by-count":23,"title":["Measurement in pediatric epilepsy self\u2010management: A critical review"],"prefix":"10.1111","volume":"59","author":[{"given":"Gigi","family":"Smith","sequence":"first","affiliation":[{"name":"College of Nursing Department of Pediatrics Comprehensive Epilepsy Center Medical University of South Carolina Charleston SC USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Avani C.","family":"Modi","sequence":"additional","affiliation":[{"name":"Center for Treatment Adherence and Self\u2010Management Cincinnati Children's Hospital Medical Center Cincinnati OH USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Erica K.","family":"Johnson","sequence":"additional","affiliation":[{"name":"School of Public Health Health Promotion Research Center University of Washington Seattle WA USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ross","family":"Shegog","sequence":"additional","affiliation":[{"name":"Center for Health Promotion and Prevention Research UT Health School of Public Health Houston TX USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joan K.","family":"Austin","sequence":"additional","affiliation":[{"name":"School of Nursing Indiana University\u2010Purdue University Indianapolis Bloomington IN USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Janelle L.","family":"Wagner","sequence":"additional","affiliation":[{"name":"College of Nursing Department of Pediatrics Comprehensive Epilepsy Center Medical University of South Carolina Charleston SC USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2018,1,11]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.yebeh.2008.07.017"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/epi.13774"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.yebeh.2014.12.021"},{"key":"e_1_2_10_5_1","volume-title":"Epilepsy Across the Spectrum: Promoting Health and Understanding","author":"IOM (Institute of Medicine)","year":"2012"},{"key":"e_1_2_10_6_1","first-page":"CD006244","article-title":"Care delivery and self\u2010management strategies for adults with epilepsy","volume":"2","author":"Bradley PM","year":"2016","journal-title":"Cochrane Database Syst Rev"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.2165\/00115677-200008060-00003"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.yebeh.2015.01.026"},{"key":"e_1_2_10_9_1","doi-asserted-by":"publisher","DOI":"10.1111\/epi.13052"},{"key":"e_1_2_10_10_1","first-page":"478","article-title":"Systematic review of epilepsy self\u2010management interventions integrated with a synthesis of children and young peoples views and experiences","volume":"73","author":"Lewis S","year":"2014","journal-title":"J Adv Nurs"},{"key":"e_1_2_10_11_1","first-page":"CD006245","article-title":"Care delivery and self\u2010management strategies for children with epilepsy","volume":"8","author":"Lindsay B","year":"2010","journal-title":"Cochrane Database Syst Rev"},{"key":"e_1_2_10_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.yebeh.2013.12.004"},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.1212\/01.wnl.0000342200.58823.6a"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.1111\/epi.13711"},{"key":"e_1_2_10_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.yebeh.2010.03.009"},{"key":"e_1_2_10_16_1","first-page":"141","article-title":"Eliciting accurate reports of adherence in a clinical interview: development of the Medical Adherence Measure","volume":"34","author":"Zelikovsky N","year":"2008","journal-title":"Pediatr Nurs"},{"key":"e_1_2_10_17_1","doi-asserted-by":"publisher","DOI":"10.1542\/peds.2011-1635"},{"key":"e_1_2_10_18_1","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsp046"},{"key":"e_1_2_10_19_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.yebeh.2010.07.027"},{"key":"e_1_2_10_20_1","unstructured":"Managing Epilepsy Well.Managing Epilepsy Well. 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