{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,20]],"date-time":"2026-09-20T17:23:34Z","timestamp":1789925014488,"version":"4.0.1"},"reference-count":39,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2014,7,2]],"date-time":"2014-07-02T00:00:00Z","timestamp":1404259200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"name":"National Health Institute of Health Research, School for Primary Care Research (NIHR SPCR)"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2015,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Multiple <jats:styled-content style=\"fixed-case\">S<\/jats:styled-content>clerosis (<jats:styled-content style=\"fixed-case\">MS<\/jats:styled-content>) is a chronic, degenerative condition with an estimated <jats:styled-content style=\"fixed-case\">UK<\/jats:styled-content> prevalence of 100\u00a0000. Contact with health\u2010care services is frequent and long\u2010term; however, little research has investigated the experiences of health care for <jats:styled-content style=\"fixed-case\">MS<\/jats:styled-content> in the <jats:styled-content style=\"fixed-case\">UK<\/jats:styled-content>.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objective<\/jats:title><jats:p>The aim of this systematic narrative review was to critically review qualitative studies reporting patients' experiences of health\u2010care services in the <jats:styled-content style=\"fixed-case\">UK<\/jats:styled-content>.<\/jats:p><\/jats:sec><jats:sec><jats:title>Search strategy<\/jats:title><jats:p><jats:styled-content style=\"fixed-case\">EMBASE<\/jats:styled-content>,<jats:styled-content style=\"fixed-case\"> CINAHL<\/jats:styled-content>, Medline, psych<jats:styled-content style=\"fixed-case\">INFO<\/jats:styled-content> and <jats:styled-content style=\"fixed-case\">MS<\/jats:styled-content> Society databases were searched with no date restrictions using search terms denoting \u2018<jats:styled-content style=\"fixed-case\">M<\/jats:styled-content>ultiple <jats:styled-content style=\"fixed-case\">S<\/jats:styled-content>clerosis\u2019, \u2018health\u2010care services\u2019, \u2018patient\u2019, \u2018experience\u2019 and \u2018qualitative research\u2019. Snowballing and hand searching of journals were used.<\/jats:p><\/jats:sec><jats:sec><jats:title>Inclusion criteria<\/jats:title><jats:p>Studies were included if they used qualitative methods of data collection and analysis to investigate adult patient's experiences of health\u2010care services for <jats:styled-content style=\"fixed-case\">MS<\/jats:styled-content> in the <jats:styled-content style=\"fixed-case\">UK<\/jats:styled-content>.<\/jats:p><\/jats:sec><jats:sec><jats:title>Data extraction and synthesis<\/jats:title><jats:p>Data were extracted independently and analysed jointly by two reviewers. Studies were appraised for the quality of evidence described using the <jats:styled-content style=\"fixed-case\">C<\/jats:styled-content>ritical <jats:styled-content style=\"fixed-case\">A<\/jats:styled-content>ppraisal <jats:styled-content style=\"fixed-case\">S<\/jats:styled-content>kills <jats:styled-content style=\"fixed-case\">P<\/jats:styled-content>rogramme's qualitative tool. Due to the breadth of areas covered, the data were too heterogeneous for a synthesis and are presented as a narrative review.<\/jats:p><\/jats:sec><jats:sec><jats:title>Main results and discussion<\/jats:title><jats:p>Five studies were included. Studies primarily investigated diagnosis or palliative care. Themes of importance were the emotional experience of health care, continuity of care and access to services, and support from health\u2010care professionals. Studies were mainly poor quality and focussed on a homogenous sample.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>This study provides the first review of the <jats:styled-content style=\"fixed-case\">UK<\/jats:styled-content> evidence base of experiences of health care for <jats:styled-content style=\"fixed-case\">MS<\/jats:styled-content>. Future research should investigate experiences of care after diagnosis in a more varied sample of participants.<\/jats:p><\/jats:sec>","DOI":"10.1111\/hex.12228","type":"journal-article","created":{"date-parts":[[2014,7,2]],"date-time":"2014-07-02T13:47:46Z","timestamp":1404308866000},"page":"1844-1855","source":"Crossref","is-referenced-by-count":32,"title":["Experiences of <scp>UK<\/scp> health\u2010care services for people with <scp>M<\/scp>ultiple <scp>S<\/scp>clerosis: a systematic narrative review"],"prefix":"10.1111","volume":"18","author":[{"given":"Abigail M.","family":"Methley","sequence":"first","affiliation":[{"name":"University of Manchester Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carolyn","family":"Chew\u2010Graham","sequence":"additional","affiliation":[{"name":"University of Manchester Manchester UK"},{"name":"Keele University Keele UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stephen","family":"Campbell","sequence":"additional","affiliation":[{"name":"University of Manchester Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sudeh","family":"Cheraghi\u2010Sohi","sequence":"additional","affiliation":[{"name":"University of Manchester Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2014,7,2]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00415-007-0602-z"},{"key":"e_1_2_9_3_1","first-page":"162","article-title":"Changes in the sex ratio over time in Multiple Sclerosis","volume":"68","author":"Cutter G","year":"2007","journal-title":"Neurology"},{"key":"e_1_2_9_4_1","volume-title":"McAlpine's Multiple Sclerosis","author":"Compston A","year":"2006"},{"key":"e_1_2_9_5_1","doi-asserted-by":"publisher","DOI":"10.7224\/1537-2073-13.2.65"},{"key":"e_1_2_9_6_1","doi-asserted-by":"publisher","DOI":"10.1191\/026921698668830097"},{"key":"e_1_2_9_7_1","unstructured":"NICE (National Institute for Health and Clinical Excellence).Multiple Sclerosis: National Clinical Guideline for Diagnosis and Management in Primary and Secondary Care NICE clinical guideline 8.National Institute for Clinical Excellence:London 2003."},{"key":"e_1_2_9_8_1","doi-asserted-by":"publisher","DOI":"10.1186\/1472\u2010684X\u20107\u20107"},{"key":"e_1_2_9_9_1","doi-asserted-by":"publisher","DOI":"10.1002\/14651858.CD009131.pub2"},{"key":"e_1_2_9_10_1","doi-asserted-by":"publisher","DOI":"10.1002\/14651858.CD002002"},{"key":"e_1_2_9_11_1","volume-title":"Equity and Excellence: Liberating the NHS","author":"Department of Health","year":"2010"},{"key":"e_1_2_9_12_1","doi-asserted-by":"publisher","DOI":"10.1136\/qhc.11.2.148"},{"key":"e_1_2_9_13_1","volume-title":"Cochrane Handbook for Systematic Reviews of Interventions Version 5.1.0","author":"Noyes J","year":"2011"},{"key":"e_1_2_9_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0022-3476(87)80454-7"},{"key":"e_1_2_9_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1369-7625.2009.00546.x"},{"key":"e_1_2_9_16_1","unstructured":"Solutions for Public Health.Critical Appraisal Skills Program (CASP) Qualitative Appraisal tool. 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