{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,17]],"date-time":"2026-09-17T16:14:10Z","timestamp":1789661650737,"version":"4.0.1"},"reference-count":7,"publisher":"Wiley","issue":"S3","license":[{"start":{"date-parts":[[2020,5,1]],"date-time":"2020-05-01T00:00:00Z","timestamp":1588291200000},"content-version":"vor","delay-in-days":30,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Haemophilia"],"published-print":{"date-parts":[[2020,4]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:p>The World Federation of Hemophilia (WFH) is an international nonprofit organization dedicated to improving and sustaining the lives of individuals with haemophilia. According to the World Federation of Hemophilia (WFH) annual global survey, haemophilia A has a prevalence of 105 per million males and 28 per million males of haemophilia B in a global population of 6 billion. The annual global survey reported 295\u00a0000 individuals with haemophilia, von Willebrand disease and other bleeding disorders in 113 countries. WFH estimated approximately 70% of patients with haemophilia under diagnosed globally. The variability of occurrence of these disorders in different ethnicities, lack of awareness and diagnostic facilities\/expertise led to the prevalence of other bleeding disorders being much more underestimated. The main reason for the gap between detected (reported) and estimated numbers of patients with bleeding disorders includes the lack of laboratory facilities and trained personnel required to establish an accurate diagnosis for bleeding disorders.<\/jats:p>","DOI":"10.1111\/hae.13890","type":"journal-article","created":{"date-parts":[[2020,5,1]],"date-time":"2020-05-01T08:39:35Z","timestamp":1588322375000},"page":"6-8","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Outreach and diagnosis: Saudi Arabia's experience"],"prefix":"10.1111","volume":"26","author":[{"given":"Tarek","family":"Owaidah","sequence":"first","affiliation":[{"name":"Department of Pathology and Laboratory Medicine King Faisal Specialist Hospital and Research Center Alfaisal University Riyadh Saudi Arabia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2020,5]]},"reference":[{"key":"e_1_2_4_2_1","unstructured":"WFH.Annual Global Survey 2016;2017."},{"key":"e_1_2_4_3_1","unstructured":"DonnellyJ.Patient outreach guide for hemophilia and other bleeding disorders.World Federation of Hemophilia;2008."},{"key":"e_1_2_4_4_1","unstructured":"http:\/\/elearning.wfh.org\/resource\/5-international-programs-low-dose-prophylaxis"},{"key":"e_1_2_4_5_1","doi-asserted-by":"publisher","DOI":"10.1155\/2018\/1858241"},{"key":"e_1_2_4_6_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41525-019-0079-6"},{"key":"e_1_2_4_7_1","unstructured":"World Federation of Hemophilia.Annual Global Survey 2011;2018."},{"key":"e_1_2_4_8_1","unstructured":"WFH.Annual Global Survey 2018. Published by World Federation of Hemophilia; 2019."}],"container-title":["Haemophilia"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1111%2Fhae.13890","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/hae.13890","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/hae.13890","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/hae.13890","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,7]],"date-time":"2023-09-07T02:06:24Z","timestamp":1694052384000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/hae.13890"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,4]]},"references-count":7,"journal-issue":{"issue":"S3","published-print":{"date-parts":[[2020,4]]}},"alternative-id":["10.1111\/hae.13890"],"URL":"https:\/\/doi.org\/10.1111\/hae.13890","archive":["Portico"],"relation":{},"ISSN":["1351-8216","1365-2516"],"issn-type":[{"value":"1351-8216","type":"print"},{"value":"1365-2516","type":"electronic"}],"subject":[],"published":{"date-parts":[[2020,4]]},"assertion":[{"value":"2020-05-01","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}