{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,3]],"date-time":"2026-09-03T16:28:24Z","timestamp":1788452904079,"version":"build-2803163510"},"reference-count":26,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2022,7,7]],"date-time":"2022-07-07T00:00:00Z","timestamp":1657152000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Haemophilia"],"published-print":{"date-parts":[[2022,11]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Introduction<\/jats:title><jats:p>The social worker (SW) role in the Hemophilia Treatment Center (HTC) is complex and broad, providing direct support, spanning across micro, mezzo and macro levels of care.<\/jats:p><\/jats:sec><jats:sec><jats:title>Aim<\/jats:title><jats:p>Research demonstrates discrepancy between actual and ideal SW roles among the HTC SW community. Soliciting perceptions from HTC staff about the SW role can provide a deeper understanding of this discrepancy and improve collaboration amongst care team members in meeting the psychosocial needs of HTC patients.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Funded by the National Hemophilia Foundation (NHF), a national online survey was conducted in 2020 to determine the views and attitudes of what the SW role is by HTC staff. Separate surveys were emailed to active HTC SWs and staff to collect anonymous data. Demographics of SWs gathered included age, education, years of practice, full time equivalent (FTE) status, and caseload. All disciplines were asked questions about perceptions, barriers, and potential ways to enhance and strengthen the SW role within HTCs.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Results demonstrated that subcategory\u2010oriented questions (40 in total) and qualitative responses highlighted diverse viewpoints and offered clarity about these differences.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Findings indicated most HTC staff value the multi\u2010faceted role of SW at their centres, and both groups identified time, limited resources, and role confusion as barriers to utilizing SW services. Outcomes will inform the development of a \u201cstandards of practice\u201d tool that will provide education for HTC staff, patients, and families, and serve as an empowerment tool for SW to highlight their skillset and define their role.<\/jats:p><\/jats:sec>","DOI":"10.1111\/hae.14612","type":"journal-article","created":{"date-parts":[[2022,7,7]],"date-time":"2022-07-07T15:14:00Z","timestamp":1657206840000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Defining the micro and macro roles of a hemophilia treatment center social worker in the United States from an interdisciplinary team perspective"],"prefix":"10.1111","volume":"28","author":[{"given":"Diane L.","family":"Bartlett","sequence":"first","affiliation":[{"name":"St. Luke's Hemophilia Center  Boise Idaho USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0343-0535","authenticated-orcid":false,"given":"Kathaleen M.","family":"Schnur","sequence":"additional","affiliation":[{"name":"Hemophilia Center of Western Pennsylvania  Pittsburgh Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Amy K.","family":"Wilson","sequence":"additional","affiliation":[{"name":"University of Minnesota Center for Bleeding &amp; Clotting Disorders Hemophilia Treatment Center  Minneapolis Minnesota USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Spencer S.","family":"Moorman","sequence":"additional","affiliation":[{"name":"Norton Children's Cancer Institute, University of Louisville  Louisville Kentucky USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2022,7,7]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1182\/blood-2018-08-872291"},{"key":"e_1_2_9_3_1","volume-title":"NASW Standards for Social Work Practice in Health Care Settings","author":"National Association of Social Workers","year":"2016"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.1093\/hsw\/hlt002"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1080\/00981389.2015.1025122"},{"key":"e_1_2_9_6_1","doi-asserted-by":"publisher","DOI":"10.1093\/hsw\/hlw006"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.12354"},{"key":"e_1_2_9_8_1","unstructured":"KachalskyE GearyM PennickL et\u00a0al.The role of the hemophilia treatment center social worker in the United States.Poster presented at NHF Bleeding Disorder Conference2016."},{"key":"e_1_2_9_9_1","unstructured":"DunnL McGeadyL GearyM et\u00a0al.Hemophilia treatment center social workers\u2019 involvement with local bleeding disorder chapters: preliminary results of a national survey.Poster presented at NHF Bleeding Disorder Conference2015."},{"key":"e_1_2_9_10_1","unstructured":"GearyM KachalskyE PennickL et\u00a0al.Perceived roles of hemophilia treatment center social workers in the United States and barriers to those roles.Poster presented at NHF Bleeding Disorder Conference2016."},{"key":"e_1_2_9_11_1","unstructured":"GearyM KachalskyE PennickL et\u00a0al.Social work caseloads in hemophilia treatment centers in the United States.Poster presented at NHF Bleeding Disorder Conference2016."},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.1080\/00981389.2018.1477899"},{"key":"e_1_2_9_13_1","doi-asserted-by":"publisher","DOI":"10.1093\/hsw\/15.3.228"},{"key":"e_1_2_9_14_1","article-title":"RN case managers, social workers should work as a team with clearly defined roles: it takes both disciplines to be effective","author":"Thomas MB","year":"2017","journal-title":"Hosp Case Manag"},{"key":"e_1_2_9_15_1","doi-asserted-by":"publisher","DOI":"10.1080\/00981389.2019.1553934"},{"key":"e_1_2_9_16_1","doi-asserted-by":"publisher","DOI":"10.1200\/JCO.2019.37.27_suppl.214"},{"key":"e_1_2_9_17_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.bbmt.2017.12.793"},{"key":"e_1_2_9_18_1","doi-asserted-by":"publisher","DOI":"10.1080\/00981389.2019.1695703"},{"key":"e_1_2_9_19_1","first-page":"33","volume-title":"Preliminary comparison between the roles of support workers and social workers in community mental health services","author":"Pace B","year":"2009"},{"issue":"2","key":"e_1_2_9_20_1","first-page":"109","article-title":"The emerging role of social work in primary health care: a survey of social workers in Ontario family health teams","volume":"43","author":"Ashcroft R","year":"2018","journal-title":"Health Soc Work"},{"issue":"6","key":"e_1_2_9_21_1","first-page":"579","volume":"48","author":"Keefe B","year":"2009","journal-title":"Integrating social workers into primary care"},{"key":"e_1_2_9_22_1","volume-title":"MASAC Document 132\u2010Standards and Criteria for the Care of Persons with Congenital Bleeding Disorders","author":"National Hemophilia Foundation","year":"2002"},{"key":"e_1_2_9_23_1","unstructured":"World Federation of Hemophilia(2007).Psychosocial Care for People with Hemophilia. 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