{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,12,19]],"date-time":"2025-12-19T09:34:15Z","timestamp":1766136855359,"version":"3.37.3"},"reference-count":18,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2017,5,24]],"date-time":"2017-05-24T00:00:00Z","timestamp":1495584000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100008322","name":"CSL Behring","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100008322","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Haemophilia"],"published-print":{"date-parts":[[2017,7]]},"abstract":"<jats:sec><jats:title>Introduction<\/jats:title><jats:p>Undiagnosed bleeding disorders are common and can pose significant health risks, especially for women. Recently, a self\u2010administered bleeding assessment tool (Self\u2010<jats:styled-content style=\"fixed-case\">BAT<\/jats:styled-content>) was validated in von Willebrand disease.<\/jats:p><\/jats:sec><jats:sec><jats:title>Aim<\/jats:title><jats:p>To increase awareness of undiagnosed bleeding disorders through the use of an informational website (<jats:ext-link xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xlink:href=\"http:\/\/letstalkperiod.ca\">http:\/\/letstalkperiod.ca<\/jats:ext-link>) targeted at women in their reproductive years.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>The Let's Talk Period website was built in consultation with a medical communications company and focus groups of women, with the aim of clearly presenting key messages around menstrual bleeding. The website was promoted through social media and local and national interviews. Upon completion of the online Self\u2010<jats:styled-content style=\"fixed-case\">BAT<\/jats:styled-content> available at <jats:ext-link xmlns:xlink=\"http:\/\/www.w3.org\/1999\/xlink\" xlink:href=\"http:\/\/letstalkperiod.ca\">http:\/\/letstalkperiod.ca<\/jats:ext-link>, the result is displayed to the user along with a recommendation to seek medical attention if the score is abnormal.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>During the initial 3\u2010month period, there were 5158 page views from 64 countries. A total of 489 individuals, 95% female, completed the online Self\u2010<jats:styled-content style=\"fixed-case\">BAT<\/jats:styled-content>. The mean Self\u2010<jats:styled-content style=\"fixed-case\">BAT<\/jats:styled-content> score was 6, range 0\u201044. Abnormal Self\u2010<jats:styled-content style=\"fixed-case\">BAT<\/jats:styled-content> scores were reported in 45% of the respondents, of whom 96% were female. The most commonly reported bleeding symptoms were menorrhagia (98%) and postpartum haemorrhage (82%). Bleeding symptoms were similar across different geographical areas.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>An online screening tool is an effective method of identifying individuals concerned with abnormal bleeding. A significant portion of the general population report experiencing symptoms of abnormal bleeding. In women, the most frequently reported bleeding symptoms were menorrhagia and postpartum haemorrhage.<\/jats:p><\/jats:sec>","DOI":"10.1111\/hae.13271","type":"journal-article","created":{"date-parts":[[2017,5,25]],"date-time":"2017-05-25T17:07:48Z","timestamp":1495732068000},"source":"Crossref","is-referenced-by-count":21,"title":["Let's Talk Period! Preliminary results of an online bleeding awareness knowledge translation project and bleeding assessment tool promoted on social media"],"prefix":"10.1111","volume":"23","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0144-7563","authenticated-orcid":false,"given":"E.","family":"Reynen","sequence":"first","affiliation":[{"name":"Department of Medicine Queen's University  Kingston Ontario Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J.","family":"Grabell","sequence":"additional","affiliation":[{"name":"Department of Medicine Queen's University  Kingston Ontario Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"A. K.","family":"Ellis","sequence":"additional","affiliation":[{"name":"Department of Medicine Queen's University  Kingston Ontario Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"P.","family":"James","sequence":"additional","affiliation":[{"name":"Department of Medicine Queen's University  Kingston Ontario Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2017,5,24]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2516.2012.02822.x"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2516.2004.00991.x"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1538-7836.2009.03661.x"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.hoc.2011.01.006"},{"key":"e_1_2_8_6_1","unstructured":"WalkerI.Von Willebrand disease April 15 2014 stats Canada \u2010 age groups von Willebrand disease April 15 2014 stats Canada \u2010 age groups.Can Hemoph Regist.2014:2\u20134.http:\/\/fhs.mcmaster.ca\/chr\/pdf\/14\/CHRVWD140415.pdf. 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Report of 4 patients","volume":"55","author":"Prochorec\u2010Sobieszek M","year":"2004","journal-title":"Pol J Pathol"},{"key":"e_1_2_8_9_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ajog.2013.05.059"},{"key":"e_1_2_8_10_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1471-0528.1998.tb10093.x"},{"key":"e_1_2_8_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2008.04.023"},{"key":"e_1_2_8_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1538-7836.2010.03864.x"},{"key":"e_1_2_8_13_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1538-7836.2008.03182.x"},{"key":"e_1_2_8_14_1","first-page":"356","article-title":"Generation and optimization of the self\u2010administered bleeding assessment tool (Self\u2010BAT) and its validation as a screening test for von Willebrand disease","volume":"6","author":"Deforest M","year":"2015","journal-title":"Haemophilia"},{"key":"e_1_2_8_15_1","doi-asserted-by":"publisher","DOI":"10.1200\/JOP.2012.000610"},{"key":"e_1_2_8_16_1","doi-asserted-by":"publisher","DOI":"10.1080\/10410236.2015.1007551"},{"key":"e_1_2_8_17_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0092744"},{"key":"e_1_2_8_18_1","doi-asserted-by":"publisher","DOI":"10.14694\/EdBook_AM.2014.34.e101"},{"key":"e_1_2_8_19_1","doi-asserted-by":"publisher","DOI":"10.2196\/jmir.1878"}],"container-title":["Haemophilia"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fhae.13271","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/hae.13271","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,24]],"date-time":"2023-09-24T14:48:09Z","timestamp":1695566889000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/hae.13271"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2017,5,24]]},"references-count":18,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2017,7]]}},"alternative-id":["10.1111\/hae.13271"],"URL":"https:\/\/doi.org\/10.1111\/hae.13271","archive":["Portico"],"relation":{},"ISSN":["1351-8216","1365-2516"],"issn-type":[{"type":"print","value":"1351-8216"},{"type":"electronic","value":"1365-2516"}],"subject":[],"published":{"date-parts":[[2017,5,24]]}}}