{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,28]],"date-time":"2026-08-28T05:22:39Z","timestamp":1787894559324,"version":"build-2784847793"},"reference-count":40,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2021,6,8]],"date-time":"2021-06-08T00:00:00Z","timestamp":1623110400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100008530","name":"European Regional Development Fund","doi-asserted-by":"publisher","award":["TBI\u2010V\u20101\u2010100\u2010VBW\u2010035, TBI\u20101\u2010103\u2010VBW\u2010035"],"award-info":[{"award-number":["TBI\u2010V\u20101\u2010100\u2010VBW\u2010035, TBI\u20101\u2010103\u2010VBW\u2010035"]}],"id":[{"id":"10.13039\/501100008530","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2021,8]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Public involvement in research to improve data quality and to empower different stakeholders is good scientific practice, but rarely implemented across all research phases.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objective<\/jats:title><jats:p>This article reports on an attempt to involve members of a self\u2010help group for relatives of people living with dementia as co\u2010researchers in the data analysis in a short\u2010term format.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>One researcher identified statements about assistive technologies from 17 interviews with people living with dementia and informal caregivers. Two researchers and six co\u2010researchers independently assigned pre\u2010defined values to these statements. Subsequently, we compared the values of the researchers and co\u2010researchers.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>The members of the self\u2010help group identified four original values not considered by the researchers: consent, inclusion, participation and respect.<\/jats:p><\/jats:sec><jats:sec><jats:title>Discussion<\/jats:title><jats:p>The involvement of co\u2010researchers led to an improvement in the depth of data quality through the joint identification of values concerning assistive technology. Language barriers between researchers, co\u2010researchers and interview participants impeded the data analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>The challenges and benefits of a participatory data analysis shown here can provide a basis for recommendations for target group\u2010specific research involvement. Our recommendations relate to the recruitment of co\u2010researchers, requirements for conducting a participatory data analysis and the participation degree of people involved.<\/jats:p><\/jats:sec><jats:sec><jats:title>Patient or Public Contribution<\/jats:title><jats:p>The group of co\u2010researchers participating in the data analysis consisted of relatives of people living with dementia.<\/jats:p><\/jats:sec>","DOI":"10.1111\/hex.13298","type":"journal-article","created":{"date-parts":[[2021,6,9]],"date-time":"2021-06-09T10:02:05Z","timestamp":1623232925000},"page":"1516-1523","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":12,"title":["Improving the depth of data quality or increasing confusion? Reflections on a data analysis involving members of a self\u2010help group for relatives of people living with dementia"],"prefix":"10.1111","volume":"24","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5684-5609","authenticated-orcid":false,"given":"Antonia","family":"Kowe","sequence":"first","affiliation":[{"name":"Department \u2018Ageing of Individuals and Society\u2019 (AGIS), Interdisciplinary Faculty University of Rostock Rostock Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stefanie","family":"K\u00f6hler","sequence":"additional","affiliation":[{"name":"Rostock University Medical Center &amp; German Center for Neurodegenerative Diseases (DZNE) Site Rostock\/Greiswald Rostock Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stefan","family":"Teipel","sequence":"additional","affiliation":[{"name":"Rostock University Medical Center &amp; German Center for Neurodegenerative Diseases (DZNE) Site Rostock\/Greiswald Rostock Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2021,6,8]]},"reference":[{"key":"e_1_2_10_2_1","unstructured":"INVOLVE.What is public involvement in research?https:\/\/www.invo.org.uk\/find\u2010out\u2010more\/what\u2010is\u2010public\u2010involvement\u2010in\u2010research\u20102\/. 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