{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,10]],"date-time":"2026-02-10T18:35:33Z","timestamp":1770748533896,"version":"3.50.0"},"reference-count":28,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2022,6,29]],"date-time":"2022-06-29T00:00:00Z","timestamp":1656460800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Haemophilia"],"published-print":{"date-parts":[[2022,11]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Introduction and Aim<\/jats:title><jats:p>Haemophilia A, in its most severe form, can have serious repercussions, including issues that are physical, emotional, affective, and social, particularly in childhood. This qualitative study aims to understand the socio\u2010emotional repercussions of severe haemophilia A in children, based on their own testimonies and subjective expressions of their daily lives, in the contexts of the family, school and health service.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Individual qualitative interviews were carried out using a playful approach through puppets with 15 children, aged 6\u201312 years old, in a service for the treatment of haemophilia, located in the northeast of Brazil. Data were analysed using inductive thematic analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Four themes were elaborated: (a) Reflecting how I am and how I relate to others; (b) Enjoying family moments; (c) Experiencing the school context: learning, affectivity and play; and (d) Dealing with haemophilia: acceptance and overcoming strategies.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>The experiences shared by children with severe haemophilia A and their daily needs should be the basis for guiding child\u2010centred care. Encouraging self\u2010care, including self\u2010administration of the deficient factor, requires a partnership between health professionals, family members, school and child in the construction of therapeutic plans that consider the child's active participation.<\/jats:p><\/jats:sec>","DOI":"10.1111\/hae.14611","type":"journal-article","created":{"date-parts":[[2022,6,30]],"date-time":"2022-06-30T04:29:24Z","timestamp":1656563364000},"page":"1000-1006","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Socio\u2010emotional repercussions of severe haemophilia A in the daily lives of children"],"prefix":"10.1111","volume":"28","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3495-0613","authenticated-orcid":false,"given":"Iara","family":"Alves Feitoza de Andrade","sequence":"first","affiliation":[{"name":"Universidade de Pernambuco  Recife Pernambuco Brazil"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7900-7111","authenticated-orcid":false,"given":"Lucila","family":"Castanheira Nascimento","sequence":"additional","affiliation":[{"name":"Maternal\u2010Infant and Public Health Nursing Department University of S\u00e3o Paulo  Ribeir\u00e3o Preto Brazil"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0237-2663","authenticated-orcid":false,"given":"Weslla Karla","family":"Albuquerque de Paula","sequence":"additional","affiliation":[{"name":"Nursing Department Federal University of Pernambuco  Recife Brazil"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6950-2015","authenticated-orcid":false,"given":"Tania Maria","family":"Rocha Guimar\u00e3es","sequence":"additional","affiliation":[{"name":"Universidade de Pernambuco  Recife Pernambuco Brazil"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5736-0133","authenticated-orcid":false,"given":"Estella Maria","family":"Leite Meirelles Monteiro","sequence":"additional","affiliation":[{"name":"Nursing Department Federal University of Pernambuco  Recife Brazil"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9778-5024","authenticated-orcid":false,"given":"Francisca Marcia","family":"Pereira Linhares","sequence":"additional","affiliation":[{"name":"Nursing Department Federal University of Pernambuco  Recife Brazil"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1884-9638","authenticated-orcid":false,"given":"Marinus","family":"De Moraes Lima","sequence":"additional","affiliation":[{"name":"Nursing Department Federal University of Pernambuco  Recife Brazil"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7531-2605","authenticated-orcid":false,"given":"Maria Wanderleya","family":"de Lavor Coriolano Marinus","sequence":"additional","affiliation":[{"name":"Nursing Department Federal University of Pernambuco  Recife Brazil"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2022,6,29]]},"reference":[{"key":"e_1_2_8_2_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2516.2012.02909.x"},{"key":"#cr-split#-e_1_2_8_3_1.1","unstructured":"2013. 1. 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