{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,8]],"date-time":"2026-07-08T08:15:57Z","timestamp":1783498557167,"version":"3.55.0"},"reference-count":33,"publisher":"Wiley","license":[{"start":{"date-parts":[[2026,7,8]],"date-time":"2026-07-08T00:00:00Z","timestamp":1783468800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"},{"start":{"date-parts":[[2026,7,8]],"date-time":"2026-07-08T00:00:00Z","timestamp":1783468800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Haemophilia"],"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>The earthquake in T\u00fcrkiye had a profound impact on both haemophilia patients and healthcare services in the region. This experience highlighted the need for an effective action plan for patients with bleeding disorders in extraordinary situations.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>This is a cross\u2010sectional survey study designed to identify the needs of patients and physicians, as well as problems in health services. Two questionnaires were prepared and analysed. The first questionnaire consists of 26 questions for patients, including physical problems, difficulties in accessing doctors\/treatment, and storage problems. A focus group including 15 questions has been conducted with physicians.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>A total of 10 patients (diagnosed with severe haemophilia A and B) and 8 physicians participated in the study. Most of them reported bleeding due to impact, difficulties in accessing factors\/health services, and some of them had to change cities. Factors could not be stored in appropriate conditions due to damage\/power outages. The physicians who participated in the study were paediatric haematologists. Since the institutions where some of them worked were damaged, working conditions\/patient follow\u2010up became difficult. Physicians had difficulty reaching their patients who had moved to other cities and assessing the level of factors in patients who applied.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>This research revealed that managing chronically ill patients during disasters requires special attention. Patients emphasized the importance of knowing their health status in times of crisis. This article serves as a resource for consensus reports that associations may prepare.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hae.70353","type":"journal-article","created":{"date-parts":[[2026,7,8]],"date-time":"2026-07-08T07:43:41Z","timestamp":1783496621000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Haemophilia Management in Natural Disasters\u2014From Field to Consensus Report"],"prefix":"10.1111","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2073-5405","authenticated-orcid":false,"given":"Ahmet Muzaffer","family":"Demir","sequence":"first","affiliation":[{"name":"Division of Hematology Department of Internal Medicine, Faculty of Medicine Trakya University Edirne Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2192-298X","authenticated-orcid":false,"given":"Selin","family":"Ayta\u00e7","sequence":"additional","affiliation":[{"name":"Department of Pediatrics Hematology\u2010Oncology Division Faculty of Medicine Hacettepe University Ankara Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7428-3897","authenticated-orcid":false,"given":"Serap","family":"Karaman","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Istanbul Faculty of Medicine Pediatric Hematology\u2010Oncology, Istanbul University  Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6379-224X","authenticated-orcid":false,"given":"Can","family":"Ac\u0131payam","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Pediatric Hematology\u2010Oncology Faculty of Medicine Kahramanmara\u015f S\u00fct\u00e7\u00fc \u0130mam University  Kahramanmara\u015f Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0332-9253","authenticated-orcid":false,"given":"Muhlis Cem","family":"Ar","sequence":"additional","affiliation":[{"name":"Division of IHematology Deparment of Internal Medicine Cerrahpa\u015fa Faculty of Medicine Istanbul University \u2013 Cerrahpa\u015fa Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6058-6021","authenticated-orcid":false,"given":"B\u00fclent","family":"Antmen","sequence":"additional","affiliation":[{"name":"Pediatrics and Bone Marrow Transplantation Center Ac\u0131badem Adana Hospital  Adana Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0686-7129","authenticated-orcid":false,"given":"Adalet Meral","family":"G\u00fcne\u015f","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Pediatric Hematology\u2010Oncology Division Faculty of Medicine Bursa Uluda\u011f University  Bursa Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4910-2142","authenticated-orcid":false,"given":"Kaan","family":"Kavakl\u0131","sequence":"additional","affiliation":[{"name":"Department of Pediatrics, Hematology\u2010Oncology Division Faculty of Medicine Ege University  \u0130zmir Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2922-9573","authenticated-orcid":false,"given":"Hasan","family":"Kaya","sequence":"additional","affiliation":[{"name":"Division of Hematology Department of Internal Medicine Tayfur Ata S\u00f6kmen Faculty of Medicine Hatay Mustafa Kemal University Antakya 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Hematology\u2010Oncology Faculty of Medicine Istanbul University  Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7586-6939","authenticated-orcid":false,"given":"Osman","family":"B\u00fclentZ\u00fclfikar","sequence":"additional","affiliation":[{"name":"Department of Pediatrics Pediatric Hematology\u2010Oncology Division Institute of Oncology Istanbul University  Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0002-5770-3463","authenticated-orcid":false,"given":"Merve","family":"Altunba\u015f","sequence":"additional","affiliation":[{"name":"Medical RareD Manager NovoNordisk  Istanbul Turkey"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,7,8]]},"reference":[{"key":"e_1_2_14_2_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.14610"},{"key":"e_1_2_14_3_1","unstructured":"National Hemophilia 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MASAC Document Number 227 [Accessed at 8.3.2026] www.haemophilia.org."},{"key":"e_1_2_14_4_1","unstructured":"Turkish Society of Hematology Consensus Report on Hemophilia Management in Extraordinary Situations October 2025."},{"key":"e_1_2_14_5_1","unstructured":"Turkish Society of Hematology.Results of the Survey on the February 6 2023 Kahramanmara\u015f 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07.03.2025]https:\/\/www.hemophiliafed.org\/resource\/non\u2010hfa\u2010disaster\u2010relief\/."},{"key":"e_1_2_14_16_1","doi-asserted-by":"publisher","DOI":"10.3390\/ijerph22050733"},{"key":"e_1_2_14_17_1","unstructured":"National Bleeding Disorders Guidelines on Care Emergency Management [Accessed at 07.03.2025] 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