{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,17]],"date-time":"2026-10-17T10:52:54Z","timestamp":1792234374187,"version":"4.4.0"},"reference-count":74,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2025,4,28]],"date-time":"2025-04-28T00:00:00Z","timestamp":1745798400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2025,6]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Participatory methods like experience\u2010based co\u2010design (EBCD) can be used to develop complex interventions, but may need adaptations when co\u2010designers include young people with disability, parents and community partners. We aimed to adapt EBCD through co\u2010production by involving people with lived experience of disability as co\u2010researchers. This paper reports the co\u2010produced protocol and reflects on co\u2010researchers' contributions.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Guided by a six\u2010stage co\u2010production process, we formed a team of co\u2010researchers, academic researchers, co\u2010design convenors and evaluators. A five\u2010person steering group, comprising three co\u2010researchers and two academic researchers, led decision\u2010making and project oversight. We communicated via videoconferencing, phone and email. Briefing documents, meeting minutes and diaries supported our reflections and reporting.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>We adapted EBCD to include people with disability through creative online methods and co\u2010produced a two\u2010part \u2018CycLink Co\u2010design Study\u2019 protocol. Part 1 proposed using EBCD to design principles for a community cycling intervention (CycLink). Part 2 planned a mixed\u2010methods evaluation of our adapted EBCD. Co\u2010researchers influenced participant choice and accessibility by developing phased involvement options, inclusive consent processes and adapted research materials. Interpretative support during qualitative analysis improved the relevance and reflexive rigour of findings. However, resource constraints limited co\u2010researcher involvement in conducting EBCD activities.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Co\u2010production enabled us to adapt EBCD for people with diverse support needs and invite under\u2010represented populations (e.g., young people with childhood\u2010onset disability) to co\u2010design. Cumulative adjustments resulted from our disability expertise, guidelines and approaches facilitating co\u2010designers' opportunities to engage. Future studies should consider early and ongoing co\u2010researcher involvement within both processes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patient or Public Contribution<\/jats:title>\n                    <jats:p>Two adults with disability and a parent of a young child with disability joined our team as co\u2010researchers. Co\u2010researchers valued flexible involvement, which ranged from consultative to collaborative. Co\u2010researchers' experiential expertise influenced the relevance of project materials and qualitative findings. We reported on co\u2010researcher involvement through the Guidance for Reporting Involvement of Patients and the Public Version 2 Short Form (GRIPP2\u2010SF) [1] (Supplemental File S1\u2014Section A, Table S1).<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hex.70276","type":"journal-article","created":{"date-parts":[[2025,4,29]],"date-time":"2025-04-29T02:00:58Z","timestamp":1745892058000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":15,"title":["Adapting Experience\u2010Based Co\u2010Design to Disability Research: Co\u2010Producing the CycLink Co\u2010Design Study"],"prefix":"10.1111","volume":"28","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8290-0277","authenticated-orcid":false,"given":"John Joseph","family":"Carey","sequence":"first","affiliation":[{"name":"Department of Physiotherapy The University of Melbourne Melbourne Australia"},{"name":"Murdoch Children's Research Institute Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6535-661X","authenticated-orcid":false,"given":"Alicia","family":"Spittle","sequence":"additional","affiliation":[{"name":"Department of Physiotherapy The University of Melbourne Melbourne Australia"},{"name":"Murdoch Children's Research Institute Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9055-3554","authenticated-orcid":false,"given":"Christine","family":"Imms","sequence":"additional","affiliation":[{"name":"Murdoch Children's Research Institute Melbourne Australia"},{"name":"Department of Paediatrics The University of Melbourne Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6840-2378","authenticated-orcid":false,"given":"Nora","family":"Shields","sequence":"additional","affiliation":[{"name":"Murdoch Children's Research Institute Melbourne Australia"},{"name":"Olga Tennison Autism Research Centre, School of Psychology and Public Health La Trobe University Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8040-5053","authenticated-orcid":false,"given":"Margaret","family":"Wallen","sequence":"additional","affiliation":[{"name":"Australian Catholic University (North Sydney Campus) Sydney Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0003-0601-6548","authenticated-orcid":false,"given":"Finn","family":"O'Keefe","sequence":"additional","affiliation":[{"name":"Department of Physiotherapy The University of Melbourne Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0002-2364-9702","authenticated-orcid":false,"given":"Miriam Joy","family":"Yates","sequence":"additional","affiliation":[{"name":"Department of Physiotherapy The University of Melbourne Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Holly","family":"Skilbeck","sequence":"additional","affiliation":[{"name":"Department of Physiotherapy The University of Melbourne Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7860-3846","authenticated-orcid":false,"given":"Rachel","family":"Toovey","sequence":"additional","affiliation":[{"name":"Department of Physiotherapy The University of Melbourne Melbourne Australia"},{"name":"Murdoch Children's Research Institute Melbourne Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,4,28]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.j3453"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40814-019-0425-6"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.n2061"},{"key":"e_1_2_11_5_1","doi-asserted-by":"crossref","unstructured":"T. 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