{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,19]],"date-time":"2026-08-19T20:07:11Z","timestamp":1787170031943,"version":"build-2736575974"},"reference-count":45,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2024,5,11]],"date-time":"2024-05-11T00:00:00Z","timestamp":1715385600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100002203","name":"Brain Tumour Charity","doi-asserted-by":"publisher","award":["GN\u2010000435"],"award-info":[{"award-number":["GN\u2010000435"]}],"id":[{"id":"10.13039\/501100002203","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2024,6]]},"abstract":"<jats:title>Abstract<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Supported self\u2010management can improve clinical and psychosocial outcomes in people with cancer; the considerations required to implement self\u2010management support (SMS) for people living with a lower\u2010grade glioma (LGG)\u2014who often have complex support needs\u2014are not known. We aimed to identify and understand these implementation considerations through the lens of normalisation process theory (NPT), from the perspectives of healthcare professionals (HCP) and people with LGG.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      We conducted semistructured interviews with HCPs who support adults with brain tumours (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200925; 12 different healthcare professions), and people with LGG who had completed primary treatment (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200928; male\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200916, mean age 54.6 years, mean time since diagnosis 8.7 years), from across the United Kingdom. Interviews were transcribed and inductive open coding conducted, before deductively mapping to constructs of NPT. We first mapped HCP data, then integrated data from people with LGG to explore alignment in experiences and perspectives.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>We generated supporting evidence for all four NPT constructs and related subconstructs, namely: \u2018Coherence\u2019, \u2018Cognitive participation\u2019, \u2018Collective action\u2019\u00a0and \u2018Reflexive monitoring\u2019. Data from HCPs and people with LGG clearly demonstrated that effective SMS constitutes a collective activity. Key implementation considerations included: ensuring awareness of, and access to, support; building strong HCP\u2010support recipient relationships; and careful inclusion of close family and friends. We identified pertinent challenges, such as identifying support needs (influenced by the extent to which those with LGG engage in help\u2010seeking), resistance to support (e.g., technology literacy), training for HCPs\u00a0and HCP cooperation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>This study demonstrates the collective nature of, and provides insight into the individual roles within, supported self\u2010management. We outline considerations to operationalise, sustain\u00a0and appraise the implementation of SMS for people with LGG.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patient or Public Contribution<\/jats:title>\n                    <jats:p>People with brain tumours, and informal caregivers, were involved in the development of information materials and topic guides to ensure accessibility and pertinence. They also had opportunities to comment on interview findings.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hex.14073","type":"journal-article","created":{"date-parts":[[2024,5,11]],"date-time":"2024-05-11T05:54:13Z","timestamp":1715406853000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":3,"title":["Understanding supported self\u2010management for people living with a lower\u2010grade glioma: Implementation considerations through the lens of normalisation process theory"],"prefix":"10.1111","volume":"27","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4110-0588","authenticated-orcid":false,"given":"Ben","family":"Rimmer","sequence":"first","affiliation":[{"name":"Population Health Sciences Institute, Newcastle University Centre for Cancer Newcastle University Newcastle upon Tyne UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tracy","family":"Finch","sequence":"additional","affiliation":[{"name":"Department of Nursing, Midwifery and Health Northumbria University Newcastle upon Tyne UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michelle","family":"Balla","sequence":"additional","affiliation":[{"name":"Faculty of Medical Sciences Newcastle University Newcastle upon Tyne UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lizzie","family":"Dutton","sequence":"additional","affiliation":[{"name":"Population Health Sciences Institute, Newcastle University Centre for Cancer Newcastle University Newcastle upon Tyne UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sophie","family":"Williams","sequence":"additional","affiliation":[{"name":"Newcastle upon Tyne Hospitals NHS Foundation Trust Newcastle upon Tyne UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joanne","family":"Lewis","sequence":"additional","affiliation":[{"name":"Newcastle upon Tyne Hospitals NHS Foundation Trust Newcastle upon Tyne UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pamela","family":"Gallagher","sequence":"additional","affiliation":[{"name":"School of Psychology Dublin City University Dublin Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rich\u00e9al","family":"Burns","sequence":"additional","affiliation":[{"name":"Faculty of Science Atlantic Technological University Sligo Ireland"},{"name":"Health and Biomedical Strategic Research Centre Atlantic Technological University Sligo Ireland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vera","family":"Ara\u00fajo\u2010Soares","sequence":"additional","affiliation":[{"name":"Population Health Sciences Institute, Newcastle University Centre for Cancer Newcastle University Newcastle upon Tyne UK"},{"name":"Department for Prevention of Cardiovascular and Metabolic Disease, Centre for Preventive Medicine and Digital Health, Medical Faculty Mannheim Heidelberg University Heidelberg Germany"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Fiona","family":"Menger","sequence":"additional","affiliation":[{"name":"School of Education, Communication and Language Sciences Newcastle University Newcastle upon Tyne UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Linda","family":"Sharp","sequence":"additional","affiliation":[{"name":"Population Health Sciences Institute, Newcastle University Centre for Cancer Newcastle University Newcastle upon Tyne UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"name":"Ways Ahead study team","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,5,11]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ejon.2007.08.002"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.3390\/cancers16010014"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1111\/jnu.12774"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.12346"},{"key":"e_1_2_11_6_1","unstructured":"deSilvaD.Helping People Help Themselves: A Review of the Evidence Considering Whether It Is Worthwhile to Support Self\u2010Management. 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