{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,14]],"date-time":"2025-11-14T09:48:41Z","timestamp":1763113721737,"version":"3.45.0"},"reference-count":51,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2025,5,12]],"date-time":"2025-05-12T00:00:00Z","timestamp":1747008000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2025,6]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>This article presents patient and public involvement and engagement (PPIE) work undertaken to explore FGM survivors' and stakeholders' views on reconstructive surgery, potential service models, care pathways, barriers to access and other support needs. The aim was to set research priorities, identify key themes and help inform subsequent research in the field.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      A national research collective was established comprising over 20 stakeholders, including FGM survivors\/women with lived experience, healthcare professionals, academics and advocacy groups. The group undertook two discussion workshops with FGM survivors (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200911 participants), two national stakeholder events (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u2009142 attendees) and significant advocacy and partnership\u2010building activities.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Key insights were that FGM survivors would value reconstructive surgery to address body image concerns, genital pain and sexual difficulties. Potential barriers to surgery included stigma, safeguarding concerns, lack of awareness and fear. Significant gaps were identified around women's knowledge of clitoral anatomy, FGM types and specialist services. Survivors and stakeholders emphasised the need to complement surgical reconstruction with a comprehensive care pathway including trauma counselling and psychosexual therapy.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>This study highlights the importance of a survivor\u2010led approach to FGM service development, as often the voices of FGM survivors are not included. The exercise demonstrated that, with the right approach, it is possible to engage \u2018minoritised communities\/individuals from the global majority\u2019 and communities dispayed considerable willingness to participate in this sensitive research field. It also emphasises an urgent need for accessible, high\u2010quality FGM care informed by the voices of those affected, to improve outcomes and support for FGM survivors in the United Kingdom.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patient or Public Contribution<\/jats:title>\n                    <jats:p>Women with lived experience of FGM and women from FGM\u2010affected communities, as well as other national stakeholders (including Non Government Organisation's and charities working with FGM survivors, academics, artists and campaigners\u00a0were involved in the design and conduct of this study, analysis and interpretation of the data and preparation of the manuscript.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hex.70275","type":"journal-article","created":{"date-parts":[[2025,5,12]],"date-time":"2025-05-12T07:40:41Z","timestamp":1747035641000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Listening to Women's Voices: A Patient and Public Involvement Exercise Exploring Vulval Reconstructive Surgery for UK Women With Female Genital Mutilation (FGM)"],"prefix":"10.1111","volume":"28","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4686-7649","authenticated-orcid":false,"given":"Juliet","family":"Albert","sequence":"first","affiliation":[{"name":"Imperial College Division of Womens, Children and Clinical Support, Imperial College Healthcare NHS Trust (ICHNT) and Imperial College London London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Janet","family":"Fyle","sequence":"additional","affiliation":[{"name":"Royal College of Midwives London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Njomeza","family":"Kartallozi","sequence":"additional","affiliation":[{"name":"Dahlia Project, Manor Gardens London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christie","family":"Coho","sequence":"additional","affiliation":[{"name":"Independent Psychological Therapist London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Naana","family":"Otoo\u2010Oyortey","sequence":"additional","affiliation":[{"name":"FORWARD London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Hekate","family":"Papadaki","sequence":"additional","affiliation":[{"name":"Dahlia Project, Manor Gardens London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5338-2191","authenticated-orcid":false,"given":"Catrin","family":"Evans","sequence":"additional","affiliation":[{"name":"School of Health Sciences, Centre for Evidence Based Healthcare University of Nottingham Nottingham UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dalia","family":"Saidan","sequence":"additional","affiliation":[{"name":"Croydon University Hospital Urogynaecology and Pelvic Floor Reconstruction Unit London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sohier","family":"Elneil","sequence":"additional","affiliation":[{"name":"Institute for Women's Health University College London London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Natasha","family":"Anderson\u2010Foster","sequence":"additional","affiliation":[{"name":"Psychosexual Therapist in Private Practice Birmingham UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jasmine","family":"Abdulcadir","sequence":"additional","affiliation":[{"name":"H\u00f4pitaux Universitaires de Gen\u00e8ve (HUG) clinic Geneva Switzerland"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Huda","family":"Mohamed","sequence":"additional","affiliation":[{"name":"Whittington Hospital London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Aurora","family":"Almadori","sequence":"additional","affiliation":[{"name":"Division of Surgery and Interventional Science University College London London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2025,5,12]]},"reference":[{"key":"e_1_2_12_2_1","unstructured":"WHO \u201cFemale Genital Mutilation Key Facts \u201d updated February 5 2024 https:\/\/www.who.int\/en\/news-room\/fact-sheets\/detail\/female-genital-mutilation."},{"key":"e_1_2_12_3_1","unstructured":"WHO.WHO Guidelines on the Management of Health Complications From Female Genital Mutilation.2016."},{"key":"e_1_2_12_4_1","unstructured":"WHO.Health Risks of Female Genital Mutilation.2023."},{"key":"e_1_2_12_5_1","unstructured":"WHO.Care of Women and Girls Living With Female Genital Mutilation: A Clinical Handbook.2018."},{"key":"e_1_2_12_6_1","unstructured":"A.MacfarlaneandE.Dorkenoo.Prevalence of Female Genital Mutilation in England and Wales: National and Local Estimates: City University London in Association With Equality Now.2015."},{"key":"e_1_2_12_7_1","unstructured":"N. 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