{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,16]],"date-time":"2026-02-16T17:26:41Z","timestamp":1771262801581,"version":"3.50.1"},"reference-count":47,"publisher":"Wiley","issue":"5","license":[{"start":{"date-parts":[[2022,4,11]],"date-time":"2022-04-11T00:00:00Z","timestamp":1649635200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2022,10]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Introduction<\/jats:title><jats:p>People who experience social disadvantage including homelessness suffer from numerous ill health effects when compared to the general public. Use of patient\u2010reported outcome measures (PROMs) and patient\u2010reported experience measures (PREMs) enables collection of information from the point of view of the person receiving care. Involvement in research and health care decision\u2010making, a process that can be facilitated by the use of PROMs and PREMs, is one way to promote equity in care.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>This article reports on a codevelopment and consultation study investigating the use of PROMs and PREMs with people who experience homelessness and chronic illness. Data were analysed according to interpretative phenomenological analysis.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Committee members with lived experience identified three themes for the role of PROMs and PREMs in health care measurement: trust and relationship\u2010building; health and quality of life; and equity, alongside specific recommendations for the design and administration of PROMs and PREMs. The codevelopment process is reported to demonstrate the meaningful investment in time, infrastructure and relationship\u2010building required for successful partnership between researchers and people with lived experience of homelessness.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>PROMs and PREMs can be meaningful measurement tools for people who experience social disadvantage, but can be alienating or reproduce inequity if they fail to capture complexity or rely on hidden assumptions of key concepts.<\/jats:p><\/jats:sec><jats:sec><jats:title>Patient or Public Contribution<\/jats:title><jats:p>This study was conducted in active partnership between researchers and people with experience of homelessness and chronic illness, including priority setting for study design, data construction, analysis and coauthorship on this article.<\/jats:p><\/jats:sec>","DOI":"10.1111\/hex.13489","type":"journal-article","created":{"date-parts":[[2022,4,12]],"date-time":"2022-04-12T05:05:20Z","timestamp":1649739920000},"page":"2264-2274","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":6,"title":["A codevelopment process to advance methods for the use of patient\u2010reported outcome measures and patient\u2010reported experience measures with people who are homeless and experience chronic illness"],"prefix":"10.1111","volume":"25","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-7343-5465","authenticated-orcid":false,"given":"Erin E.","family":"Donald","sequence":"first","affiliation":[{"name":"Institute on Aging and Lifelong Health University of Victoria Victoria British Columbia Canada"},{"name":"Faculty of Human and Social Development, School of Nursing University of Victoria Victoria British Columbia Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8963-6202","authenticated-orcid":false,"given":"Kara","family":"Whitlock","sequence":"additional","affiliation":[{"name":"Institute on Aging and Lifelong Health University of Victoria Victoria British Columbia Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Tracy","family":"Dansereau","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Daniel J.","family":"Sands","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"David","family":"Small","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2381-4712","authenticated-orcid":false,"given":"Kelli I.","family":"Stajduhar","sequence":"additional","affiliation":[{"name":"Institute on Aging and Lifelong Health University of Victoria Victoria British Columbia Canada"},{"name":"Faculty of Human and Social Development, School of Nursing University of Victoria Victoria British Columbia Canada"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2022,4,11]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2458-13-577"},{"key":"e_1_2_10_3_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12888-019-2361-7"},{"key":"e_1_2_10_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(14)61132-6"},{"key":"e_1_2_10_5_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-019-0396-7"},{"key":"e_1_2_10_6_1","article-title":"Falling through the cracks: how the community\u2010based approach has failed Calgary's chronically homeless","volume":"11","author":"Milaney K","year":"2018","journal-title":"School Public Policy Publ"},{"key":"e_1_2_10_7_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471-2288-14-42"},{"key":"e_1_2_10_8_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12911-016-0399-8"},{"issue":"102690","key":"e_1_2_10_9_1","first-page":"1","article-title":"Problematizing the DSM\u20105 criteria for opioid use disorder: a qualitative analysis","volume":"78","author":"Boyd S","year":"2020","journal-title":"Int J Drug Policy"},{"key":"e_1_2_10_10_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732318797616"},{"key":"e_1_2_10_11_1","doi-asserted-by":"publisher","DOI":"10.29173\/cjfy16579"},{"key":"e_1_2_10_12_1","volume-title":"Aboriginal Homelessness in Canada: a Literature Review","author":"Patrick C","year":"2020"},{"key":"e_1_2_10_13_1","doi-asserted-by":"publisher","DOI":"10.22329\/csw.v8i1.5740"},{"key":"e_1_2_10_14_1","doi-asserted-by":"publisher","DOI":"10.1503\/cmaj.200199"},{"issue":"41","key":"e_1_2_10_15_1","first-page":"1","article-title":"Research 