{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,21]],"date-time":"2026-07-21T06:12:36Z","timestamp":1784614356648,"version":"3.55.0"},"reference-count":56,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2024,5,24]],"date-time":"2024-05-24T00:00:00Z","timestamp":1716508800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2024,6]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Introduction<\/jats:title><jats:p>Many Covid\u201019 survivors are living with unresolved, relapsing\u00a0and remitting symptoms and no \u2018one size\u2019 of treatment is likely to be effective for everyone. Supported self\u2010management for the varied symptoms of Long Covid (LC) is recommended by the National Institute for Health and Care Excellence in the United Kingdom. We aimed to develop a new personalised support intervention for people living with LC using a structured co\u2010design framework to guide replication and evaluation.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>We used the improvement methodology, Experience\u2010Based Co\u2010Design, in an accelerated form to harness the collective experiences of people with LC. Incorporating evidence from \u2018Bridges Self\u2010Management\u2019 (Bridges) an approach in which healthcare professionals (HCPs)are trained to support knowledge, confidence and skills of individuals living with long term conditions. Co\u2010designed resources are also central to Bridges. Adults who self\u2010identified as living with or recovered from LC, from England or Wales, aged 18 years and over were recruited, and HCPs, with experience of supporting people with LC. Participants took part in a series of small co\u2010design group meetings and larger mixed meetings to agree priorities, core principles and generate resources and intervention content.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>People with LC (<jats:italic>n<\/jats:italic>\u2009=\u200928), and HCPs (<jats:italic>n<\/jats:italic>\u2009=\u20099) supported co\u2010design of a book (hard\u2010copy and digital form) to be used in 1:1 support sessions with a trained HCP. Co\u2010design stages prioritised stories about physical symptoms first, and psychological and social challenges which followed, nonlinear journeys and reconceptualising stability as progress, rich descriptions of strategies\u00a0and links to reputable advice and support for navigating healthcare services. Co\u2010design enabled formulation of eight core intervention principles which underpinned the training and language used by HCPs and fidelity assessments.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>We have developed a new personalised support intervention, with core principles to be used in one\u2010to\u2010one sessions delivered by trained HCPs, with a new co\u2010designed book as a prompt to build personalised strategies and plans using narratives, ideas, and solutions from other people with LC. Effectiveness and cost effectiveness of the \u2018LISTEN\u2019 intervention will be evaluated in a randomised controlled trial set within the context of the updated Framework for Developing and Evaluating Complex Interventions.<\/jats:p><\/jats:sec><jats:sec><jats:title>Patient and Public Contribution<\/jats:title><jats:p>The LISTEN Public and Patient Involvement (PPI) group comprised seven people living with LC. They all contributed to the design of this study and five members were part of a larger co\u2010design community described in this paper. They have contributed to this paper by interpreting stages of intervention design and analysis of results. Three members of our PPI group are co\u2010authors of this paper.<\/jats:p><\/jats:sec>","DOI":"10.1111\/hex.14093","type":"journal-article","created":{"date-parts":[[2024,5,24]],"date-time":"2024-05-24T03:14:15Z","timestamp":1716520455000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":8,"title":["Using co\u2010design methods to develop new personalised support for people living with Long Covid: The \u2018LISTEN\u2019 intervention"],"prefix":"10.1111","volume":"27","author":[{"given":"Fiona","family":"Jones","sequence":"first","affiliation":[{"name":"Population Health Research Institute St George's University of London  London UK"},{"name":"Bridges Self\u2010Management  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anne","family":"Domeny","sequence":"additional","affiliation":[{"name":"Bridges Self\u2010Management  London UK"},{"name":"LISTEN Lived Experience Advisory Group  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jessica","family":"Fish","sequence":"additional","affiliation":[{"name":"Department of Clinical Neuropsychology and Clinical Health Psychology St George's University Hospitals NHS Foundation Trust  London UK"},{"name":"Mental Health and Wellbeing, School of Health and Wellbeing University of Glasgow  Glasgow UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Fiona","family":"Leggat","sequence":"additional","affiliation":[{"name":"Population Health Research Institute St George's University of London  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ian","family":"Patel","sequence":"additional","affiliation":[{"name":"LISTEN Lived Experience Advisory Group  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jackie","family":"McRae","sequence":"additional","affiliation":[{"name":"Centre for Allied Health, Institute for Medical, Biomedical and Allied Education St George's University of London  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carol","family":"Rowe","sequence":"additional","affiliation":[{"name":"LISTEN Lived Experience Advisory Group  London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Monica E.","family":"Busse","sequence":"additional","affiliation":[{"name":"Centre For Trials Research, School of Medicine Cardiff University  Cardiff Wales UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,5,24]]},"reference":[{"key":"e_1_2_11_2_1","unstructured":"National Institute for Health and Care Excellence (NICE).COVID\u201019 Rapid Guideline: Managing the Long\u2010Term Effects of COVID\u201019. 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