{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,7]],"date-time":"2026-04-07T11:58:42Z","timestamp":1775563122981,"version":"3.50.1"},"reference-count":42,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2023,12,7]],"date-time":"2023-12-07T00:00:00Z","timestamp":1701907200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2024,2]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Fibromyalgia is a chronic pain condition which has recently been linked with eating, drinking and swallowing difficulties (dysphagia). However, to date, sample sizes within completed research are small and study designs heterogeneous, and therefore, little is known about the lived experiences of dysphagia among people with fibromyalgia. To go some way towards addressing this gap in the literature, this study collected and analysed the first\u2010hand experiences of the physical symptoms, the psychosocial impacts and environmental factors that influenced the lived experience of a sample of people living with fibromyalgia\u2010associated dysphagia.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Qualitative semi\u2010structured interviews were conducted with adults with dysphagia and fibromyalgia. Reflexive thematic analysis was employed and themes were identified regarding the reported experience and impact of swallowing problems. The same researcher conducted the interviews and extracted all data, and a second researcher analysed a random sample of 5% of the data for accuracy, with no disagreements arising between the two researchers.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>All participants (<jats:italic>n<\/jats:italic>\u2009=\u20098) reported the negative psychosocial impact of their dysphagia. Participants reported managing their dysphagia independently, primarily using compensatory strategies. Participants discussed feeling unsupported in healthcare interactions due to clinicians not understanding the occurrence, nature or impact of eating, drinking and swallowing difficulties. Participants also reported that they did not have access to evidence\u2010based management strategies that adequately addressed their fibromyalgia\u2010related swallowing problems.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Despite minimal previous research in this area, findings here highlight the impact that dysphagia has on people with fibromyalgia. A broad range of physical symptoms were reported to have negative consequences across both social and emotional domains. The reported symptoms often required complex coping strategies and sometimes impeded participants from seeking suitable medical intervention from healthcare providers. There are both broad\u2010ranging implications of fibromyalgia\u2010associated dysphagia and reported poor perceptions of medical interactions for this cohort of patients. Therefore, there is evidently a need for clinical research into the management of this condition to develop patient\u2010centred care delivery options and to equip healthcare professionals with the knowledge and skills necessary to provide efficacious management to this group.<\/jats:p><\/jats:sec><jats:sec><jats:title>Patient or Public Contribution<\/jats:title><jats:p>Before initiation of the qualitative interviews, the interview schedule was piloted with an individual living with fibromyalgia and dysphagia, with feedback provided on the appropriate wording and format of semi\u2010structured questioning.<\/jats:p><\/jats:sec>","DOI":"10.1111\/hex.13932","type":"journal-article","created":{"date-parts":[[2023,12,8]],"date-time":"2023-12-08T01:53:39Z","timestamp":1702000419000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":5,"title":["The lived experiences of oropharyngeal dysphagia in adults living with fibromyalgia"],"prefix":"10.1111","volume":"27","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-0041-783X","authenticated-orcid":false,"given":"\u00d3rla","family":"Gilheaney","sequence":"first","affiliation":[{"name":"Department of Clinical Speech and Language Studies Trinity College Dublin Dublin Ireland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Joeann","family":"Hussey","sequence":"additional","affiliation":[{"name":"School of Linguistic, Speech, and Communication Sciences Trinity College Dublin Dublin Ireland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5863-0556","authenticated-orcid":false,"given":"Kathleen","family":"McTiernan","sequence":"additional","affiliation":[{"name":"School of Linguistic, Speech, and Communication Sciences Trinity College Dublin Dublin Ireland"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2023,12,7]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.cps.2019.12.007"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1001\/jama.2014.3266"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/S1521-6942(03)00035-4"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.berh.2007.03.003"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.3109\/07853899708998739"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1002\/art.1780380104"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1038\/s41584-020-00506-w"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.1038\/nrdp.2015.22"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00455-017-9844-9"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1111\/nmo.13100"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00455-017-9855-6"},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.1093\/ageing\/afs006"},{"key":"e_1_2_11_14_1","doi-asserted-by":"publisher","DOI":"10.1007\/s00455-014-9548-3"},{"key":"e_1_2_11_15_1","doi-asserted-by":"publisher","DOI":"10.1080\/09638288.2019.1630487"},{"key":"e_1_2_11_16_1","doi-asserted-by":"publisher","DOI":"10.1002\/acr.20140"},{"key":"e_1_2_11_17_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpain.2018.10.008"},{"key":"e_1_2_11_18_1","doi-asserted-by":"publisher","DOI":"10.1097\/MD.0000000000001163"},{"issue":"8","key":"e_1_2_11_19_1","first-page":"1841","article-title":"Oral symptoms associated with fibromyalgia syndrome","volume":"30","author":"Rhodus NL","year":"2003","journal-title":"J Rheumatol"},{"key":"e_1_2_11_20_1","doi-asserted-by":"publisher","DOI":"10.5177\/ntvt.2016.03.15240"},{"issue":"3","key":"e_1_2_11_21_1","first-page":"1","article-title":"The prevalence and nature of eating and swallowing problems in adults with fibromyalgia: a systematic review","volume":"38","author":"Gilheaney \u00d3","year":"2023","journal-title":"Dysphagia"},{"key":"e_1_2_11_22_1","unstructured":"GaviganR Gilheaney\u00d3. A qualitative investigation of the first\u2010hand experience of dysphagia associated with fibromyalgia: an examination of online blogs. 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