{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,1,27]],"date-time":"2026-01-27T10:09:48Z","timestamp":1769508588876,"version":"3.49.0"},"reference-count":9,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2024,3,25]],"date-time":"2024-03-25T00:00:00Z","timestamp":1711324800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc\/4.0\/"}],"content-domain":{"domain":["headachejournal.onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Headache"],"published-print":{"date-parts":[[2024,4]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To assess for improvement in comfort in participating in advocacy for migraine and headache disorders and knowledge needed for successful advocacy.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>The Advocacy Connection Team (ACT)\u2010Now program is an educational program offered through Miles for Migraine, a non\u2010profit advocacy organization. It is designed to teach headache fellows and patients advocacy skills.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>In a cross\u2010sectional pre\u2010test\u2013post\u2010test design, the 2021 ACT\u2010Now cohort of 98 participants were administered a set of 11 pre\u2010course survey questions identifying their role (healthcare provider\/headache fellow or patient\/caregiver), baseline knowledge of migraine\u2010related disability and stigma, and baseline engagement and comfort with advocating. The post\u2010course survey questions were the same as the pre\u2010course questions, with the addition of one question assessing knowledge of migraine\u2010related disability, additional questions addressing comfort levels advocating with insurance and policymakers, as well as creating an advocacy plan.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      For the pre\u2010course survey, 69 participants responded and for the post\u2010course survey, 40 participants responded. Compared to the pre\u2010course survey, participants were able to correctly identify epidemiological data about migraine following the ACT\u2010Now course (pre\u2010course 46% correct, post\u2010course 58% correct,\n                      <jats:italic>p<\/jats:italic>\n                      \u2009=\u20090.263). There was also an increase in the comfort level of participants in advocacy activities, including the creation of an advocacy action plan (pre\u2010course 23% were \u201cvery comfortable\u201d advocating, post\u2010course 63%,\n                      <jats:italic>p<\/jats:italic>\n                      \u2009&lt;\u20090.05).\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>These results demonstrate that ACT\u2010Now is effective at improving advocacy skills in a mixed cohort of patients and headache fellows, giving them the skills to create advocacy plans and engage with other patients and physicians, payers, and policymakers to create a more understanding, equitable and compassionate world for persons with migraine and other headache diseases.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/head.14705","type":"journal-article","created":{"date-parts":[[2024,3,25]],"date-time":"2024-03-25T03:10:21Z","timestamp":1711336221000},"page":"374-379","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Advocacy Connection Team\u2010Now educational program for headache fellows and patients\/caregivers: Assessment of educational objectives"],"prefix":"10.1111","volume":"64","author":[{"given":"Courtney","family":"Seebadri\u2010White","sequence":"first","affiliation":[{"name":"Department of Neurology Thomas Jefferson University Sidney Kimmel Medical College  Philadelphia Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hsiangkuo","family":"Yuan","sequence":"additional","affiliation":[{"name":"Department of Neurology Thomas Jefferson University Sidney Kimmel Medical College  Philadelphia Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"William B.","family":"Young","sequence":"additional","affiliation":[{"name":"Department of Neurology Thomas Jefferson University Sidney Kimmel Medical College  Philadelphia Pennsylvania USA"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Karissa N.","family":"Arca","sequence":"additional","affiliation":[{"name":"Department of Neurology Mayo Clinic Scottsdale  Scottsdale Arizona USA"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2024,3,25]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S1474-4422(18)30322-3"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1526-4610.2008.01323.x"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1526-4610.2012.02265.x"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0054074"},{"key":"e_1_2_9_6_1","doi-asserted-by":"publisher","DOI":"10.1111\/head.13209"},{"key":"e_1_2_9_7_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11910-020-01073-z"},{"key":"e_1_2_9_8_1","unstructured":"National Alliance on Mental Illness.Nami Smarts for advocacy. NAMI Boulder County. January 25 2023. Accessed June 7 2023.https:\/\/namibouldercounty.org\/support\u2010and\u2010education\/presentations\/nami\u2010smarts\u2010for\u2010advocacy\/"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1097\/ACM.0000000000004173"},{"key":"e_1_2_9_10_1","unstructured":"NEJM Knowledge+ Team.Exploring the ACGME Core Competencies. NEJM Knowledge+. June 2 2018. Accessed June 7 2023.https:\/\/knowledgeplus.nejm.org\/blog\/exploring\u2010acgme\u2010core\u2010competencies\/"}],"container-title":["Headache: The Journal of Head and Face Pain"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/headachejournal.onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/head.14705","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,11,2]],"date-time":"2025-11-02T11:19:57Z","timestamp":1762082397000},"score":1,"resource":{"primary":{"URL":"https:\/\/headachejournal.onlinelibrary.wiley.com\/doi\/10.1111\/head.14705"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,3,25]]},"references-count":9,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2024,4]]}},"alternative-id":["10.1111\/head.14705"],"URL":"https:\/\/doi.org\/10.1111\/head.14705","archive":["Portico"],"relation":{},"ISSN":["0017-8748","1526-4610"],"issn-type":[{"value":"0017-8748","type":"print"},{"value":"1526-4610","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,3,25]]},"assertion":[{"value":"2023-10-24","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2024-02-23","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2024-03-25","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}