{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,9]],"date-time":"2026-07-09T04:50:45Z","timestamp":1783572645191,"version":"3.55.0"},"reference-count":34,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2025,7,29]],"date-time":"2025-07-29T00:00:00Z","timestamp":1753747200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2025,8]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Patient\u2010reported outcome measures (PROMs) are used to evaluate the effectiveness of interventions, particularly for subjective health states such as well\u2010being. A parent carer is an adult primary caregiver for a child with a disability. Parent carers are at risk of poorer mental and physical health; targeted health promotion interventions are being developed, requiring evaluation. This study aimed to identify the important health and well\u2010being outcomes for parent carers for evaluating parent carer\u2010focused interventions.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We recruited parents of children with special educational needs and disabilities living in England. Participants took part in individual, semi\u2010structured interviews via video in two parts. First, participants were asked open\u2010ended questions about health and well\u2010being; second, there was an elicitation exercise, in which the interviewees were asked to consider the aspects of health assessed by the Warwick\u2010Edinburgh Mental Wellbeing Scale (WEMWBS). Verbatim transcripts were analysed in two stages. Initially, data were analysed inductively, taking a thematic analysis approach. Subsequently, the data were analysed deductively with reference to a comprehensive framework of well\u2010being composed of 6 domains and 196 dimensions of well\u2010being.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Thirty parent carers participated. We found support for diverse dimensions across all six well\u2010being domains. Eighteen dimensions were perceived to be of greater importance for parent carers: \u2018stress reaction\u2019, \u2018anxiety\/depression\u2019, \u2018acceptance\u2019, \u2018autonomy\u2019, \u2018self\u2010esteem\u2019, \u2018cognition\u2019, \u2018achievement\u2019, \u2018interests\/hobbies\u2019, \u2018learning\u2019, \u2018need for relatedness\u2019, \u2018rest\u2019, \u2018sleep\u2019, \u2018physical exercise\u2019, \u2018life purpose and satisfaction\u2019, \u2018community wellbeing\u2019, \u2018status\u2019, \u2018financial situation\u2019 and \u2018future security\u2019. WEMWBS items focus on positive aspects of mental health. Not measuring reduction in \u2018negative\u2019 well\u2010being dimensions risks missing important changes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>All six domains of health and well\u2010being were relevant to parent carers. However, some dimensions were more significant for the well\u2010being of parent carers, and these dimensions should be captured when evaluating their health and well\u2010being outcomes.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patient or Public Contribution<\/jats:title>\n                    <jats:p>Parent carers were involved in all aspects of the research, including research aims, recruitment and sampling, data collection and analysis, and dissemination.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hex.70358","type":"journal-article","created":{"date-parts":[[2025,7,29]],"date-time":"2025-07-29T07:39:43Z","timestamp":1753774783000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["What Are the Important Health and Well\u2010Being Outcome Dimensions for Parent Carers of Disabled Children? A Qualitative Study"],"prefix":"10.1111","volume":"28","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6317-302X","authenticated-orcid":false,"given":"Caomh\u00e1n","family":"McGlinchey","sequence":"first","affiliation":[{"name":"Peninsula Childhood Disability Research Unit (PenCRU) University of Exeter Medical School University of Exeter Exeter UK"},{"name":"NIHR Applied Research Collaboration South West Peninsula (PenARC) University of Exeter Medical School University of Exeter Exeter UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3609-7556","authenticated-orcid":false,"given":"Phillip","family":"Harniess","sequence":"additional","affiliation":[{"name":"Peninsula Childhood Disability Research Unit (PenCRU) University of Exeter Medical School University of Exeter Exeter UK"},{"name":"NIHR Applied Research Collaboration South West Peninsula (PenARC) University of Exeter Medical School University of Exeter Exeter UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6029-5291","authenticated-orcid":false,"given":"Aleksandra J.","family":"Borek","sequence":"additional","affiliation":[{"name":"Nuffield Department of Primary Care Health Sciences, Medical Sciences Division University of Oxford Oxford UK"},{"name":"Institute of Psychology SWPS University Wroclaw Poland"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5379-5888","authenticated-orcid":false,"given":"Alice","family":"Garrood","sequence":"additional","affiliation":[{"name":"Peninsula Childhood Disability Research Unit (PenCRU) University of Exeter Medical School University of Exeter Exeter UK"},{"name":"NIHR Applied Research Collaboration South West Peninsula (PenARC) University of Exeter Medical School University of Exeter Exeter UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3538-7519","authenticated-orcid":false,"given":"Annabel","family":"McDonald","sequence":"additional","affiliation":[{"name":"Peninsula Childhood Disability Research Unit (PenCRU) University of Exeter Medical School University of Exeter Exeter UK"},{"name":"NIHR Applied Research Collaboration South West Peninsula (PenARC) University of Exeter Medical School University of Exeter Exeter UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7156-061X","authenticated-orcid":false,"given":"Fleur","family":"Boyle","sequence":"additional","affiliation":[{"name":"Peninsula Childhood Disability Research Unit (PenCRU) University of Exeter Medical School University of Exeter Exeter UK"},{"name":"NIHR Applied Research Collaboration South West Peninsula (PenARC) University of Exeter Medical School University of Exeter Exeter UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9279-261X","authenticated-orcid":false,"given":"Stuart","family":"Logan","sequence":"additional","affiliation":[{"name":"Peninsula Childhood Disability Research Unit (PenCRU) University of Exeter Medical School University of Exeter Exeter UK"},{"name":"NIHR Applied Research Collaboration South West Peninsula (PenARC) University of Exeter Medical School University of Exeter Exeter UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9916-507X","authenticated-orcid":false,"given":"Christopher","family":"Morris","sequence":"additional","affiliation":[{"name":"Peninsula Childhood Disability Research Unit (PenCRU) University of Exeter Medical School University of Exeter Exeter UK"},{"name":"NIHR Applied Research Collaboration South West Peninsula (PenARC) University of Exeter Medical School University of Exeter Exeter UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,7,29]]},"reference":[{"key":"e_1_2_11_2_1","doi-asserted-by":"publisher","DOI":"10.2105\/AJPH.2011.300298"},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1136\/archdischild-2020-320655"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10995-020-02896-5"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyt.2021.729129"},{"key":"e_1_2_11_6_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10826-018-01308-1"},{"key":"e_1_2_11_7_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10803-018-3789-1"},{"key":"e_1_2_11_8_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12889-018-5168-4"},{"key":"e_1_2_11_9_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.13812"},{"key":"e_1_2_11_10_1","doi-asserted-by":"crossref","unstructured":"J.Reeder M. 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