{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,23]],"date-time":"2026-08-23T15:11:10Z","timestamp":1787497870640,"version":"build-2736575974"},"reference-count":40,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2022,5,4]],"date-time":"2022-05-04T00:00:00Z","timestamp":1651622400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Haemophilia"],"published-print":{"date-parts":[[2022,7]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>In their Chronic Care Model, the World Health Organisation states that people with chronic disorders and their families should be informed about the expected course, potential complications, and effective strategies to prevent complications and manage symptoms. Physiotherapists are a key professional group involved in the triage, assessment and management of musculoskeletal conditions of persons with a bleeding disorder (PWBD). Nevertheless, recent reports describe access to physiotherapy for those with these conditions is only sometimes available.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>Access to high quality individualised physiotherapy should be ensured for all PWBD, including those with mild and moderate severities, male and female, people with von Willebrand Disease (vWD) and other rare bleeding disorders. Physiotherapy should be viewed as a basic requisite in their multidisciplinary care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods\/ results<\/jats:title>\n                    <jats:p>Following a series of meetings with physiotherapists representing the European Association for Haemophilia and Allied Disorders (EAHAD) and PWBD representing the European Haemophilia Consortium (EHC) and a review of publications in the field, eight core principles of physiotherapy care for persons with a bleeding disorder have been co\u2010produced by EAHAD and EHC.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>These eight principles outline optimum standards of practice in order to advocate personalised patient\u2010centred care for physical health in which both prevention and interventions include shared decision making, and supported self\u2010management.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hae.14566","type":"journal-article","created":{"date-parts":[[2022,5,4]],"date-time":"2022-05-04T06:03:53Z","timestamp":1651644233000},"page":"649-655","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":11,"title":["European principles of care for physiotherapy provision for persons with inherited bleeding disorders: Perspectives of physiotherapists and patients"],"prefix":"10.1111","volume":"28","author":[{"given":"Piet","family":"de Kleijn","sequence":"first","affiliation":[{"name":"European Haemophilia Consortium (EHC)  Brussels Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"G.","family":"Duport","sequence":"additional","affiliation":[{"name":"European Haemophilia Consortium (EHC)  Brussels Belgium"},{"name":"Association Fran\u00e7aise des H\u00e9mophiles (French Haemophilia Association)  Paris France"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"K.","family":"Jansone","sequence":"additional","affiliation":[{"name":"European Haemophilia Consortium (EHC)  Brussels Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"M.","family":"Marini\u0107","sequence":"additional","affiliation":[{"name":"European Haemophilia Consortium (EHC)  Brussels Belgium"},{"name":"Institute of Social Sciences Ivo Pilar  Zagreb Croatia"},{"name":"Dru\u0161tvo hemofili\u010dara Hrvatske (Croatian Haemophilia Society)  Croatia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5962-7647","authenticated-orcid":false,"given":"P.","family":"McLaughlin","sequence":"additional","affiliation":[{"name":"European Association for Haemophilia and Allied Disorders Physiotherapy Committee (EAHAD)  Brussels Belgium"},{"name":"Katharine Dormandy Haemophilia Centre and Thrombosis Unit Royal Free London NHS Foundation Trust  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"D.","family":"Noone","sequence":"additional","affiliation":[{"name":"European Haemophilia Consortium (EHC)  Brussels Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"L.","family":"Ramishvili","sequence":"additional","affiliation":[{"name":"European Association for Haemophilia and Allied Disorders Physiotherapy Committee (EAHAD)  Brussels Belgium"},{"name":"Haemophilia and Thrombosis Treatment Centre K. Eristavi National Centre of Experimental and Clinical Surgery  Tbilisi Georgia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A.","family":"Tollw\u00e9","sequence":"additional","affiliation":[{"name":"European Haemophilia Consortium (EHC)  Brussels Belgium"},{"name":"F\u00f6rbundet Bl\u00f6darsjuka i Sverige (Swedish Bleeding Disorder Society)  Sweden"},{"name":"Kent Haemophilia and Thrombosis Centre East Kent Hospitals University NHS Trust  Canterbury UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6175-3343","authenticated-orcid":false,"given":"D.","family":"Stephensen","sequence":"additional","affiliation":[{"name":"European Association for Haemophilia and Allied Disorders Physiotherapy Committee (EAHAD)  Brussels Belgium"},{"name":"Haemophilia Centre Royal London Hospital Barts Health NHS Trust  London UK"},{"name":"European Haemophilia Consortium (EHC) Committee of Women and Bleeding Disorders  Brussels Belgium"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"the European Haemophilia Consortium and EAHAD Physiotherapy Committee","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2022,5,4]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2516.2008.01732.x"},{"key":"e_1_2_8_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.14046"},{"key":"e_1_2_8_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2516.2007.01625.x"},{"key":"e_1_2_8_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.14327"},{"key":"e_1_2_8_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.13263"},{"key":"e_1_2_8_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.13727"},{"key":"e_1_2_8_8_1","unstructured":"(QRS) Q.R.S. 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