{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,2,21]],"date-time":"2025-02-21T08:23:58Z","timestamp":1740126238073,"version":"3.37.3"},"reference-count":38,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2021,12,24]],"date-time":"2021-12-24T00:00:00Z","timestamp":1640304000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000272","name":"National Institute for Health Research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000272","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2022,4]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Introduction<\/jats:title><jats:p>In 2020 England moved to an opt\u2010out deceased donation law. We aimed to investigate the views of a mixed stakeholder group comprising people with kidney disease, family members and healthcare practitioners towards the change in legislation. We investigated the expected impacts of the new legislation on deceased\u2010donor and living\u2010donor transplantation, and views on media campaigns regarding the law change.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>We undertook in\u2010depth qualitative interviews with people with kidney disease (<jats:italic>n<\/jats:italic>\u2009=\u200913), their family members\u00a0(<jats:italic>n<\/jats:italic>\u2009=\u20094)\u00a0and healthcare practitioners (<jats:italic>n<\/jats:italic>\u2009=\u200915). Purposive sampling was used to ensure diversity for patients and healthcare practitioners. Family members were recruited through snowball sampling and posters. Interviews were audio\u2010recorded and transcribed verbatim. Transcripts were analysed using thematic analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Three themes with six subthemes were identified: (i) Expectations of impact (Hopeful patients; Cautious healthcare professionals), (ii) Living\u2010donor transplantation (Divergent views; Unchanged clinical recommendations), (iii) Media campaigns (Single message; Highlighting recipient benefits). Patients expected the law change would result in more deceased\u2010donor transplant opportunities.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Clinicians should ensure patients and families are aware of the current evidence regarding the impact of opt\u2010out consent: expectations of an increased likelihood of receiving a deceased\u2010donor transplant are not currently supported by the evidence. This may help to prevent a decline in living\u2010donor transplantation seen in other countries with similar legislation. Media campaigns should include a focus on the impact of organ receipt.<\/jats:p><\/jats:sec><jats:sec><jats:title>Patient or Public Contribution<\/jats:title><jats:p>Two patient representatives from the Kidney Disease Health Integration Team, Primrose Granville and Soumeya Bouacida, contributed to the content and design of the study documents.<\/jats:p><\/jats:sec>","DOI":"10.1111\/hex.13394","type":"journal-article","created":{"date-parts":[[2021,12,24]],"date-time":"2021-12-24T08:02:38Z","timestamp":1640332958000},"page":"607-616","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Expectations of a new opt\u2010out system of consent for deceased organ donation in England: A qualitative interview study"],"prefix":"10.1111","volume":"25","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-2323-1082","authenticated-orcid":false,"given":"Pippa K.","family":"Bailey","sequence":"first","affiliation":[{"name":"Department of Population Health Sciences, Bristol Medical School University of Bristol Bristol UK"},{"name":"Department of Renal Medicine, Southmead Hospital North Bristol NHS Trust Bristol UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hannah","family":"Lyons","sequence":"additional","affiliation":[{"name":"Department of Population Health Sciences, Bristol Medical School University of Bristol Bristol UK"},{"name":"Leeds School of Medicine University of Leeds Leeds UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Fergus J.","family":"Caskey","sequence":"additional","affiliation":[{"name":"Department of Population Health Sciences, Bristol Medical School University of Bristol Bristol UK"},{"name":"Department of Renal Medicine, Southmead Hospital North Bristol NHS Trust Bristol UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Yoav","family":"Ben\u2010Shlomo","sequence":"additional","affiliation":[{"name":"Department of Population Health Sciences, Bristol Medical School University of Bristol Bristol UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mohammed","family":"Al\u2010Talib","sequence":"additional","affiliation":[{"name":"Department of Population Health Sciences, Bristol Medical School University of Bristol Bristol UK"},{"name":"Department of Renal Medicine, Southmead Hospital North Bristol NHS Trust Bristol UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Adarsh","family":"Babu","sequence":"additional","affiliation":[{"name":"Department of Renal Medicine, Gloucestershire Royal Hospital Gloucestershire Hospitals NHS Foundation Trust Gloucester UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lucy E.","family":"Selman","sequence":"additional","affiliation":[{"name":"Department of Population Health Sciences, Bristol Medical School University of Bristol Bristol UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2021,12,24]]},"reference":[{"key":"e_1_2_10_2_1","unstructured":"NHS Blood and Transplant. 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