{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,16]],"date-time":"2026-05-16T05:54:13Z","timestamp":1778910853822,"version":"3.51.4"},"reference-count":10,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2024,4,29]],"date-time":"2024-04-29T00:00:00Z","timestamp":1714348800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Haemophilia"],"published-print":{"date-parts":[[2024,7]]},"DOI":"10.1111\/hae.15023","type":"journal-article","created":{"date-parts":[[2024,4,30]],"date-time":"2024-04-30T02:14:30Z","timestamp":1714443270000},"page":"1071-1076","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Quality of life of siblings of adolescents with severe haemophilia (FRATHEMO): An ancillary study to the TRANSHEMO project"],"prefix":"10.1111","volume":"30","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4840-283X","authenticated-orcid":false,"given":"Ngoc Anh Thu","family":"Nguyen","sequence":"first","affiliation":[{"name":"CEReSS \u2013 Health Services and Quality of Life Research, Research Unit 3279 Aix\u2010Marseille University Marseille France"},{"name":"Methodological Support Unit for Clinical and Epidemiological Research University Hospital of Marseille (AP\u2010HM)  Marseille France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Pascal","family":"Auquier","sequence":"additional","affiliation":[{"name":"CEReSS \u2013 Health Services and Quality of Life Research, Research Unit 3279 Aix\u2010Marseille University Marseille France"},{"name":"Methodological Support Unit for Clinical and Epidemiological Research University Hospital of Marseille (AP\u2010HM)  Marseille France"},{"name":"FranceCoag Network  Marseille France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Any","family":"Beltran Anzola","sequence":"additional","affiliation":[{"name":"CEReSS \u2013 Health Services and Quality of Life Research, Research Unit 3279 Aix\u2010Marseille University Marseille France"},{"name":"Methodological Support Unit for Clinical and Epidemiological Research University Hospital of Marseille (AP\u2010HM)  Marseille France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7368-4624","authenticated-orcid":false,"given":"Annie","family":"Harroche","sequence":"additional","affiliation":[{"name":"University Hospital of Paris (AP\u2010HP), Haemophilia Treatment Centre Hospital Necker Paris France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Yoann","family":"Huguenin","sequence":"additional","affiliation":[{"name":"University Hospital of Bordeaux Haemophilia Treatment Centre  Bordeaux France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Audrey","family":"Hochart","sequence":"additional","affiliation":[{"name":"University Hospital of Lille Hematology Transfusion Lille France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6785-4332","authenticated-orcid":false,"given":"Sandrine","family":"Meunier","sequence":"additional","affiliation":[{"name":"Hospices Civils de Lyon Haemophilia Treatment Centre and French Reference Centre on Haemophilia University Hospital  Bron France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Birgit","family":"Frotscher","sequence":"additional","affiliation":[{"name":"University Hospital of Nancy Haemophilia Treatment Centre  Nancy France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6075-2330","authenticated-orcid":false,"given":"Philippe","family":"Nguyen","sequence":"additional","affiliation":[{"name":"University Hospital of Reims Haemophilia Treatment Centre  Reims France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Pascale","family":"Schneider","sequence":"additional","affiliation":[{"name":"University Hospital of Rouen Haemophilia Treatment Centre  Rouen France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Claire","family":"Berger","sequence":"additional","affiliation":[{"name":"University Hospital of Saint\u2010Etienne Haemophilia Treatment Centre  Saint\u2010Etienne France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1650-0427","authenticated-orcid":false,"given":"Aur\u00e9lien","family":"Lebreton","sequence":"additional","affiliation":[{"name":"University Hospital of Clermont\u2010Ferrand Haemophilia Treatment Centre  Clermont\u2010Ferrand France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"St\u00e9phane","family":"Vanderbecken","sequence":"additional","affiliation":[{"name":"University Hospital of Reunion Haemophilia Treatment Centre  Reunion Island France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Emmanuelle","family":"De Raucourt","sequence":"additional","affiliation":[{"name":"Hospital of Versailles Haemophilia Treatment Centre  Versailles France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4843-7805","authenticated-orcid":false,"given":"Roseline","family":"D'Oiron","sequence":"additional","affiliation":[{"name":"FranceCoag Network  Marseille France"},{"name":"University Hospital of Paris (AP\u2010HP) Haemophilia Treatment Centre Hospital Bic\u00eatre Paris France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Caroline","family":"Oudot\u2010Challard","sequence":"additional","affiliation":[{"name":"University