{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,27]],"date-time":"2026-08-27T23:53:58Z","timestamp":1787874838276,"version":"build-2784847793"},"reference-count":47,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2022,6,30]],"date-time":"2022-06-30T00:00:00Z","timestamp":1656547200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000291","name":"Kidney Research UK","doi-asserted-by":"publisher","award":["AHPF_001_20160727"],"award-info":[{"award-number":["AHPF_001_20160727"]}],"id":[{"id":"10.13039\/501100000291","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2022,8]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Introduction<\/jats:title><jats:p>The responsibility for managing a long\u2010term condition (LTC) such as chronic kidney disease (CKD) typically transfers from parent to child, as children become older. However, children can find it challenging to become independent at managing their LTC, and evidence for how healthcare professionals (HCPs) support transfer of responsibility is limited. This study aimed to explore how young people with CKD assume responsibility for managing their condition and the HCP's role during this process.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Sampling, qualitative data collection and analysis were guided by a constructivist grounded theory approach. Individual and dyadic interviews, and focus groups, were conducted with 16 young people aged 13\u201317 years with CKD, 13 parents and 20 HCPs.<\/jats:p><\/jats:sec><jats:sec><jats:title>Findings<\/jats:title><jats:p>A grounded theory,<jats:italic>shifting responsibilities<\/jats:italic>, was developed that provides new insights into how young people's, parents' and HCPs' constructions of the transfer of responsibility differed. These diverse constructions contributed to multiple uncertainties around the role of HCPs, when the process started and was completed and whether the endpoint of the process was young people's self\u2010management or young person\u2013parent shared management.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>Families would benefit from HCP support over a longer timeframe that integrates assuming self\u2010management responsibility with gaining independence in other areas of their lives and focuses on young people \u2018doing\u2019 self\u2010management.<\/jats:p><\/jats:sec><jats:sec><jats:title>Patient or Public Contribution<\/jats:title><jats:p>Patient and public involvement was integrated throughout the study, with young adults with CKD and parents who had a child with CKD actively involved in the study's design and delivery.<\/jats:p><\/jats:sec>","DOI":"10.1111\/hex.13549","type":"journal-article","created":{"date-parts":[[2022,6,30]],"date-time":"2022-06-30T09:10:43Z","timestamp":1656580243000},"page":"1919-1929","update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":7,"title":["Shifting responsibilities: A qualitative study of how young people assume responsibility from their parents for self\u2010management of their chronic kidney disease"],"prefix":"10.1111","volume":"25","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8454-494X","authenticated-orcid":false,"given":"Ruth","family":"Nightingale","sequence":"first","affiliation":[{"name":"Centre for Outcomes and Experience Research in Children's Health, Illness and Disability (ORCHID) Great Ormond Street Hospital for Children NHS Foundation Trust London UK"},{"name":"School of Healthcare, Faculty of Medicine and Health University of Leeds Leeds UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5766-5885","authenticated-orcid":false,"given":"Gretl A.","family":"McHugh","sequence":"additional","affiliation":[{"name":"School of Healthcare, Faculty of Medicine and Health University of Leeds Leeds UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-8504-4704","authenticated-orcid":false,"given":"Veronica","family":"Swallow","sequence":"additional","affiliation":[{"name":"Department of Nursing and Midwifery Sheffield Hallam University Sheffield UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1485-8804","authenticated-orcid":false,"given":"Sue","family":"Kirk","sequence":"additional","affiliation":[{"name":"Division of Nursing, Midwifery and Social Work, School of Health Sciences University of Manchester Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2022,6,30]]},"reference":[{"key":"e_1_2_10_2_1","doi-asserted-by":"publisher","DOI":"10.1002\/nur.21725"},{"key":"e_1_2_10_3_1","unstructured":"NHS England. 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