{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,3]],"date-time":"2026-09-03T06:17:33Z","timestamp":1788416253345,"version":"build-2803163510"},"reference-count":41,"publisher":"Wiley","license":[{"start":{"date-parts":[[2026,9,2]],"date-time":"2026-09-02T00:00:00Z","timestamp":1788307200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"},{"start":{"date-parts":[[2026,9,2]],"date-time":"2026-09-02T00:00:00Z","timestamp":1788307200000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Haemophilia"],"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:label\/>\n                    <jats:p>Psychosocial care is a critical component of comprehensive haemophilia management, though its availability varies across regions and between clinical and community settings. This paper examines the landscape of psychosocial services offered through Haemophilia Treatment Centres (HTCs) and National Member Organizations (NMOs), both of which promote mental health, treatment adherence, and quality of life (QoL) using different frameworks. The delivery of psychosocial care in clinical settings, including staffing models, training, and collaboration with other healthcare professionals, is described in this paper, as are the differences between high\u2010income and low\u2010 and middle\u2010income countries. We explore how socioeconomic factors, gender, and cultural context influence haemophilia care and consider the future of psychosocial care needs related to novel therapies such as gene therapy and extended half\u2010life products. The paper concludes by advocating for integrated psychosocial care that adapts alongside biomedical advances, addresses global inequities, and emphasizes a patient\u2010centred, culturally informed approach to treatment.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hae.70360","type":"journal-article","created":{"date-parts":[[2026,9,3]],"date-time":"2026-09-03T06:03:51Z","timestamp":1788415431000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["The Essential Role of Psychosocial Care in Comprehensive Haemophilia Treatment: Global Perspectives From Haemophilia Treatment Centres and National Member Organizations"],"prefix":"10.1111","author":[{"given":"Amanda","family":"Stahl","sequence":"first","affiliation":[{"name":"Department of Hematology Boston Bleeding Disorders Center at Brigham and Women's Hospital  Boston Massachusetts USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kathaleen","family":"Schnur","sequence":"additional","affiliation":[{"name":"Hemophilia Center of Western Pennsylvania  Pittsburgh Pennsylvania USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Silvina","family":"Gra\u00f1a","sequence":"additional","affiliation":[{"name":"Fundaci\u00f3n De La Hemofilia \u2010 Argentina  Buenos Aires Argentina"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,9,2]]},"reference":[{"issue":"6","key":"e_1_2_9_2_1","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1111\/hae.14046","article-title":"WFH Guidelines for the Management of Hemophilia, 3rd Edition","volume":"26","author":"Srivastava A.","year":"2020","journal-title":"Haemophilia"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1002\/14651858.cd010215"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.1182\/blood\u20102023\u2010187236"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13023\u2010022\u201002256\u20102"},{"key":"e_1_2_9_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jtha.2022.12.027"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.rpth.2024.102415"},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.3390\/jcm6040039"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.13960Schmidt"},{"key":"e_1_2_9_10_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.70079"},{"key":"e_1_2_9_11_1","volume-title":"Genetic Counselling for Hemophilia","author":"Alabek M.","year":"2015"},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.1002\/14651858.CD010215.pub2"},{"key":"e_1_2_9_13_1","doi-asserted-by":"publisher","DOI":"10.1080\/00981389.2015.1040141"},{"key":"e_1_2_9_14_1","unstructured":"S.Gra\u00f1a \u201cInitial Diagnosis: Strategies to Promote Acceptance \u201d Haemophilia (2010)."},{"key":"e_1_2_9_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.13018"},{"key":"e_1_2_9_16_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pmed.1003595"},{"key":"e_1_2_9_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.13553"},{"key":"e_1_2_9_18_1","doi-asserted-by":"publisher","DOI":"10.1111\/hae.13186"},{"key":"e_1_2_9_19_1","volume-title":"Overcoming Challenges in Hemophilia Care","author":"WFH Psychosocial Committee Members","year":"2026"},{"key":"e_1_2_9_20_1","volume-title":"Psychosocial Support for Families at the Child's Diagnosis Stage","author":"WFH Psychosocial Committee Members","year":"2026"},{"key":"e_1_2_9_21_1","volume-title":"Space To Talk, Room To Listen","author":"WFH Psychosocial Committee","year":"2026"},{"issue":"1","key":"e_1_2_9_22_1","first-page":"8","article-title":"Description of a Sample of Hemophilia Patients' Family Structures: A Comparison Between Argentina and Mexico","volume":"35","author":"Osorio Guzm\u00e1n M.","year":"2016","journal-title":"Revista Costarricense de Psicolog\u00eda (Costa Rican Journal of Psychology)"},{"key":"e_1_2_9_23_1","unstructured":"The Haemophilia Psychological Association UK & IRELAND.Psychological Care for Adults Children & Families Affected by Haemophilia & Other Inherited Bleeding Disorders.2021 www.ukhcdo.org\/wp\u2010content\/uploads\/2023\/10\/HPA\u2010Standards\u2010of\u2010Care_Sept\u20102021.pdf."},{"key":"e_1_2_9_24_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1365\u20102516.2004.01002.x"},{"key":"e_1_2_9_25_1","doi-asserted-by":"publisher","DOI":"10.2147\/jbm.s291536"},{"key":"e_1_2_9_26_1","doi-asserted-by":"publisher","DOI":"10.46523\/jarssc.07.02.06"},{"key":"e_1_2_9_27_1","unstructured":"T. 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