{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,22]],"date-time":"2026-10-22T07:38:36Z","timestamp":1792654716804,"version":"4.5.0"},"reference-count":24,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2025,3,7]],"date-time":"2025-03-07T00:00:00Z","timestamp":1741305600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2025,3,7]],"date-time":"2025-03-07T00:00:00Z","timestamp":1741305600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Haemophilia"],"published-print":{"date-parts":[[2025,5]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Despite reports of elevated rates of osteoporosis and fractures in persons with haemophilia (PwH) and von Willebrand disease (PwVWD), routine bone health screening using dual\u2010energy X\u2010ray absorptiometry (DEXA) scans is not consistently implemented for this population across all Haemophilia Treatment Centres (HTCs) in the United States.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>The primary aim of this study was to examine rates of screening for bone health in PwH and PwVWD with vitamin D levels and DEXA scans.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We conducted a survey of all federally funded HTCs nationwide from June 2023 to August 2023. Nine multiple\u2010choice questions were developed to explore the roles of HTC providers and their current practices for bone health assessment.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      The survey achieved a response rate of 44.8% (66 out of 147 HTCs). Among the responding centres, 21 HTCs (31.8%) reported routinely screening for vitamin D deficiency during annual comprehensive visits, while 13.6% (\n                      <jats:italic>n<\/jats:italic>\n                      = 9) performed regular bone health screenings using DEXA scans. Of these nine centres, three were adult HTCs and six were lifespan HTCs. DEXA scans were ordered either by physicians at the HTC (\n                      <jats:italic>n<\/jats:italic>\n                      = 5, 55.5%) or patients were referred to primary care providers, endocrinologists, or other specialists (\n                      <jats:italic>n<\/jats:italic>\n                      = 4, 44.4%). The top three indications for DEXA scans among the responding HTCs included HIV (\n                      <jats:italic>n<\/jats:italic>\n                      = 7, 77.7%), low physical activity or immobility (\n                      <jats:italic>n<\/jats:italic>\n                      = 6, 66.7%), fractures after a minor fall or injury in patients under 50 years of age (\n                      <jats:italic>n<\/jats:italic>\n                      = 5, 55.5%) and vitamin D deficiency (\n                      <jats:italic>n<\/jats:italic>\n                      = 5, 55.5%). These findings underscore the need for specific standardized screening guidelines to optimize bone health screening in PwH and PwVWD.\n                    <\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hae.70027","type":"journal-article","created":{"date-parts":[[2025,3,12]],"date-time":"2025-03-12T02:07:19Z","timestamp":1741745239000},"page":"519-525","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Bone Health Screening in Persons With Bleeding Disorders: A Survey of United States Haemophilia Treatment Centres"],"prefix":"10.1111","volume":"31","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7569-3118","authenticated-orcid":false,"given":"Divyaswathi","family":"Citla\u2010Sridhar","sequence":"first","affiliation":[{"name":"Arkansas Children's Hospital University of Arkansas for Medical Sciences  Little Rock Arkansas USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sanjay","family":"Ahuja","sequence":"additional","affiliation":[{"name":"Innovative hematology, Inc. Indiana Hemophilia and Thrombosis Center, Inc  Indianapolis Indiana USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9509-9415","authenticated-orcid":false,"given":"Robert","family":"Sidonio","sequence":"additional","affiliation":[{"name":"Emory University School of Medicine  Atlanta Georgia USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Meera","family":"Chitlur","sequence":"additional","affiliation":[{"name":"Children's Hospital of Michigan Central Michigan University  Detroit Michigan USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4574-6175","authenticated-orcid":false,"given":"Anjali","family":"Sharathkumar","sequence":"additional","affiliation":[{"name":"Stead Family Department of Pediatrics Carver College of Medicine University of Iowa  Iowa City Iowa USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1622-5103","authenticated-orcid":false,"given":"Patricia","family":"Tobase","sequence":"additional","affiliation":[{"name":"Department of Physical Therapy and Rehabilitation Science Hemophilia Treatment Center University of California  San Francisco California USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Suchitra","family":"Acharya","sequence":"additional","affiliation":[{"name":"Hemostasis and Thrombosis Center Northwell Health Cohen Children's Medical Center of New York  NY USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Daniel","family":"Isaac","sequence":"additional","affiliation":[{"name":"College of Human Medicine, Division of Hematology\/Oncology Michigan State University  Lansing Michigan USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Roshni","family":"Kulkarni","sequence":"additional","affiliation":[{"name":"Michigan State University Center for Bleeding and Clotting Disorders  Lansing Michigan USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marilyn Manco","family":"Johnson","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Hemophilia and Thrombosis Center University of Colorado Anschutz Medical Campus  Aurora Colorado 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