{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,25]],"date-time":"2026-04-25T05:15:32Z","timestamp":1777094132694,"version":"3.51.4"},"reference-count":47,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2019,6,28]],"date-time":"2019-06-28T00:00:00Z","timestamp":1561680000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000049","name":"National Institute on Aging","doi-asserted-by":"publisher","award":["1RO1AG040138-01"],"award-info":[{"award-number":["1RO1AG040138-01"]}],"id":[{"id":"10.13039\/100000049","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2019,8]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Context<\/jats:title><jats:p>Engaging underrepresented communities in health research priority setting could make the scientific agenda more equitable and more responsive to their needs.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objective<\/jats:title><jats:p>Evaluate democratic deliberations engaging minority and underserved communities in setting health research priorities.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Participants from underrepresented communities throughout Michigan (47 groups, n\u00a0=\u00a0519) engaged in structured deliberations about health research priorities in professionally facilitated groups. We evaluated some aspects of the structure, process, and outcomes of deliberations, including representation, equality of participation, participants\u2019 views of deliberations, and the impact of group deliberations on individual participants\u2019 knowledge, attitudes, and points of view. Follow\u2010up interviews elicited richer descriptions of these and also explored later effects on deliberators.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Deliberators (age 18\u201088\u00a0years) overrepresented minority groups. Participation in discussions was well distributed. Deliberators improved their knowledge about disparities, but not about health research. Participants, on average, supported using their group's decision to inform decision makers and would trust a process like this to inform funding decisions. Views of deliberations were the strongest predictor of these outcomes. Follow\u2010up interviews revealed deliberators were particularly struck by their experience hearing and understanding other points of view, sometimes surprised at the group's ability to reach agreement, and occasionally activated to volunteer or advocate.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Deliberations using a structured group exercise to engage minority and underserved community members in setting health research priorities met some important criteria for a fair, credible process that could inform policy. Deliberations appeared to change some opinions, improved some knowledge, and were judged by participants worth using to inform policymakers.<\/jats:p><\/jats:sec>","DOI":"10.1111\/hex.12931","type":"journal-article","created":{"date-parts":[[2019,6,28]],"date-time":"2019-06-28T13:42:30Z","timestamp":1561729350000},"page":"772-784","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":18,"title":["Evaluating community deliberations about health research priorities"],"prefix":"10.1111","volume":"22","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0258-9774","authenticated-orcid":false,"given":"Susan Dorr","family":"Goold","sequence":"first","affiliation":[{"name":"Department of Internal Medicine, Division of General Medicine, Institute for Healthcare Policy and Innovation Center for Bioethics and Social Sciences in Medicine Ann Arbor Michigan"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4749-4568","authenticated-orcid":false,"given":"Marion","family":"Danis","sequence":"additional","affiliation":[{"name":"Warren Magnuson Clinical Center National Institutes of Health Bethesda Maryland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2907-2783","authenticated-orcid":false,"given":"Julia","family":"Abelson","sequence":"additional","affiliation":[{"name":"Department of Clinical Epidemiology and Biostatistics McMaster University Hamilton Ontario Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3451-8858","authenticated-orcid":false,"given":"Michelle","family":"Gornick","sequence":"additional","affiliation":[{"name":"Center for Bioethics and Social Sciences in Medicine University of Michigan Ann Arbor Michigan"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lisa","family":"Szymecko","sequence":"additional","affiliation":[{"name":"Center for Bioethics and Social Sciences in Medicine University of Michigan Ann Arbor Michigan"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"C. 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