{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,18]],"date-time":"2026-09-18T10:51:13Z","timestamp":1789728673174,"version":"4.0.1"},"reference-count":36,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2017,3,24]],"date-time":"2017-03-24T00:00:00Z","timestamp":1490313600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"name":"Swiss Paraplegic Foundation"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2017,10]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Introduction<\/jats:title><jats:p>Involving patients in decision making is a legal requirement in many countries, associated with better rehabilitation outcomes, but not easily accomplished during initial inpatient rehabilitation after severe trauma. Providing medical treatment according to the principles of shared decision making is challenging as a point in case for persons with spinal cord injury (<jats:styled-content style=\"fixed-case\">SCI<\/jats:styled-content>).<\/jats:p><\/jats:sec><jats:sec><jats:title>Objectives<\/jats:title><jats:p>The aim of this study was to retrospectively explore the patients\u2019 views on their participation in decision making during their first inpatient rehabilitation after onset of <jats:styled-content style=\"fixed-case\">SCI<\/jats:styled-content>, in order to optimize treatment concepts.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>A total of 22 participants with <jats:styled-content style=\"fixed-case\">SCI<\/jats:styled-content> were interviewed in\u2010depth using a semi\u2010structured interview scheme between 6\u00a0months and 35\u00a0years post\u2010onset. Interviews were transcribed verbatim and analysed with the Mayring method for qualitative content analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Participants experienced a substantially reduced ability to participate in decision making during the early phase after <jats:styled-content style=\"fixed-case\">SCI<\/jats:styled-content>. They perceived physical, psychological and environmental factors to have impacted upon this ability. Patients mentioned regaining their ability to make decisions was an important goal during their first rehabilitation. Receiving adequate information in an understandable and personalized way was a prerequisite to achieve this goal. Other important factors included medical and psychological condition, personal engagement, time and dialogue with peers.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>During the initial rehabilitation of patients with <jats:styled-content style=\"fixed-case\">SCI<\/jats:styled-content>, professionals need to deal with the discrepancy between the obligation to respect a patient's autonomy and their diminished ability for decision making.<\/jats:p><\/jats:sec>","DOI":"10.1111\/hex.12559","type":"journal-article","created":{"date-parts":[[2017,3,24]],"date-time":"2017-03-24T15:22:07Z","timestamp":1490368927000},"page":"1133-1142","source":"Crossref","is-referenced-by-count":39,"title":["Patients\u2019 views on their decision making during inpatient rehabilitation after newly acquired spinal cord injury\u2014A qualitative interview\u2010based study"],"prefix":"10.1111","volume":"20","author":[{"given":"Anke","family":"Scheel\u2010Sailer","sequence":"first","affiliation":[{"name":"Swiss Paraplegic Centre  Nottwil Switzerland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marcel W.","family":"Post","sequence":"additional","affiliation":[{"name":"Swiss Paraplegic Research  Nottwil Switzerland"},{"name":"University of Groningen University Medical Center Groningen Department of\u00a0Rehabilitation Medicine  Groningen the\u00a0Netherlands"},{"name":"Center of Excellence in Rehabilitation Medicine Brain Center Rudolf Magnus University Medical Center Utrecht and De Hoogstraat Rehabilitation  Utrecht the Netherlands"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Franz","family":"Michel","sequence":"additional","affiliation":[{"name":"Swiss Paraplegic Centre  Nottwil 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