{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,15]],"date-time":"2026-10-15T21:47:02Z","timestamp":1792100822567,"version":"4.4.0"},"reference-count":53,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2018,11,14]],"date-time":"2018-11-14T00:00:00Z","timestamp":1542153600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100004374","name":"Medtronic","doi-asserted-by":"publisher","award":["ISR\u20102016\u201010773"],"award-info":[{"award-number":["ISR\u20102016\u201010773"]}],"id":[{"id":"10.13039\/100004374","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2019,2]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Barrett's oesophagus (<jats:styled-content style=\"fixed-case\">BO<\/jats:styled-content>), a precursor to oesophageal adenocarcinoma, requires long\u2010term endoscopic surveillance. The rising incidence of this chronic disease has implications for service provision and patient burden. Few studies have explored <jats:styled-content style=\"fixed-case\">BO<\/jats:styled-content> patients\u2019 personal burden, care delivery experience and participation in health\u2010care delivery decisions.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objective<\/jats:title><jats:p>To identify and explore factors impacting <jats:styled-content style=\"fixed-case\">BO<\/jats:styled-content> patients\u2019 health\u2010related quality of life, follow\u2010up needs and views on new models of follow\u2010up care.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design<\/jats:title><jats:p>An exploratory qualitative approach was adopted using semi\u2010structured, in\u2010depth, one\u2010to\u2010one interviews, audio\u2010recorded and transcribed verbatim. Patients undergoing <jats:styled-content style=\"fixed-case\">BO<\/jats:styled-content> surveillance, at a single <jats:styled-content style=\"fixed-case\">NHS<\/jats:styled-content> hospital, were recruited using purposive sampling with the aim of achieving maximum variation. Data were analysed using framework analysis approach, supported by NVivo Pro 11.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Data saturation occurred after 20 participant interviews. Ten subthemes and three main themes emerged from the analysis: (a) burden of disease\u2014symptom control, worry of oesophageal cancer and surveillance endoscopy; (b) follow\u2010up experiences\u2014follow\u2010up care, at this <jats:styled-content style=\"fixed-case\">NHS<\/jats:styled-content> hospital, was found to be inconsistent and often inadequate to meet patients\u2019 needs, in particular a lack of disease\u2010specific information; and (c) follow\u2010up needs\u2014participants sought enhanced communication, organization and structure of care. They highly valued face\u2010to\u2010face interaction with a specialist, and the concept of direct secondary care access in\u2010between endoscopies was reassuring to participants.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>This qualitative research provides an in\u2010depth account of the patients\u2019 perspective of <jats:styled-content style=\"fixed-case\">BO<\/jats:styled-content>, the effectiveness of follow\u2010up care and patient opinion on new follow\u2010up systems.<\/jats:p><\/jats:sec>","DOI":"10.1111\/hex.12817","type":"journal-article","created":{"date-parts":[[2018,11,15]],"date-time":"2018-11-15T07:59:44Z","timestamp":1542268784000},"page":"21-33","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":19,"title":["Barrett's oesophagus: A qualitative study of patient burden, care delivery experience and follow\u2010up needs"],"prefix":"10.1111","volume":"22","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8432-375X","authenticated-orcid":false,"given":"James","family":"Britton","sequence":"first","affiliation":[{"name":"Division of Diabetes, Endocrinology and Gastroenterology School of Medical Sciences Faculty of Biology, Medicine and Health The University of Manchester and Manchester Academic Health Sciences Centre  Manchester UK"},{"name":"Wrightington, Wigan and Leigh NHS Trust  Wigan UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9640-7427","authenticated-orcid":false,"given":"Shaheen","family":"Hamdy","sequence":"additional","affiliation":[{"name":"Division of Diabetes, Endocrinology and Gastroenterology School of Medical Sciences Faculty of Biology, Medicine and Health The University of Manchester and Manchester Academic Health Sciences Centre  Manchester UK"},{"name":"Salford Royal NHS Foundation Trust  Salford UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6158-5135","authenticated-orcid":false,"given":"John","family":"McLaughlin","sequence":"additional","affiliation":[{"name":"Division of Diabetes, Endocrinology and Gastroenterology School of Medical Sciences Faculty of Biology, Medicine and Health The University of Manchester and Manchester Academic Health Sciences Centre  Manchester UK"},{"name":"Salford Royal NHS Foundation Trust  Salford UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6153-8547","authenticated-orcid":false,"given":"Maria","family":"Horne","sequence":"additional","affiliation":[{"name":"Faculty of Medicine and Health Leeds University School of Healthcare University of Leeds  Leeds UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0496-6710","authenticated-orcid":false,"given":"Yeng","family":"Ang","sequence":"additional","affiliation":[{"name":"Division of Diabetes, Endocrinology and Gastroenterology School of Medical Sciences Faculty of Biology, Medicine and Health The University of Manchester and Manchester Academic Health Sciences Centre  Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2018,11,14]]},"reference":[{"key":"e_1_2_9_2_1","doi-asserted-by":"publisher","DOI":"10.3322\/caac.20141"},{"key":"e_1_2_9_3_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1572-0241.2008.02191.x"},{"key":"e_1_2_9_4_1","doi-asserted-by":"publisher","DOI":"10.1158\/1055-9965.EPI-10-0012"},{"key":"e_1_2_9_5_1","unstructured":"Cancer survival in England \u2010 adults diagnosed.https:\/\/www.ons.gov.uk\/peoplepopulationandcommunity\/healthandsocialcare\/conditionsanddiseases\/datasets\/cancersurvivalratescancersurvivalinenglandadultsdiagnosed. 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