{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,23]],"date-time":"2026-08-23T14:42:10Z","timestamp":1787496130504,"version":"build-2736575974"},"reference-count":46,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2024,7,4]],"date-time":"2024-07-04T00:00:00Z","timestamp":1720051200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000901","name":"Juvenile Diabetes Research Foundation International","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000901","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2024,8]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Young adults with type 1 diabetes (T1D) face complex health challenges, including a heightened risk for distress. To counter this distress, there is a need to develop accessible, acceptable comprehensive care solutions that integrate diabetes and mental health care to enhance self\u2010efficacy and counter mental health challenges in this population.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To describe the engagement of individuals with lived experience of T1D and mental health challenges in the development of a recruitment strategy to support the co\u2010design of an innovative integrated care programme.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>\n                      Seven individuals with lived experience formed a Partner Advisory Council (PAC) to recruit young adults (18\u201329 years old) living with T1D, their friends or family and health researchers and professionals in co\u2010design interviews (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200919) and co\u2010design events (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200912). The PAC played a key role in developing a comprehensive recruitment strategy, overcoming traditional barriers and stigmas in the design of an integrated model of care.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Assuming the presence of mental health challenges in young adults living with T1D during recruitment had far\u2010reaching impacts on the development of a whole\u2010person and integrated diabetes and mental health care solution. The efficient recruitment of this sample provided invaluable insights into the nuanced challenges experienced by young adults with T1D, the individual skills developed in response to their mental health challenges and the ways that this understanding can shape future programming to support mental health, quality of life and well\u2010being. The ongoing involvement of the PAC as co\u2010researchers underscores the enduring impact of patient engagement in developing integrated care solutions.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patient or Public Contribution<\/jats:title>\n                    <jats:p>The co\u2010design of the TECC\u2010T1D3 model was enriched by the invaluable contributions of individuals with lived experience. This included the engagement of a diverse PAC in the recruitment of participants in co\u2010design interviews and co\u2010design events. PAC members actively participated in research decision\u2010making with their insights informing a robust recruitment strategy. Beyond recruitment, PAC members continue to serve as co\u2010researchers, shaping ongoing research and actively contributing to the TECC\u2010T1D3 project. Six PAC members are co\u2010authors on this manuscript.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hex.14131","type":"journal-article","created":{"date-parts":[[2024,7,5]],"date-time":"2024-07-05T01:45:42Z","timestamp":1720143942000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":9,"title":["Partnered Recruitment: Engaging Individuals With Lived Experience in the Recruitment of Co\u2010Design Participants"],"prefix":"10.1111","volume":"27","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3974-4854","authenticated-orcid":false,"given":"Carly","family":"Whitmore","sequence":"first","affiliation":[{"name":"School of Nursing McMaster University Hamilton Ontario Canada"},{"name":"INTREPID Lab Centre for Addiction and Mental Health Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Linxi","family":"Mytkolli","sequence":"additional","affiliation":[{"name":"Diabetes Action Canada Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Natalie","family":"Mangialardi","sequence":"additional","affiliation":[{"name":"INTREPID Lab Centre for Addiction and Mental Health Toronto Ontario Canada"},{"name":"Diabetes Action Canada Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jasmine","family":"Maghera","sequence":"additional","affiliation":[{"name":"Diabetes Action Canada Toronto Ontario Canada"},{"name":"Department of Pharmacology University of Alberta Edmonton Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Adam","family":"Rudick","sequence":"additional","affiliation":[{"name":"Diabetes Action Canada Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kitty","family":"Shephard","sequence":"additional","affiliation":[{"name":"Diabetes Action Canada Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Stephanie","family":"Zazzera","sequence":"additional","affiliation":[{"name":"Diabetes Action Canada Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anika","family":"Saiva","sequence":"additional","affiliation":[{"name":"INTREPID Lab Centre for Addiction and Mental Health Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tracy","family":"McQuire","sequence":"additional","affiliation":[{"name":"Diabetes Action Canada Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1033-8673","authenticated-orcid":false,"given":"Peter","family":"Senior","sequence":"additional","affiliation":[{"name":"Faculty of Medicine &amp; Dentistry University of Alberta, Edmonton Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-4423-3848","authenticated-orcid":false,"given":"Diana","family":"Sherifali","sequence":"additional","affiliation":[{"name":"School