{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,3]],"date-time":"2026-04-03T06:21:06Z","timestamp":1775197266480,"version":"3.50.1"},"reference-count":42,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2023,8,21]],"date-time":"2023-08-21T00:00:00Z","timestamp":1692576000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Haemophilia"],"published-print":{"date-parts":[[2023,9]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Introduction<\/jats:title><jats:p>Care for adolescents with haemophilia is transferred from paediatric to adult care around the age of 18 years. Transition programs help to prepare adolescents for this transfer and prevent declining treatment adherence. Evaluating transition readiness may identify areas for improvement.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objective<\/jats:title><jats:p>Assess transition readiness among Dutch adolescents and young adults with haemophilia, determine factors associated with transition readiness, and identify areas of improvement in transition programs.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>All Dutch adolescents and young adults aged 12\u201325 years with haemophilia were invited to participate in a nationwide questionnaire study. Transition readiness was assessed using multiple\u2010choice questions and was defined as being ready or almost ready for transition. Potential factors associated with transition readiness were investigated, including: socio\u2010demographic and disease\u2010related factors, treatment adherence, health\u2010related quality of life, and self\u2010efficacy.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Data of 45 adolescents and 84 young adults with haemophilia (47% with severe haemophilia) were analyzed. Transition readiness increased with age, from 39% in 12\u201314 year\u2010olds to 63% in 15\u201317 year\u2010olds. Nearly all post\u2010transition young adults (92%, 77\/84) reported they were ready for transition. Transition readiness was associated with treatment adherence, as median VERITAS\u2010Pro treatment adherence scores were worse in patients who were not ready (17, IQR 9\u201329), compared to those ready for transition (11, IQR 9\u201316). Potential improvements were identified: getting better acquainted with the adult treatment team prior to transition and information on managing healthcare costs.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Nearly all post\u2010transition young adults reported they were ready for transition. Improvements were identified regarding team acquaintance and preparation for managing healthcare costs.<\/jats:p><\/jats:sec>","DOI":"10.1111\/hae.14834","type":"journal-article","created":{"date-parts":[[2023,8,22]],"date-time":"2023-08-22T02:52:25Z","timestamp":1692672745000},"page":"1191-1201","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["Transition readiness among adolescents and young adults with haemophilia in the Netherlands: Nationwide questionnaire study"],"prefix":"10.1111","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3188-5900","authenticated-orcid":false,"given":"Martijn R.","family":"Brands","sequence":"first","affiliation":[{"name":"Department of Pediatric Hematology Emma Children's Hospital Amsterdam UMC location University of Amsterdam  Amsterdam the Netherlands"},{"name":"Amsterdam Reproduction &amp; Development, Public Health Amsterdam UMC location University of Amsterdam  Amsterdam the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0009-0003-0344-378X","authenticated-orcid":false,"given":"Ebony A. M.","family":"Janssen","sequence":"additional","affiliation":[{"name":"Department of Pediatric Hematology Emma Children's Hospital Amsterdam UMC location University of Amsterdam  Amsterdam the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1557-2995","authenticated-orcid":false,"given":"Marjon H.","family":"Cnossen","sequence":"additional","affiliation":[{"name":"Department of Pediatric Hematology Erasmus MC Sophia Children's Hospital Erasmus University Medical Center Rotterdam  Rotterdam the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0735-7067","authenticated-orcid":false,"given":"Cees","family":"Smit","sequence":"additional","affiliation":[{"name":"Department of Clinical Epidemiology Leiden University Medical Center  Leiden the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3242-5524","authenticated-orcid":false,"given":"Lize F. D.","family":"van Vulpen","sequence":"additional","affiliation":[{"name":"Center for Benign Haematology Thrombosis and Haemostasis Van Creveldkliniek University Medical Center Utrecht Utrecht University  Utrecht the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5292-166X","authenticated-orcid":false,"given":"Paul R.","family":"van der Valk","sequence":"additional","affiliation":[{"name":"Center for Benign Haematology Thrombosis and Haemostasis Van Creveldkliniek University Medical Center Utrecht Utrecht University  Utrecht the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3268-5759","authenticated-orcid":false,"given":"Jeroen","family":"Eikenboom","sequence":"additional","affiliation":[{"name":"Department of Internal Medicine Division of Thrombosis and Hemostasis Leiden University Medical Center  Leiden the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3281-926X","authenticated-orcid":false,"given":"Floor C. 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I.","family":"Heubel\u2010Moenen","sequence":"additional","affiliation":[{"name":"Department of Hematology Maastricht University Medical Centre  Maastricht the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5522-2896","authenticated-orcid":false,"given":"Louise","family":"Hooimeijer","sequence":"additional","affiliation":[{"name":"Department of Pediatrics University Medical Center Groningen  Groningen the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1250-7979","authenticated-orcid":false,"given":"Paula","family":"Ypma","sequence":"additional","affiliation":[{"name":"Department of Hematology HagaZiekenhuis  The Hague the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0494-9374","authenticated-orcid":false,"given":"Laurens","family":"Nieuwenhuizen","sequence":"additional","affiliation":[{"name":"Department of Internal Medicine Maxima Medical Centre  Eindhoven the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6891-9062","authenticated-orcid":false,"given":"Michiel","family":"Coppens","sequence":"additional","affiliation":[{"name":"Department of Vascular Medicine Amsterdam UMC location University of Amsterdam  Amsterdam The Netherlands"},{"name":"Amsterdam Cardiovascular Sciences Pulmonary Hypertension &amp; Thrombosis  Amsterdam The Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2423-2829","authenticated-orcid":false,"given":"Saskia E. M.","family":"Schols","sequence":"additional","affiliation":[{"name":"Department of Hematology Radboud University Medical Center  Nijmegen the Netherlands"},{"name":"Hemophilia Treatment Center Nijmegen\u2010Eindhoven\u2010Maastricht  Nijmegen the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Britta A. P.","family":"Laros\u2010van Gorkom","sequence":"additional","affiliation":[{"name":"Department of Hematology Radboud University Medical Center  Nijmegen the Netherlands"},{"name":"Hemophilia Treatment Center Nijmegen\u2010Eindhoven\u2010Maastricht  Nijmegen the Netherlands"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5677-1371","authenticated-orcid":false,"given":"Frank W. 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