{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,8]],"date-time":"2026-09-08T14:01:02Z","timestamp":1788876062837,"version":"build-2803163510"},"reference-count":37,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2025,8,25]],"date-time":"2025-08-25T00:00:00Z","timestamp":1756080000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2025,8,25]],"date-time":"2025-08-25T00:00:00Z","timestamp":1756080000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Haemophilia"],"published-print":{"date-parts":[[2025,9]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Social determinants of health (SDOH) increasingly shape health care priorities, highlighting the intricate interplay of environment, behaviour, socioeconomics and health care access. The COVID\u201019 pandemic intensified disparities, particularly affecting racial\/ethnic groups with bleeding disorders.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Aim<\/jats:title>\n                    <jats:p>The pilot study aimed to identify key themes related to health equity, diversity, and inclusion as it relates to Black, indigenous people of colour (for example, Native Americans and Asian Pacific Islanders), and Hispanic\/Latino people with bleeding disorders (PWBD) by interviewing haemophilia treatment centre (HTC) healthcare providers (HCPs) and a National Bleeding Disorders Foundation (NBDF) chapter executive director. It sought to identify practice gaps, understand the impact of SDOH, and provide an opportunity to propose interventions to address these disparities.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>NBDF conducted eight interviews with HTC staff members and an NBDF chapter executive director to explore the impact of bleeding disorders on underserved groups. Themes included barriers to care, SDOH influences, and potential interventions. A total of 33 HTC HCPs responded to an anonymous quantitative survey fielded electronically to further validate insights and gather quantitative data.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Specialists highlighted pandemic\u2010related challenges, including exacerbated mental health concerns, communication barriers due to language, and transportation issues. These findings underscore the significant impact of SDOH on health care access and outcomes amongst underserved PWBD.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>The pilot study highlights the need to address access and health care disparities amongst underserved PWBD, particularly in racial\/ethnic minorities. By addressing SDOH factors, cultural context, and healthcare professionals' bias, HTCs can strive towards equality, equity, and justice, facilitating optimal outcomes for all individuals with bleeding disorders.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hae.70118","type":"journal-article","created":{"date-parts":[[2025,8,25]],"date-time":"2025-08-25T15:29:39Z","timestamp":1756135779000},"page":"997-1002","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Addressing Health Equity, Diversity, and Inclusion in the Bleeding Disorders Community: Insights From a Pilot Study of Multi\u2010Stakeholder Interviews and Survey Data"],"prefix":"10.1111","volume":"31","author":[{"given":"Neil","family":"Frick","sequence":"first","affiliation":[{"name":"National Bleeding Disorders Foundation  New York New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Keri L.","family":"Norris","sequence":"additional","affiliation":[{"name":"National Bleeding Disorders Foundation  New York New York USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0005-8542-4412","authenticated-orcid":false,"given":"Michael","family":"Pangrace","sequence":"additional","affiliation":[{"name":"Impact Education LLC  Blue Bell Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0001-9771-3431","authenticated-orcid":false,"given":"Terry","family":"Richardson","sequence":"additional","affiliation":[{"name":"Impact Education LLC  Blue Bell Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah","family":"Waite\u2010Ardini","sequence":"additional","affiliation":[{"name":"Impact Education LLC  Blue Bell Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,8,25]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.14532"},{"key":"e_1_2_12_3_1","unstructured":"Social Determinants of Health \u201cHealthy People 2020 US Department of Health and Human Services Office of Disease Prevention and Health Promotion \u201d accessed2024 https:\/\/odphp.health.gov\/healthypeople\/priority\u2010areas\/social\u2010determinants\u2010health."},{"key":"e_1_2_12_4_1","doi-asserted-by":"publisher","DOI":"10.1377\/hlthaff.2020.00598"},{"key":"e_1_2_12_5_1","doi-asserted-by":"publisher","DOI":"10.1177\/0890117120930536b"},{"key":"e_1_2_12_6_1","unstructured":"S.Artiga K.Orgera andO.Pham Disparities in Health and Health Care: Five Key Questions and Answers Technical Report (National Library of Medicine Digital Collection Issue Brief 2018) accessed March 2024 http:\/\/resource.nlm.nih.gov\/101740322."},{"key":"e_1_2_12_7_1","doi-asserted-by":"publisher","DOI":"10.2147\/JBM.S325031"},{"key":"e_1_2_12_8_1","unstructured":"\u201cExpert Interviews With Selected Executive Directors and Hematologist From Hemophilia Treatment Center \u201dImpact Education LLC data on file 2023."},{"key":"e_1_2_12_9_1","unstructured":"\u201cLife expectancy \u201dCenters for Disease Control and Prevention Accessed March 2024 https:\/\/www.cdc.gov\/nchs\/fastats\/life\u2010expectancy.htm."},{"key":"e_1_2_12_10_1","unstructured":"\u201cThe Secretary's Advisory Committee on National Health Promotion and Disease Prevention Objectives for 2020. 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