{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,8]],"date-time":"2026-03-08T22:41:08Z","timestamp":1773009668239,"version":"3.50.1"},"reference-count":21,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2025,8,8]],"date-time":"2025-08-08T00:00:00Z","timestamp":1754611200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"},{"start":{"date-parts":[[2025,8,8]],"date-time":"2025-08-08T00:00:00Z","timestamp":1754611200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Haemophilia"],"published-print":{"date-parts":[[2025,9]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>There is a lack of consensus on professional competencies or educational requirements needed for registered nurses working with haemophilia patients (namely, haemophilia nurses) in thrombosis and haemostasis units in Spain. Their role is not officially recognised in many healthcare systems (HCS), including Spain.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>To identify and define the optimal curriculum and professional responsibilities of haemophilia nurses in Spain.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A total of 205 items were developed through literature review, and the input was presented and rated using a 10\u2010point Likert scale to reach posterior consensus. Items were grouped into three blocks: optimal curriculum, responsibilities in therapeutic management and follow\u2010up, and roles in patient and family education. Consensus was defined as a mean score between 6.6 and 10. A virtual round table with final statements was held on 19 March 2024 with the participation of 13 haemophilia nurses.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Agreement was reached on all items. A three\u2010level framework (basic, advanced, expert) was proposed as a tool for knowledge of pathophysiology, laboratory procedures and therapeutic strategies. Nurses also pointed to an active role in treatment management, clinical assessment and education. Other ideal responsibilities included participation in research, education of colleagues, patients and families, and advocacy within the HCS.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>This consensus\u2010based proposal aimed to provide a structured, standardised framework for the education, scope, and recognition of congenital coagulopathies nurses in Spain. This framework of competencies could be the stepping stone to formal training programmes, accreditation systems, and the advancement of professional development in specialised nursing care for rare bleeding disorders.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hae.70105","type":"journal-article","created":{"date-parts":[[2025,8,8]],"date-time":"2025-08-08T10:05:06Z","timestamp":1754647506000},"page":"981-987","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Identifying Professional Responsibilities and Designing the Optimal Curriculum for Haemophilia Nurses in Spain: A Round Table Discussion"],"prefix":"10.1111","volume":"31","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8706-0668","authenticated-orcid":false,"given":"Sara","family":"Garc\u00eda\u2010Barcenilla","sequence":"first","affiliation":[{"name":"Congenital and Acquired Coagulopathies Unit Hospital La Paz Institute for Health Research \u2013 IdiPAZ (La Paz University Hospital \u2013 Universidad Aut\u00f3noma de Madrid)  Madrid Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Montserrat","family":"Rambla P\u00e9rez","sequence":"additional","affiliation":[{"name":"Hematology Department, Thrombosis &amp; Hemostasis Unit Sant Pau Campus Salut Barcelona (HSP), Hospital de la Santa Creu i Sant Pau, Unitat Integrada Hemof\u00edlia SJD\u2010HSP, CSUR Coagulopat\u00edas, XUEC Coagulopathies  Barcelona Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Noelia","family":"P\u00e9rez","sequence":"additional","affiliation":[{"name":"Blood Bank and Apheresis Unit R\u00edo Hortega University Hospital  Valladolid Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alfonso Castro","family":"Blanco","sequence":"additional","affiliation":[{"name":"Congenital and Acquired Coagulopathies Unit Hospital La Paz Institute for Health Research \u2013 IdiPAZ (La Paz University Hospital \u2013 Universidad Aut\u00f3noma de Madrid)  Madrid Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Anna","family":"Diaz","sequence":"additional","affiliation":[{"name":"Hemostasis Unit Doctor Josep Trueta University Hospital  Girona Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Carmen Fernandez","family":"Sarmiento","sequence":"additional","affiliation":[{"name":"Hemophilia Unit Vall d'Hebron University Hospital  Barcelona Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Eva","family":"\u00c1lvarez Mart\u00ednez","sequence":"additional","affiliation":[{"name":"Hemophilia Unit Vall d'Hebron University Hospital  Barcelona Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mar\u00eda Dolores","family":"de Dios","sequence":"additional","affiliation":[{"name":"Hemophilia Unit Nuestra Se\u00f1ora de Candelaria University Hospital  Santa Cruz de Tenerife Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mar\u00eda del Carmen Garc\u00eda","family":"Mart\u00ednez","sequence":"additional","affiliation":[{"name":"Congenital and Acquired Coagulopathies Unit Hospital La Paz Institute for Health Research \u2013 IdiPAZ (La Paz University Hospital \u2013 Universidad Aut\u00f3noma de Madrid)  Madrid Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mar\u00eda Teresa","family":"Torres","sequence":"additional","affiliation":[{"name":"Department of Pediatrics General Hospital of Valdepe\u00f1as  Ciudad Real Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Merc\u00e8 Triquell","family":"Garrell","sequence":"additional","affiliation":[{"name":"Hematology Department, Thrombosis &amp; Hemostasis Unit Sant Pau Campus Salut Barcelona (HSP), Hospital de la Santa Creu i Sant Pau, Unitat Integrada Hemof\u00edlia SJD\u2010HSP, CSUR Coagulopat\u00edas, XUEC Coagulopathies  Barcelona Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nuria","family":"Caballero Menc\u00eda","sequence":"additional","affiliation":[{"name":"Hematology Department Hospital Sant Joan de D\u00e9u (SJD) &amp; Institut de Recerca Sant Joan de D\u00e9u de Barcelona (IRSJD) Unitat Integrada Hemof\u00edlia SJD\u2010HSP, CSUR Coagulopat\u00edas, XUEC Coagulopathies  Barcelona Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mar\u00eda Antonia","family":"Fern\u00e1ndez","sequence":"additional","affiliation":[{"name":"Blood Bank and Apheresis Unit R\u00edo Hortega University Hospital  Valladolid Spain"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2025,8,8]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1002\/rth2.12155"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1097\/NOR.0b013e3181db53e8"},{"key":"e_1_2_10_4_1","first-page":"331","article-title":"VTE Prevention: Development of an Institutional Protocol and the Nurse's Role","volume":"23","author":"Tietze M.","year":"2014","journal-title":"Medsurg Nursing"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.17225\/jhp.00008"},{"key":"e_1_2_10_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/inr.12123"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.14974"},{"key":"e_1_2_10_8_1","unstructured":"M.Sanidad. 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