{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,12,17]],"date-time":"2025-12-17T08:26:29Z","timestamp":1765959989174,"version":"3.37.3"},"reference-count":21,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2018,7,10]],"date-time":"2018-07-10T00:00:00Z","timestamp":1531180800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"DOI":"10.13039\/100008322","name":"CSL Behring","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100008322","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Haemophilia"],"published-print":{"date-parts":[[2018,11]]},"abstract":"Objective<\/jats:title>To explore key factors for successful support in women with moderate or severe Von Willebrand disease (VWD<\/jats:styled-content>) who are faced with heavy menstrual bleeding (HMB<\/jats:styled-content>) and surgery.<\/jats:p><\/jats:sec>Design<\/jats:title>A qualitative study design with focus\u2010group interviews and thematic analysis of the discussions.<\/jats:p><\/jats:sec>Settings and population<\/jats:title>Eleven VWD<\/jats:styled-content> women aged 41\u201068\u00a0years (median age 58\u00a0years) who had had a hysterectomy or bipolar radiofrequency ablation (BRA<\/jats:styled-content>) because of HMB<\/jats:styled-content> participated in this study. Three of the 11 participants had VWD<\/jats:styled-content> diagnosed before surgery. Two focus groups were conducted in the summer of 2012. Patients were identified through participation in a nationwide study on Von Willebrand disease in the Netherlands (WiN study). Inclusion criteria were at least 18\u00a0years of age, fluent in Dutch, diagnosed with VWD<\/jats:styled-content> (based on Von Willebrand factor (VWF<\/jats:styled-content>) antigen and\/or activity levels < 30\u00a0IU\/dL<\/jats:styled-content>) and previous surgical therapy for HMB<\/jats:styled-content>.<\/jats:p><\/jats:sec>Findings<\/jats:title>The following key factors were identified during focus\u2010group interviews: receiving information, proactive support from providers and considering bleeding disorders as a cause of HMB<\/jats:styled-content>. Other topics were as follows: experiences with VWD<\/jats:styled-content> and\/or surgery, how relieved patients were when menses stopped, patients hoped that in future, providers would work better together so that women receive the best care.<\/jats:p><\/jats:sec>Conclusions<\/jats:title>In this focus\u2010group study among women with VWD<\/jats:styled-content> who underwent surgery because of HMB<\/jats:styled-content>, support by professionals could be improved by considering a bleeding disorder in women with HMB<\/jats:styled-content>, providing information about different types of surgery and shared decision\u2010making regarding type of interventions.<\/jats:p><\/jats:sec>","DOI":"10.1111\/hae.13552","type":"journal-article","created":{"date-parts":[[2018,7,10]],"date-time":"2018-07-10T11:22:25Z","timestamp":1531221745000},"page":"950-956","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":12,"title":["Women prefer proactive support from providers for treatment of heavy menstrual bleeding: A qualitative study in adult women with moderate or severe Von Willebrand disease"],"prefix":"10.1111","volume":"24","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9207-7130","authenticated-orcid":false,"given":"H. P.","family":"Eising","sequence":"first","affiliation":[{"name":"Department of Obstetrics and Gynaecology Gelre Hospital Apeldoorn The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Y. V.","family":"Sanders","sequence":"additional","affiliation":[{"name":"Division of Haemostasis and Thrombosis Department of Haematology Erasmus Medical Centre University of Rotterdam Rotterdam The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J.","family":"de Meris","sequence":"additional","affiliation":[{"name":"Netherlands Hemophilia Society Leiden The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5677-1371","authenticated-orcid":false,"given":"F. W. G.","family":"Leebeek","sequence":"additional","affiliation":[{"name":"Division of Haemostasis and Thrombosis Department of Haematology Erasmus Medical Centre University of Rotterdam Rotterdam The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"K.","family":"Meijer","sequence":"additional","affiliation":[{"name":"Division of Haemostasis and Thrombosis Department of Haematology University Medical Centre Groningen University of Groningen Groningen The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2018,7,10]]},"reference":[{"key":"e_1_2_6_2_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2516.2000.00447.x"},{"key":"e_1_2_6_3_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2516.1999.00285.x"},{"key":"e_1_2_6_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.12856"},{"key":"e_1_2_6_5_1","doi-asserted-by":"publisher","DOI":"10.1160\/TH11-03-0180"},{"key":"e_1_2_6_6_1","doi-asserted-by":"publisher","DOI":"10.2147\/IJWH.S56364"},{"key":"e_1_2_6_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2003.12.025"},{"key":"e_1_2_6_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1471-0528.2002.01282.x"},{"key":"e_1_2_6_9_1","doi-asserted-by":"publisher","DOI":"10.1097\/01.AOG.0000265805.76453.33"},{"key":"e_1_2_6_10_1","unstructured":"Richtlijn Nederlandse Vereniging voor Obstetrie en Gynaecologie (NVOG) Hevig menstrueel bloedverlies (HMB);2013."},{"key":"e_1_2_6_11_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.fertnstert.2003.12.025"},{"key":"e_1_2_6_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1538-7836.2010.03864.x"},{"volume-title":"The Focus Group kit","year":"1998","author":"Morgan DL","key":"e_1_2_6_13_1"},{"key":"e_1_2_6_14_1","doi-asserted-by":"publisher","DOI":"10.4135\/9781483328171"},{"volume-title":"Qualitative Research: Theory, Method and Practice","year":"2004","author":"Silverman D","key":"e_1_2_6_15_1"},{"key":"e_1_2_6_16_1","doi-asserted-by":"publisher","DOI":"10.1002\/9780470750841.ch3"},{"key":"e_1_2_6_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2516.2009.02022.x"},{"key":"e_1_2_6_18_1","doi-asserted-by":"publisher","DOI":"10.1046\/j.1365-2516.1999.00342.x"},{"key":"e_1_2_6_19_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2516.2011.02712.x"},{"key":"e_1_2_6_20_1","doi-asserted-by":"publisher","DOI":"10.3892\/etm.2016.3144"},{"key":"e_1_2_6_21_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.13330"},{"key":"e_1_2_6_22_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.13271"}],"container-title":["Haemophilia"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fhae.13552","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/hae.13552","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,14]],"date-time":"2023-09-14T10:33:20Z","timestamp":1694687600000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/hae.13552"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2018,7,10]]},"references-count":21,"journal-issue":{"issue":"6","published-print":{"date-parts":[[2018,11]]}},"alternative-id":["10.1111\/hae.13552"],"URL":"https:\/\/doi.org\/10.1111\/hae.13552","archive":["Portico"],"relation":{},"ISSN":["1351-8216","1365-2516"],"issn-type":[{"type":"print","value":"1351-8216"},{"type":"electronic","value":"1365-2516"}],"subject":[],"published":{"date-parts":[[2018,7,10]]},"assertion":[{"value":"2018-05-31","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2018-07-10","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}