{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,5,14]],"date-time":"2025-05-14T01:07:40Z","timestamp":1747184860346,"version":"3.40.5"},"reference-count":15,"publisher":"Wiley","issue":"8","license":[{"start":{"date-parts":[[2023,2,28]],"date-time":"2023-02-28T00:00:00Z","timestamp":1677542400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Experimental Dermatology"],"published-print":{"date-parts":[[2023,8]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>Generalized pustular psoriasis (GPP) is a multisystem disease with potentially life\u2010threatening adverse effects. As patients increasingly seek health information online, and as the landscape for GPP changes, the quality of online health information (OHI) becomes progressively more important. This paper is the first of its kind to examine the quality, comprehensiveness and readability of online health information for GPP. Similar to pre\u2010existing studies evaluating OHI, this paper examines 5 key search terms for GPP\u2010 3 medical and 2 laymen. For each search term, the results were evaluated based on HONcode accreditation, an enhanced DISCERN analysis and a number of readability indices. Of the 500 websites evaluated, 84 (16.8%) were HONcode\u2010accredited. Mean DISCERN scores of all websites were 74.9% and 38.6% for website reliability and treatment sections, respectively, demonstrating key gaps in comprehensiveness and reliability of GPP\u2010specific OHI. Additionally, only 4\/100 websites (4%) analysed for readability were written at the NIH\u2010recommended sixth\u2010grade level. Academic websites were significantly more difficult to read than governmental websites. This further exacerbates the patient information gap, particularly for patients with low health literacy, who may already be at higher risk of not receiving timely medical care.<\/jats:p>","DOI":"10.1111\/exd.14775","type":"journal-article","created":{"date-parts":[[2023,2,23]],"date-time":"2023-02-23T08:20:36Z","timestamp":1677140436000},"page":"1317-1321","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Generalized pustular psoriasis: Quality and readability of online health information"],"prefix":"10.1111","volume":"32","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5141-5017","authenticated-orcid":false,"given":"Rhea","family":"Malik","sequence":"first","affiliation":[{"name":"Harvard Medical School  Boston MA USA"},{"name":"Department of Dermatology Brigham and Women's Hospital  Boston MA USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jeffrey","family":"Chen","sequence":"additional","affiliation":[{"name":"University of Pittsburgh School of Medicine  Pittsburgh PA USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Charles","family":"Lau","sequence":"additional","affiliation":[{"name":"Department of Dermatology Brigham and Women's Hospital  Boston MA USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Aaron","family":"Sandoval","sequence":"additional","affiliation":[{"name":"Harvard Medical School  Boston MA USA"},{"name":"Department of Dermatology Brigham and Women's Hospital  Boston MA USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Vinod E.","family":"Nambudiri","sequence":"additional","affiliation":[{"name":"Harvard Medical School  Boston MA USA"},{"name":"Department of Dermatology Brigham and Women's Hospital  Boston MA USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2023,2,28]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.2147\/PTT.S181808"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/jdv.14949"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1080\/1744666X.2019.1648209"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1258\/jrsm.96274"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.1188\/11.ONF.353-359"},{"key":"e_1_2_11_7_1","first-page":"2","article-title":"Internet visits soaring","volume":"24","author":"Pew Internet American Life Project","year":"2003","journal-title":"Health Manag Technol"},{"issue":"3","key":"e_1_2_11_8_1","first-page":"182","article-title":"How access to online health information affects the dental hygiene client experience. Can","volume":"55","author":"McKay A","year":"2021","journal-title":"J Dent Hyg"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/jpec.200510006"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1097\/CMR.0000000000000508"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1097\/DSS.0000000000002457"},{"key":"e_1_2_11_12_1","unstructured":"Health On the Net Foundation.2014. Accessed November 18 2022 Available from:https:\/\/www.hon.ch\/en\/."},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.1136\/jech.53.2.105"},{"key":"e_1_2_11_14_1","doi-asserted-by":"publisher","DOI":"10.1097\/CMR.0000000000000508"},{"key":"e_1_2_11_15_1","first-page":"1310","article-title":"Readability assessment of internet\u2010based consumer health information","volume":"53","author":"Walsh TM","year":"2008","journal-title":"Respir Care"},{"key":"e_1_2_11_16_1","doi-asserted-by":"crossref","first-page":"56","DOI":"10.21236\/ADA006655","volume-title":"Derivation of New Readability Formulas (Automated Readability Index, Fog Count and Flesch Reading Ease Formula) for Navy Enlisted Personnel","author":"Kincaid JP","year":"1975"}],"container-title":["Experimental Dermatology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/exd.14775","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/exd.14775","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/exd.14775","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,12,16]],"date-time":"2023-12-16T09:54:35Z","timestamp":1702720475000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/exd.14775"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,2,28]]},"references-count":15,"journal-issue":{"issue":"8","published-print":{"date-parts":[[2023,8]]}},"alternative-id":["10.1111\/exd.14775"],"URL":"https:\/\/doi.org\/10.1111\/exd.14775","archive":["Portico"],"relation":{},"ISSN":["0906-6705","1600-0625"],"issn-type":[{"type":"print","value":"0906-6705"},{"type":"electronic","value":"1600-0625"}],"subject":[],"published":{"date-parts":[[2023,2,28]]},"assertion":[{"value":"2022-12-02","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-02-16","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2023-02-28","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}