{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,24]],"date-time":"2026-07-24T04:38:22Z","timestamp":1784867902987,"version":"3.55.0"},"reference-count":38,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2013,12,17]],"date-time":"2013-12-17T00:00:00Z","timestamp":1387238400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2015,10]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Shunts, the main treatment for hydrocephalus, are problematic because they frequently malfunction. Detecting shunt malfunction is challenging because symptoms are similar to those of common childhood illnesses, particularly viral infections. Parents are responsible for identifying shunt malfunction and responding accordingly. Understanding parents' experiences has the potential to improve parent\u2013professional collaboration and the management of the child's condition.<\/jats:p><\/jats:sec><jats:sec><jats:title>Aim<\/jats:title><jats:p>To explore parents' experiences of living with a child with hydrocephalus and their decisions when they suspect shunt malfunction.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design and methods<\/jats:title><jats:p>A cross\u2010sectional interview\u2010based survey using qualitative methods was undertaken. Twenty\u2010five parents participated in the interviews. Framework approach underpinned data analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Findings<\/jats:title><jats:p>Three concepts, \u2018uncertainty\u2019, \u2018developing expertise\u2019, and \u2018a normal life\u2019, were identified. These concepts were dynamic in nature as parents learned through experience, adapted to changes in their child's health status and made decisions about their needs. Uncertainty because of the unpredictability and life\u2010threatening nature of shunt malfunction dominated parents' accounts. Through experience, parents learned to differentiate between symptoms that suggested a shunt problem and those of other childhood illnesses, but perceived their expertise was not always valued by health professionals or used to inform clinical decisions. Decisions about where or when to seek advice related to prior experiences of health\u2010care services and minimizing disruption for the whole family.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Parents can recognize illness symptoms suggestive of shunt malfunction and want to collaborate with health professionals about the management of their child's condition. Collaboration with parents requires health professionals to listen to parents' concerns and value their experiences.<\/jats:p><\/jats:sec>","DOI":"10.1111\/hex.12164","type":"journal-article","created":{"date-parts":[[2013,12,17]],"date-time":"2013-12-17T07:49:04Z","timestamp":1387266544000},"page":"1709-1720","source":"Crossref","is-referenced-by-count":34,"title":["Parents' experiences of living with a child with hydrocephalus: a cross\u2010sectional interview\u2010based study"],"prefix":"10.1111","volume":"18","author":[{"given":"Joanna","family":"Smith","sequence":"first","affiliation":[{"name":"Department of Health Studies Division of Maternal and Child Health University of Huddersfield Huddersfield UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Francine","family":"Cheater","sequence":"additional","affiliation":[{"name":"School of Nursing Sciences University of East Anglia Norwich 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