{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,7]],"date-time":"2026-10-07T13:00:43Z","timestamp":1791378043090,"version":"4.3.2"},"reference-count":34,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2020,5,13]],"date-time":"2020-05-13T00:00:00Z","timestamp":1589328000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100000130","name":"National Center for Chronic Disease Prevention and Health Promotion","doi-asserted-by":"publisher","award":["U48DP005013"],"award-info":[{"award-number":["U48DP005013"]}],"id":[{"id":"10.13039\/100000130","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Epilepsia"],"published-print":{"date-parts":[[2020,6]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>The Program of Active Consumer Engagement in Self\u2010Management in Epilepsy (PACES) is an evidenced\u2010based self\u2010management intervention for adults with epilepsy. Prior randomized controlled trial (RCT) data show that PACES reduces depression and improves self\u2010management, self\u2010efficacy, and quality of life for 6\u00a0months postprogram. The objective of this study was to replicate a PACES RCT with key extensions: more diverse patient pool from community\u2010based epilepsy centers; option for telephone\u2010based participation; and longer follow\u2010up (12\u00a0months with booster support for intervention group), to examine duration of impact and inform dissemination and implementation.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Participants were adults with chronic epilepsy (n\u00a0=\u00a0101) without serious mental illness or substantive intellectual impairment, recruited from three epilepsy centers. Participants were randomly assigned to intervention or waitlist control groups. Outcomes included the Epilepsy Self\u2010Management Scale (ESMS), Epilepsy Self\u2010Efficacy Scale (ESES), Quality of Life in Epilepsy\u201031, Patient Health Questionnaire\u20109, and Generalized Anxiety Disorder\u20107, administered at baseline, postintervention (8\u00a0weeks), and 6 and 12 months postintervention. Intervention was an 8\u2010week group of five to eight adults co\u2010led by a psychologist and trained peer with epilepsy that met once per week by teleconference or in person at a hospital for 60\u201075\u00a0minutes. Topics included medical, psychosocial, cognitive, and self\u2010management aspects of epilepsy, as well as community integration and epilepsy\u2010related communication. Treatment group provided program evaluation.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>PACES participants (n\u00a0=\u00a049) improved relative to controls (n\u00a0=\u00a052) on the ESES (<jats:italic>P<\/jats:italic>\u00a0&lt;\u00a0.022) and overall distress composite (<jats:italic>P<\/jats:italic>\u00a0=\u00a0.008). At 6\u00a0months, PACES participants remained improved on the ESES (<jats:italic>P<\/jats:italic>\u00a0=\u00a0.008) and composite (<jats:italic>P<\/jats:italic>\u00a0=\u00a0.001), and were improved on the ESMS (<jats:italic>P<\/jats:italic>\u00a0=\u00a0.005). At 12\u00a0months, PACES participants remained improved on the ESMS (<jats:italic>P<\/jats:italic>\u00a0=\u00a0.006) and were improved on an overall distress composite of combined measures (<jats:italic>P<\/jats:italic>\u00a0=\u00a0.018). Attrition was low (&lt;6% in each group), and all program satisfaction ratings exceeded 4.0\/5.0.<\/jats:p><\/jats:sec><jats:sec><jats:title>Significance<\/jats:title><jats:p>A consumer\u2010generated epilepsy self\u2010management program with broad psychosocial and medical emphasis can be effectively delivered by telephone or in person and facilitates long\u2010term epilepsy self\u2010management, adjustment, and coping up to 1 year after treatment.<\/jats:p><\/jats:sec>","DOI":"10.1111\/epi.16530","type":"journal-article","created":{"date-parts":[[2020,5,13]],"date-time":"2020-05-13T21:45:58Z","timestamp":1589406358000},"page":"1129-1141","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":26,"title":["Program of Active Consumer Engagement in Self\u2010Management in Epilepsy: Replication and extension of a self\u2010management randomized controlled 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