Hospital of Toulouse Haemophilia Treatment Centre  Toulouse France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Karine","family":"Baumstarck","sequence":"additional","affiliation":[{"name":"CEReSS \u2013 Health Services and Quality of Life Research, Research Unit 3279 Aix\u2010Marseille University Marseille France"},{"name":"Methodological Support Unit for Clinical and Epidemiological Research University Hospital of Marseille (AP\u2010HM)  Marseille France"},{"name":"FranceCoag Network  Marseille France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mohamed","family":"Boucekine","sequence":"additional","affiliation":[{"name":"CEReSS \u2013 Health Services and Quality of Life Research, Research Unit 3279 Aix\u2010Marseille University Marseille France"},{"name":"Methodological Support Unit for Clinical and Epidemiological Research University Hospital of Marseille (AP\u2010HM)  Marseille France"},{"name":"FranceCoag Network  Marseille France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Cl\u00e9mence","family":"Tab\u00e9l\u00e9","sequence":"additional","affiliation":[{"name":"CEReSS \u2013 Health Services and Quality of Life Research, Research Unit 3279 Aix\u2010Marseille University Marseille France"},{"name":"Methodological Support Unit for Clinical and Epidemiological Research University Hospital of Marseille (AP\u2010HM)  Marseille France"},{"name":"FranceCoag Network  Marseille France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Natacha","family":"Rosso\u2010Delsemme","sequence":"additional","affiliation":[{"name":"Laboratory of Clinical Psychopathology; language and subjectivity, Research Unit EA 3278 Aix\u2010Marseille University Aix\u2010en\u2010Provence France"},{"name":"University Hospital of Marseille (AP\u2010HM) Haemophilia Treatment Centre Children Hospital La Timone Marseille France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9220-1840","authenticated-orcid":false,"given":"Thomas","family":"Sanni\u00e9","sequence":"additional","affiliation":[{"name":"French Association for People with Haemophilia (AFH) Paris France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nicolas","family":"Giraud","sequence":"additional","affiliation":[{"name":"French Association for People with Haemophilia (AFH) Paris France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Herv\u00e9","family":"Chambost","sequence":"additional","affiliation":[{"name":"FranceCoag Network  Marseille France"},{"name":"University Hospital of Marseille (AP\u2010HM) Haemophilia Treatment Centre Children Hospital La Timone Marseille France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"No\u00e9mie","family":"Resseguier","sequence":"additional","affiliation":[{"name":"CEReSS \u2013 Health Services and Quality of Life Research, Research Unit 3279 Aix\u2010Marseille University Marseille France"},{"name":"Methodological Support Unit for Clinical and Epidemiological Research University Hospital of Marseille (AP\u2010HM)  Marseille France"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"name":"the FRATHEMO Study group","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2024,4,29]]},"reference":[{"key":"e_1_2_1_7_2_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.14046"},{"key":"e_1_2_1_7_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.13659"},{"key":"e_1_2_1_7_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.14841"},{"key":"e_1_2_1_7_5_1","volume-title":"The KIDSCREEN Questionnaires \u2010 Quality of Life Questionnaires for Children and Adolescents \u2010 Handbook","author":"Ravens\u2010Sieberer U, the European KIDSCREEN Group","year":"2006"},{"key":"e_1_2_1_7_6_1","doi-asserted-by":"publisher","DOI":"10.1037\/1082-989X.11.2.142"},{"key":"e_1_2_1_7_7_1","doi-asserted-by":"publisher","DOI":"10.1213\/ANE.0b013e3182a44cb9"},{"key":"e_1_2_1_7_8_1","doi-asserted-by":"publisher","DOI":"10.1155\/2016\/1579428"},{"key":"e_1_2_1_7_9_1","doi-asserted-by":"publisher","DOI":"10.1186\/1477-7525-8-121"},{"key":"e_1_2_1_7_10_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365-2214.2010.01165.x"},{"key":"e_1_2_1_7_11_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12889-022-12941-3"}],"container-title":["Haemophilia"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/hae.15023","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,4,13]],"date-time":"2025-04-13T18:08:03Z","timestamp":1744567683000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/hae.15023"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,4,29]]},"references-count":10,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2024,7]]}},"alternative-id":["10.1111\/hae.15023"],"URL":"https:\/\/doi.org\/10.1111\/hae.15023","archive":["Portico"],"relation":{},"ISSN":["1351-8216","1365-2516"],"issn-type":[{"value":"1351-8216","type":"print"},{"value":"1365-2516","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,4,29]]},"assertion":[{"value":"2023-12-18","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2024-04-11","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2024-04-29","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}