{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,11]],"date-time":"2026-09-11T21:25:42Z","timestamp":1789161942909,"version":"build-2803163510"},"reference-count":52,"publisher":"Wiley","issue":"10","license":[{"start":{"date-parts":[[2021,8,6]],"date-time":"2021-08-06T00:00:00Z","timestamp":1628208000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Epilepsia"],"published-print":{"date-parts":[[2021,10]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Objective<\/jats:title><jats:p>Following epilepsy surgery, patients can experience complex psychosocial changes. We recently described a longer term adjustment and reframing (\u201cmeaning\u2010making\u201d) process 15\u201320\u00a0years following surgery for temporal lobe epilepsy, which could involve an ongoing sense of being a \u201cdifferent\u201d person for some patients. Here, we quantitatively examine identity at long\u2010term follow\u2010up and how this relates to meaning\u2010making and postoperative seizure outcome.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Eighty\u2010seven participants were included: 39 who underwent anterior temporal lobectomy (ATL) 15\u201320\u00a0years ago (59% female; median age\u00a0=\u00a049.2\u00a0years, interquartile range [IQR]\u00a0=\u00a010; median follow\u2010up\u00a0=\u00a018.4\u00a0years, IQR\u00a0=\u00a04.4) and 48\u00a0surgically na\u00efve focal epilepsy patients (56% female; median age\u00a0=\u00a034.5\u00a0years, IQR\u00a0=\u00a019). We captured approach to meaning\u2010making by coding for key narrative features identified in our previous qualitative work. Nonparametric tests and correspondence analysis were then used to explore relationships between a quantitative measure of identity and meaning\u2010making, as well as seizure outcome, mood, and health\u2010related quality of life (HRQOL).<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Patients 15\u201320\u00a0years post\u2010ATL demonstrated a shift toward increasing identity commitment and exploration compared to the surgically na\u00efve cohort, with this shift significantly linked to seizure outcome. Examining the relationship between identity and meaning\u2010making also revealed three groups: (1) those who embraced self\u2010change (29%), (2) those who continued to struggle with this process (60.5%), and (3) those who showed minimal engagement (10.5%). Those who \"embraced change\" were significantly younger at regular seizure onset and demonstrated a trend toward higher HRQOL.<\/jats:p><\/jats:sec><jats:sec><jats:title>Significance<\/jats:title><jats:p>Findings suggest that ATL patients show a more developed identity profile compared to surgically na\u00efve controls; however, the majority still struggled with postoperative identity change at long\u2010term follow\u2010up. Approximately one third of patients demonstrated positive psychological growth following surgery, reflected in the ability to embrace change. Findings highlight the importance of understanding the impact of surgery on patient identity to maximize the psychosocial benefits.<\/jats:p><\/jats:sec>","DOI":"10.1111\/epi.17027","type":"journal-article","created":{"date-parts":[[2021,8,6]],"date-time":"2021-08-06T14:22:18Z","timestamp":1628259738000},"page":"2451-2462","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["Understanding long\u2010term changes in patient identity 15\u201320 years after surgery for temporal lobe epilepsy"],"prefix":"10.1111","volume":"62","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5532-9327","authenticated-orcid":false,"given":"Honor","family":"Coleman","sequence":"first","affiliation":[{"name":"Melbourne School of Psychological Sciences University of Melbourne Melbourne Victoria Australia"},{"name":"Epilepsy Research Centre Department of Medicine (Austin Health) University of Melbourne Melbourne Victoria 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