{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T00:51:59Z","timestamp":1787014319739,"version":"build-2736575974"},"reference-count":44,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2021,8,17]],"date-time":"2021-08-17T00:00:00Z","timestamp":1629158400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2022,4]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Objectives<\/jats:title>\n                    <jats:p>This study aimed to explore the impact of the coronavirus disease 2019 (COVID\u201019) pandemic on self\u2010care of individuals living with rheumatoid arthritis (RA).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Guided by a constructivist, qualitative design, we conducted one\u2010to\u2010one in\u2010depth telephone interviews between March and October 2020 with participants with RA purposively sampled for maximum variation in age, sex and education, who were participating in one of two ongoing randomized\u2010controlled trials. An inductive, reflexive thematic analysis approach was used.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Twenty\u2010six participants (aged\u00a027\u201373 years; 23 females) in British Columbia, Canada were interviewed. We identified three themes: (1)\n                      <jats:italic>Adapting to maintain self\u2010care<\/jats:italic>\n                      describes how participants took measures to continue self\u2010care activities while preventing virus transmissions. While spending more time at home, some participants reported improved self\u2010care. (2)\n                      <jats:italic>Managing emotions<\/jats:italic>\n                      describes resilience\u2010building strategies such as keeping perspective, positive reframing and avoiding negative thoughts. Participants described both letting go and maintaining a sense of control to accommodate difficulties and emotional responses. (3)\n                      <jats:italic>Changing communication with health professionals<\/jats:italic>\n                      outlined positive experiences of remote consultations with health professionals, particularly if good relationships had been established prepandemic.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>The insights gained may inform clinicians and researchers on ways to support the self\u2010care strategies of individuals with RA and other chronic illnesses during and after the COVID\u201019 pandemic. The findings reveal opportunities to further examine remote consultations to optimize patient engagement and care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patient or Public Contribution<\/jats:title>\n                    <jats:p>This project is jointly designed and conducted with patient partners in British Columbia, Canada. Patient partners across the United Kingdom also played in a key role in providing interpretations of themes during data analysis.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hex.13341","type":"journal-article","created":{"date-parts":[[2021,8,17]],"date-time":"2021-08-17T09:51:20Z","timestamp":1629193880000},"page":"482-498","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":19,"title":["Experiences of self\u2010care during the COVID\u201019 pandemic among individuals with rheumatoid arthritis: A qualitative study"],"prefix":"10.1111","volume":"25","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0460-4317","authenticated-orcid":false,"given":"Jenny","family":"Leese","sequence":"first","affiliation":[{"name":"Department of Physical Therapy University of British Columbia Vancouver British Columbia Canada"},{"name":"Arthritis Research Canada Vancouver British Columbia Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4190-7947","authenticated-orcid":false,"given":"Catherine L.","family":"Backman","sequence":"additional","affiliation":[{"name":"Arthritis Research Canada Vancouver British Columbia Canada"},{"name":"Department of Occupational Science and Occupational Therapy University of British Columbia Vancouver British Columbia Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0193-4820","authenticated-orcid":false,"given":"Jasmin K.","family":"Ma","sequence":"additional","affiliation":[{"name":"Department of Physical Therapy University of British Columbia Vancouver British Columbia Canada"},{"name":"Arthritis Research Canada Vancouver British Columbia Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8952-6292","authenticated-orcid":false,"given":"Cheryl","family":"Koehn","sequence":"additional","affiliation":[{"name":"Arthritis Consumer Experts Vancouver British Columbia Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9533-9079","authenticated-orcid":false,"given":"Alison M.","family":"Hoens","sequence":"additional","affiliation":[{"name":"Department of Physical Therapy University of British Columbia Vancouver British Columbia Canada"},{"name":"Arthritis Research Canada Vancouver British Columbia Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kelly","family":"English","sequence":"additional","affiliation":[{"name":"Arthritis Research Canada Vancouver British Columbia Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eileen","family":"Davidson","sequence":"additional","affiliation":[{"name":"Arthritis Research Canada Vancouver British Columbia Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Shanon","family":"McQuitty","sequence":"additional","affiliation":[{"name":"Arthritis Research Canada Vancouver British Columbia Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0574-0502","authenticated-orcid":false,"given":"James","family":"Gavin","sequence":"additional","affiliation":[{"name":"School of Health Sciences University of Southampton Southampton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1765-7060","authenticated-orcid":false,"given":"Jo","family":"Adams","sequence":"additional","affiliation":[{"name":"School of Health Sciences University of Southampton Southampton UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stephanie","family":"Therrien","sequence":"additional","affiliation":[{"name":"Arthritis Research Canada Vancouver British Columbia Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6280-0511","authenticated-orcid":false,"given":"Linda C.","family":"Li","sequence":"additional","affiliation":[{"name":"Department of Physical Therapy University of British Columbia Vancouver British Columbia Canada"},{"name":"Arthritis Research Canada Vancouver British Columbia Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2021,8,17]]},"reference":[{"issue":"5","key":"e_1_2_10_2_1","first-page":"702","article-title":"Managed care and chronic illness: health services research needs","volume":"32","author":"Wagner EH","year":"1997","journal-title":"Health Serv Res"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1136\/ard.2009.123919"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1136\/ard.2010.146662"},{"key":"e_1_2_10_5_1","unstructured":"World Health Organization.Listings of WHO's response to COVID\u201019; 2020.https:\/\/www.who.int\/news\/item\/29-06-2020-covidtimeline. 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