{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,3]],"date-time":"2026-06-03T13:06:34Z","timestamp":1780491994790,"version":"3.54.1"},"reference-count":34,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2025,5,10]],"date-time":"2025-05-10T00:00:00Z","timestamp":1746835200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100014653","name":"Manchester Biomedical Research Centre","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100014653","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2025,6]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>While Patient and Public Involvement and Engagement (PPIE) is a key element of research best practice across healthcare, the co\u2010design process for digital health interventions (DHIs) remains under\u2010reported. This study explores the co\u2010design process of the i\u2010Minds DHI, developed for young people exposed to technology\u2010assisted sexual abuse (TASA), with a focus on advancing PPIE in DHI development. The research team collaborated with a Lived Experience Advisory Group (LEAG) to co\u2010design the intervention, detailing activities, experiences, benefits, challenges and priorities identified throughout the process.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>The study involved four participatory co\u2010design workshops and focus groups with LEAG members. Key activities included identifying key features of the app design and content, gathering feedback on prototypes, discussing priorities for the app's function and trial design, and refining the language and content of user\u2010facing materials. Features were prioritised using the MoSCoW method.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Recruitment of LEAG members, facilitated by the Marie Collins Foundation, emphasised the importance of involving trusted organisations when addressing sensitive topics like TASA, as many young people do not initially recognise themselves as victims. Key findings highlighted the importance of clear communication, structured processes (e.g., Terms of Reference) and financial remuneration for members to promote equity of opportunity. Agile development methods enabled iterative refinement of the app, integrating user feedback in real time. However, time and budget limitations constrained the integration of all desired features, with the MoSCoW method providing transparency in decision\u2010making.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>We offer recommendations for effective PPIE, including prioritising lived experience input early in research, allocating sufficient resources and fostering transparent communication. Despite challenges, such as limited diversity within the LEAG and remote meeting formats, PPIE was considered meaningful by members. This study provides a valuable framework for co\u2010designing DHIs and improving inclusivity in PPIE efforts, particularly in sensitive research areas like TASA.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patient and Public Contribution<\/jats:title>\n                    <jats:p>This study was supported by a LEAG, which undertook the role of partners and was involved in study design, ethical considerations, recruitment, content revision and project oversight. Authors included lived experience members and people with intersecting lived experience and research identities.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hex.70288","type":"journal-article","created":{"date-parts":[[2025,5,10]],"date-time":"2025-05-10T04:29:46Z","timestamp":1746851386000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["Reporting on a Partnership to Co\u2010Design a Digital Health Intervention With Young People Who Have Experienced Technology\u2010Assisted Sexual Abuse"],"prefix":"10.1111","volume":"28","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-6197-5333","authenticated-orcid":false,"given":"Sandra","family":"Bucci","sequence":"first","affiliation":[{"name":"Greater Manchester Mental Health NHS Foundation Trust Manchester UK"},{"name":"Division of Psychology and Mental Health, School of Health Sciences, Faculty of Biological, Medical and Health Sciences, Manchester Academic Health Science University of Manchester Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alice","family":"Newton","sequence":"additional","affiliation":[{"name":"Greater Manchester Mental Health NHS Foundation Trust Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Pauline","family":"Whelan","sequence":"additional","affiliation":[{"name":"Greater Manchester Mental Health NHS Foundation Trust Manchester UK"},{"name":"Division of Informatics, Imaging and Data Science, School of Health Sciences, Faculty of Biology, Medicine and Health, Manchester Academic Health Science The University of Manchester Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kim","family":"Cartwright","sequence":"additional","affiliation":[{"name":"Greater Manchester Mental Health NHS Foundation Trust Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Prathiba","family":"Chitsabsean","sequence":"additional","affiliation":[{"name":"Pennine Care NHS Foundation Trust Ashton\u2010under\u2010Lyne UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Simon","family":"Foster","sequence":"additional","affiliation":[{"name":"Division of Informatics, Imaging and Data Science, School of Health Sciences, Faculty of Biology, Medicine and Health, Manchester Academic Health Science The University of Manchester Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Victoria","family":"Green","sequence":"additional","affiliation":[{"name":"Marie Collins Foundation London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Amanda","family":"Larkin","sequence":"additional","affiliation":[{"name":"Greater Manchester Mental Health NHS Foundation Trust Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rhiannon\u2010Faye","family":"McDonald","sequence":"additional","affiliation":[{"name":"Marie Collins Foundation London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ethel","family":"Quayle","sequence":"additional","affiliation":[{"name":"School of Health in Social Science University of Edinburgh Edinburgh UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Matthias","family":"Schwannauer","sequence":"additional","affiliation":[{"name":"School of Health in Social Science University of Edinburgh Edinburgh UK"},{"name":"NHS Lothian Edinburgh UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Victoria","family":"Selby","sequence":"additional","affiliation":[{"name":"Mersey Care NHS Foundation Trust Prescot UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Filippo","family":"Varese","sequence":"additional","affiliation":[{"name":"Greater Manchester Mental Health NHS Foundation Trust Manchester UK"},{"name":"Division of Psychology and Mental Health, School of Health Sciences, Faculty of Biological, Medical and Health Sciences, Manchester Academic Health Science University of Manchester Manchester UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,5,10]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"crossref","unstructured":"I.Muchamore P.Karanikolas andP. 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