{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,10]],"date-time":"2026-09-10T17:33:29Z","timestamp":1789061609879,"version":"build-2803163510"},"reference-count":80,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2020,9,1]],"date-time":"2020-09-01T00:00:00Z","timestamp":1598918400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100004440","name":"Wellcome Trust","doi-asserted-by":"publisher","award":["204844\/Z\/16\/Z"],"award-info":[{"award-number":["204844\/Z\/16\/Z"]}],"id":[{"id":"10.13039\/100004440","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2020,12]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>As chronic illnesses, such as rheumatoid arthritis (RA), place an increased burden on health\u2010care systems, the ability of individuals to self\u2010manage these diseases is crucial.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objective<\/jats:title><jats:p>To identify and synthesize the lived experience of self\u2010management described by adults living with RA.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design<\/jats:title><jats:p>A systematic search of five electronic databases (MEDLINE, CINAHL, EMBASE, PsycINFO and ASSIA) was undertaken to identify relevant studies. Data were extracted and quality\u2010assessed using CASP guidelines. A meta\u2010synthesis was conducted based on Thomas and Harden's thematic synthesis approach.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>The search identified 8423 publications. After removing duplicates, 6527 records remained of which 32 studies met the inclusion criteria. Quality of studies was moderate to high, yet a considerable lack of reflection on researcher bias was evident. Our analysis identified 28 dimensions of self\u2010management RA across six domains: (a) cognitive\u2010emotional, (b) behavioural, (c) social, (d) environmental, (e) physical and (f) technological. Cognitive\u2010emotional experiences dominated the analysis. Renegotiating \u2018the self\u2019 (self\u2010concept, self\u2010esteem, self\u2010efficacy) was a key focus of self\u2010management among individuals with RA.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Our findings highlight the focus of \u2018the self\u2019 as a central concern in the self\u2010management of RA. Standardized self\u2010management programmes may primarily focus on disease management and daily functioning. However, we suggest that personal biographies and circumstances should move to the fore of self\u2010management support.<\/jats:p><\/jats:sec><jats:sec><jats:title>Registration<\/jats:title><jats:p>PROSPERO International Prospective Register of Systematic Reviews 2018: CRD42018100450.<\/jats:p><\/jats:sec><jats:sec><jats:title>Patient or Public Contribution<\/jats:title><jats:p>Patient and public involvement was not explicit in this review. However, three authors provided a patient perspective on the self\u2010management of arthritis and autoimmune disease.<\/jats:p><\/jats:sec>","DOI":"10.1111\/hex.13122","type":"journal-article","created":{"date-parts":[[2020,9,1]],"date-time":"2020-09-01T09:55:46Z","timestamp":1598954146000},"page":"1388-1411","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":30,"title":["Renegotiating dimensions of the self: A systematic review and qualitative evidence synthesis of the lived experience of self\u2010managing rheumatoid arthritis"],"prefix":"10.1111","volume":"23","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0352-3232","authenticated-orcid":false,"given":"Susie","family":"Donnelly","sequence":"first","affiliation":[{"name":"Centre for Interdisciplinary Research Education and Innovation in Health Systems (IRIS) School of Nursing, Midwifery and Health Systems University College Dublin Dublin 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