{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,30]],"date-time":"2026-06-30T19:50:37Z","timestamp":1782849037027,"version":"3.54.5"},"reference-count":31,"publisher":"Wiley","issue":"S1","license":[{"start":{"date-parts":[[2019,12,23]],"date-time":"2019-12-23T00:00:00Z","timestamp":1577059200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2021,5]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>A new diagnosis of complex post\u2010traumatic stress disorder, CPTSD, has been agreed by the World Health Organization, WHO, and evidence is needed for what psychological treatment might be effective, particularly from those with experience of the disorder. We used a novel participatory approach to explore patient views and simultaneously studied the impact on the patient researchers of the research process itself. In this paper, we report on the latter section of the study how the involvement in research of patients with CPTSD affected their mental health. Symptoms of CPTSD may include emotional dysregulation, feelings of self\u2010worthlessness and difficulties in relationships.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objective<\/jats:title><jats:p>The aim of this study section was to explore whether patients\u2019 mental health could be promoted through empowering them to participate in research on CPTSD.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design<\/jats:title><jats:p>The study had a qualitative, participatory design. The clinician who led the research (first author) held group meetings with patient researchers to explore the impact of the research process. The clinician also kept notes on the process in a reflective log.<\/jats:p><\/jats:sec><jats:sec><jats:title>Setting and participants<\/jats:title><jats:p>Six patient researchers participated in research with other patients with lived experience of CPTSD in an NHS outpatient unit in a London hospital.<\/jats:p><\/jats:sec><jats:sec><jats:title>Intervention studied<\/jats:title><jats:p>The research process itself was analysed in group meetings with researchers which the clinician recorded and transcribed.<\/jats:p><\/jats:sec><jats:sec><jats:title>Findings<\/jats:title><jats:p>Participation in research may promote increased self\u2010confidence and social inclusion for those with CPTSD.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Involvement in research may be seen as an empowering intervention because patients felt it contributed to recovery.<\/jats:p><\/jats:sec>","DOI":"10.1111\/hex.13014","type":"journal-article","created":{"date-parts":[[2019,12,23]],"date-time":"2019-12-23T12:00:57Z","timestamp":1577102457000},"page":"62-69","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":10,"title":["Research and recovery: Can patient participation in research promote recovery for people with complex post\u2010traumatic stress disorder, CPTSD<b>?<\/b>"],"prefix":"10.1111","volume":"24","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-3612-9052","authenticated-orcid":false,"given":"Catherine","family":"Matheson","sequence":"first","affiliation":[{"name":"Senior Psychotherapist South London and Maudsley NHS Mental Health Trust London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elizabeth","family":"Weightman","sequence":"additional","affiliation":[{"name":"Department of Psychology University of Exeter Exeter UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2019,12,23]]},"reference":[{"key":"e_1_2_8_2_1","unstructured":"World Health Organization.https:\/\/icd.who.int\/browse11\/l-m\/en#\/http%3a%2f%2fid.who.int%2ficd%2fentity%2f585833559. 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