of Nursing McMaster University Hamilton Ontario Canada"},{"name":"INTREPID Lab Centre for Addiction and Mental Health Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5401-2996","authenticated-orcid":false,"given":"Peter","family":"Selby","sequence":"additional","affiliation":[{"name":"INTREPID Lab Centre for Addiction and Mental Health Toronto Ontario Canada"},{"name":"Department of Family and Community Medicine University of Toronto Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2024,7,4]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jcjd.2023.04.009"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11892-015-0694-2"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1007\/s12160-011-9262-4"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1177\/0009922812459950"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.2337\/dc14-2646"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.psym.2015.11.001"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1464-5491.2012.03721.x"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.2174\/1573399811666150421114957"},{"key":"e_1_2_11_10_1","doi-asserted-by":"publisher","DOI":"10.1093\/fampra\/cmp037"},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1097\/PHM.0b013e318168d092"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.1177\/1049732319833361"},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.3928\/15394492-20110906-03"},{"key":"e_1_2_11_14_1","doi-asserted-by":"publisher","DOI":"10.2196\/12793"},{"key":"e_1_2_11_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jad.2014.10.005"},{"issue":"3","key":"e_1_2_11_16_1","first-page":"51","article-title":"Using Incentives: Encouraging and Recognising Participation in Youth Research","volume":"31","author":"Seymour K.","year":"2012","journal-title":"Youth Studies Australia"},{"key":"e_1_2_11_17_1","doi-asserted-by":"publisher","DOI":"10.1136\/qshc.2005.016527"},{"key":"e_1_2_11_18_1","doi-asserted-by":"publisher","DOI":"10.2752\/175630615X14212498964312"},{"key":"e_1_2_11_19_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0206588"},{"key":"e_1_2_11_20_1","doi-asserted-by":"publisher","DOI":"10.1007\/s40271-023-00630-1"},{"key":"e_1_2_11_21_1","doi-asserted-by":"publisher","DOI":"10.1071\/AH11008"},{"key":"e_1_2_11_22_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13063-016-1560-5"},{"key":"e_1_2_11_23_1","doi-asserted-by":"publisher","DOI":"10.1080\/08870446.2022.2060507"},{"key":"e_1_2_11_24_1","doi-asserted-by":"publisher","DOI":"10.5334\/ijic.886"},{"key":"e_1_2_11_25_1","doi-asserted-by":"publisher","DOI":"10.1111\/eip.13018"},{"key":"e_1_2_11_26_1","doi-asserted-by":"publisher","DOI":"10.1111\/eip.13266"},{"key":"e_1_2_11_27_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.13909"},{"key":"e_1_2_11_28_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40900-019-0139-1"},{"key":"e_1_2_11_29_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.12888"},{"key":"e_1_2_11_30_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12961-018-0282-4"},{"key":"e_1_2_11_31_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40900-021-00252-7"},{"key":"e_1_2_11_32_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.13040"},{"key":"e_1_2_11_33_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13012-018-0784-z"},{"key":"e_1_2_11_34_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.13343"},{"key":"e_1_2_11_35_1","unstructured":"\u201cStrategy for Patient\u2010Oriented Research \u201d Canadian Institutes of Health Research 2022 https:\/\/cihr-irsc.gc.ca\/e\/41204.html."},{"issue":"1","key":"e_1_2_11_36_1","first-page":"8","article-title":"Liberating Structures: A New Pattern Language for Engagement","volume":"23","author":"Kimball L.","year":"2011","journal-title":"Systems Thinker"},{"key":"e_1_2_11_37_1","doi-asserted-by":"publisher","DOI":"10.2337\/diacare.28.3.626"},{"key":"e_1_2_11_38_1","doi-asserted-by":"publisher","DOI":"10.2337\/dc11-1572"},{"key":"e_1_2_11_39_1","doi-asserted-by":"publisher","DOI":"10.1016\/S2213-8587(14)70248-7"},{"key":"e_1_2_11_40_1","doi-asserted-by":"publisher","DOI":"10.1007\/s12020-018-1549-9"},{"key":"e_1_2_11_41_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jdiacomp.2016.08.013"},{"key":"e_1_2_11_42_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jdiacomp.2015.09.012"},{"key":"e_1_2_11_43_1","doi-asserted-by":"publisher","DOI":"10.1177\/1557988319857009"},{"key":"e_1_2_11_44_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jdiacomp.2015.01.012"},{"key":"e_1_2_11_45_1","doi-asserted-by":"publisher","DOI":"10.1108\/JICA-07-2018-0053"},{"key":"e_1_2_11_46_1","doi-asserted-by":"publisher","DOI":"10.5334\/ijic.5520"},{"key":"e_1_2_11_47_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjment-2023-300921"}],"container-title":["Health Expectations"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/hex.14131","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2024,8,29]],"date-time":"2024-08-29T09:08:14Z","timestamp":1724922494000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/hex.14131"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,7,4]]},"references-count":46,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2024,8]]}},"alternative-id":["10.1111\/hex.14131"],"URL":"https:\/\/doi.org\/10.1111\/hex.14131","archive":["Portico"],"relation":{},"ISSN":["1369-6513","1369-7625"],"issn-type":[{"value":"1369-6513","type":"print"},{"value":"1369-7625","type":"electronic"}],"subject":[],"published":{"date-parts":[[2024,7,4]]},"assertion":[{"value":"2024-01-31","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2024-06-19","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2024-07-04","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e14131"}}