101: a process for developing local guidelines for ethical research in heavily researched communities","volume":"16","author":"Neufeld SD","year":"2019","journal-title":"Harm Reduct J"},{"key":"e_1_2_10_16_1","first-page":"61(3):e23","article-title":"Using patient\u2010 and family\u2010reported outcome and aexperience measures across transitions of care for frail older adults living at home: a meta\u2010narrative synthesis","author":"Schick\u2010Makaroff K","year":"2020","journal-title":"Gerontologist"},{"issue":"2","key":"e_1_2_10_17_1","first-page":"38","article-title":"Choosing your partner for the PROM: a review of evidence on patient\u2010reported outcome measures for use in primary and community care","volume":"10","author":"Bryan S","year":"2014","journal-title":"Healthc Policy"},{"key":"e_1_2_10_18_1","doi-asserted-by":"publisher","DOI":"10.1080\/08870449608400256"},{"key":"e_1_2_10_19_1","doi-asserted-by":"publisher","DOI":"10.4172\/2472-1654.100093"},{"key":"e_1_2_10_20_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjqs-2015-004839"},{"key":"e_1_2_10_21_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2020-038339"},{"key":"e_1_2_10_22_1","doi-asserted-by":"publisher","DOI":"10.1377\/hlthaff.2015.1512"},{"key":"e_1_2_10_23_1","doi-asserted-by":"publisher","DOI":"10.3109\/09638237.2015.1036978"},{"key":"e_1_2_10_24_1","doi-asserted-by":"publisher","DOI":"10.1017\/S1478951520000280"},{"key":"e_1_2_10_25_1","unstructured":"WattsR. Victoria palliative\u2010care team taking it to the streets Times Colonist. Accessed December 10 2020.https:\/\/www.timescolonist.com\/news\/local\/victoria-palliative-care-team-taking-it-to-the-streets-1.23952343"},{"key":"e_1_2_10_26_1","doi-asserted-by":"publisher","DOI":"10.1177\/0269216320917875"},{"key":"e_1_2_10_27_1","doi-asserted-by":"publisher","DOI":"10.1007\/s40271-014-0065-0"},{"key":"e_1_2_10_28_1","unstructured":"BoilevinL ChapmanJ DeaneL et al. Research 101: a Manifesto for Ethical Research in the Downtown Eastside. March\u00a02019.doi:10.14288\/1.0377565"},{"key":"e_1_2_10_29_1","unstructured":"HankivskyO.Intersectionality 101. Institute for Intersectionality Research and Policy Simon Fraser University;\u00a02014."},{"key":"e_1_2_10_30_1","doi-asserted-by":"publisher","DOI":"10.1136\/ebnurs-2018-103017"},{"key":"e_1_2_10_31_1","doi-asserted-by":"publisher","DOI":"10.1097\/00004479-200610000-00007"},{"key":"e_1_2_10_32_1","doi-asserted-by":"publisher","DOI":"10.1017\/S0033291798006667"},{"key":"e_1_2_10_33_1","first-page":"1","volume-title":"Interpretative Phenomenological Analysis","author":"Spiers J","year":"2019"},{"key":"e_1_2_10_34_1","doi-asserted-by":"publisher","DOI":"10.1111\/jan.13093"},{"key":"e_1_2_10_35_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-018-2051-9"},{"key":"e_1_2_10_36_1","doi-asserted-by":"publisher","DOI":"10.1071\/HC14129"},{"key":"e_1_2_10_37_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11205-013-0302-2"},{"key":"e_1_2_10_38_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.g2225"},{"key":"e_1_2_10_39_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11606-014-3111-7"},{"key":"e_1_2_10_40_1","doi-asserted-by":"publisher","DOI":"10.1111\/nin.12237"},{"key":"e_1_2_10_41_1","doi-asserted-by":"publisher","DOI":"10.1080\/09581596.2013.820256"},{"key":"e_1_2_10_42_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11205-012-9998-7"},{"key":"e_1_2_10_43_1","unstructured":"HubleyA RussellL GadermannA PalepuA.Quality of Life for Homeless and Hard\u2010to\u2010House Individuals (QOLHHI) Inventory: Administration and Scoring Manual.\u00a02009."},{"key":"e_1_2_10_44_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.socscimed.2017.01.027"},{"key":"e_1_2_10_45_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.12442"},{"key":"e_1_2_10_46_1","doi-asserted-by":"publisher","DOI":"10.1080\/15575330.2020.1777178"},{"key":"e_1_2_10_47_1","unstructured":"DonaldEE WhitlockK SandsDJ StajduharKI. Towards equity\u2010informed care: a co\u2010development process for meaningful patient\u2010reported evaluation of care for persons experiencing structural vulnerability and chronic illness. Presented at: Putting Patients First Conference 2020. Accessed December 10 2020.\u00a0https:\/\/my.visme.co\/view\/4d86k3d9-ppf20"},{"issue":"38","key":"e_1_2_10_48_1","first-page":"1","article-title":"Guidance on authorship with and acknowledgement of patient partners in patient\u2010oriented research","volume":"6","author":"Richards DP","year":"2020","journal-title":"Res Involv Engagem"}],"container-title":["Health Expectations"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/hex.13489","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/hex.13489","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/hex.13489","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,8,22]],"date-time":"2023-08-22T01:32:01Z","timestamp":1692667921000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/hex.13489"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,4,11]]},"references-count":47,"journal-issue":{"issue":"5","published-print":{"date-parts":[[2022,10]]}},"alternative-id":["10.1111\/hex.13489"],"URL":"https:\/\/doi.org\/10.1111\/hex.13489","archive":["Portico"],"relation":{},"ISSN":["1369-6513","1369-7625"],"issn-type":[{"value":"1369-6513","type":"print"},{"value":"1369-7625","type":"electronic"}],"subject":[],"published":{"date-parts":[[2022,4,11]]},"assertion":[{"value":"2021-06-03","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-03-15","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2022-04-11","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}