{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,22]],"date-time":"2026-07-22T05:36:02Z","timestamp":1784698562618,"version":"3.55.0"},"reference-count":40,"publisher":"Wiley","issue":"6","license":[{"start":{"date-parts":[[2024,11,15]],"date-time":"2024-11-15T00:00:00Z","timestamp":1731628800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100007602","name":"Programme Grants for Applied Research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100007602","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2024,12]]},"abstract":"<jats:title>ABSTRACT<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>Parkinson's disease is a complex progressive neurodegenerative disease increasing globally. Self\u2010management interventions have shown promise in improving the quality of life for people with chronic conditions. This paper aims to describe the development processes and the core components of a facilitated self\u2010management toolkit to support people with Parkinson's disease to self\u2010manage their condition.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>An iterative co\u2010design approach was adopted and included the use of systematic reviews, qualitative methods and theory to develop the Live Well with Parkinson's toolkit. A co\u2010design group was established consisting of people with Parkinson's, family carers and health and social care experts to produce and refine an online self\u2010management toolkit to be tested in practice. Five co\u2010design groups were conducted alongside several phases of toolkit development.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>An online self\u2010management toolkit, called Live Well with Parkinson's, was developed with core aspects such as tailored information to the individual, a well\u2010being section using an asset\u2010based approach and problem\u2010solving skills to create and maintain goals, symptom review and management sections and a tracker of medication, symptoms and activities\/actions. A paper\u2010based alternative version was also created for those who cannot use an online resource. The toolkit is fully manualised and facilitated by six sessions from a \u2018supporter\u2019 who is trained in behaviour change techniques. It can be shared with carers and healthcare professionals.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusion<\/jats:title><jats:p>The toolkit is a robust and comprehensive approach to self\u2010management of Parkinson's disease. It is evidenced based, incorporates theory and was developed with people with Parkinson's and experts in the area. The Live Well with Parkinson's toolkit has the potential to be embedded within routine healthcare, aligning with self\u2010management policies.<\/jats:p><\/jats:sec><jats:sec><jats:title>Patient or Public Contribution<\/jats:title><jats:p>Author B.M. is our patient and public involvement (PPI) representative and author on this paper. B.M. supports a team of 15 PPI members who have contributed to the development of the toolkit. This involvement has included attending research team and steering group meetings, attending and facilitating co\u2010designed workshops, reviewing all the toolkit information before approval and supporting with the user testing.<\/jats:p><\/jats:sec>","DOI":"10.1111\/hex.70104","type":"journal-article","created":{"date-parts":[[2024,11,15]],"date-time":"2024-11-15T12:58:57Z","timestamp":1731675537000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":9,"title":["Co\u2010Design of a Facilitated Self\u2010Management Toolkit for People With Parkinson's Disease"],"prefix":"10.1111","volume":"27","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-7757-5353","authenticated-orcid":false,"given":"Nathan","family":"Davies","sequence":"first","affiliation":[{"name":"Centre of Psychiatry and Mental Health Queen Mary University London 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