{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,29]],"date-time":"2026-10-29T04:46:09Z","timestamp":1793249169910,"version":"4.5.0"},"reference-count":71,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2025,8,13]],"date-time":"2025-08-13T00:00:00Z","timestamp":1755043200000},"content-version":"vor","delay-in-days":12,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2025,8]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Aims<\/jats:title>\n                    <jats:p>The aim of the study was to identify the barriers and facilitators to healthcare access for people with Parkinson's disease (PWP) in Spanish\u2010speaking Latin American countries (LAC) in Central and South America, to understand their drivers and consider the implications for health systems in LAC.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>Four online semi\u2010structured focus groups were conducted with 25 PWP who provide education and\/or support to PWP. The study was designed and implemented by a person with lived experience of PD. Data were mapped to an existing model of access to healthcare that incorporates provider and consumer abilities.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Findings<\/jats:title>\n                    <jats:p>There were multiple provider barriers in terms of availability, affordability and appropriateness of care, driven by a lack of health system capacity. Doctors didn't recognise Parkinson's symptoms, which resulted in delayed diagnosis. Limited knowledge of Parkinson's and limited multidisciplinary care and medication was common across Spanish\u2010speaking Latin America. Inequities in access were experienced by those living in rural areas and those who could not afford private care. Barriers at the person level included stigma, depression and lack of health literacy around PD. Family and peer support were facilitators of access.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Significant gaps in Parkinson's care across Latin America are driven by stigma and limited service availability. This study highlights the need for culturally tailored interventions that address stigma, promote peer support and strengthen self\u2010management and health professional training across Spanish\u2010speaking Latin America. We call for more global partnerships to encourage training and mentoring in regional cities across Latin America with co\u2010designed approaches to ensure a culturally appropriate framework of care that supports patients and healthcare professionals with a focus on self\u2010management.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patient or Public Contribution<\/jats:title>\n                    <jats:p>The first author (C.J.) has Parkinson's disease (PD) and lived with the condition for 8 years in Peru. She was involved in all aspects of the study, including design, data collection, analysis and writing this article. C.J. is an international advocate in the PD community.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hex.70380","type":"journal-article","created":{"date-parts":[[2025,8,13]],"date-time":"2025-08-13T10:52:24Z","timestamp":1755082344000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":8,"title":["Barriers and Facilitators to Accessing Healthcare for People With Parkinson's Disease in Latin America: A Qualitative Study"],"prefix":"10.1111","volume":"28","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5625-6895","authenticated-orcid":false,"given":"Christine","family":"Jeyachandran","sequence":"first","affiliation":[{"name":"The International Centre for Future Health System, UNSW Sydney Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6741-5644","authenticated-orcid":false,"given":"Catherine","family":"Spooner","sequence":"additional","affiliation":[{"name":"The International Centre for Future Health System, UNSW Sydney Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5993-5466","authenticated-orcid":false,"given":"Ana Margarita Rodriguez","family":"Salgado","sequence":"additional","affiliation":[{"name":"Global Brain Health Institute University of San Francisco San Francisco California USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6698-3263","authenticated-orcid":false,"given":"Matthew","family":"Prina","sequence":"additional","affiliation":[{"name":"Population Health Sciences Institute, Faculty of Medical Sciences Newcastle University Newcastle upon Tyne UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5233-2758","authenticated-orcid":false,"given":"Joel","family":"Rhee","sequence":"additional","affiliation":[{"name":"Discipline of General Practice, School of Clinical Medicine, Faculty of Medicine and Health UNSW Sydney Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2137-7750","authenticated-orcid":false,"given":"Jorge Jesus","family":"Llibre\u2010Guerra","sequence":"additional","affiliation":[{"name":"Department of Neurology Washington University School of Medicine in St. Louis St. Louis Missouri USA"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6605-3338","authenticated-orcid":false,"given":"Dani","family":"Kim","sequence":"additional","affiliation":[{"name":"Health Service and Population Research Department, Institute of Psychiatry, Psychology, and Neuroscience King's College London London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Juan J.","family":"Llibre\u2010Rodriguez","sequence":"additional","affiliation":[{"name":"Dementia Research Unit Medical University of Havana Havana Cuba"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0705-8913","authenticated-orcid":false,"given":"Mark F.","family":"Harris","sequence":"additional","affiliation":[{"name":"The International Centre for Future Health System, UNSW Sydney Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2025,8,13]]},"reference":[{"key":"e_1_2_15_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140-6736(21)00218-X"},{"key":"e_1_2_15_3_1","doi-asserted-by":"publisher","DOI":"10.1016\/S1474-4422(24)00038-3"},{"key":"e_1_2_15_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.parkreldis.2021.10.028"},{"key":"e_1_2_15_5_1","doi-asserted-by":"publisher","DOI":"10.3233\/JPD-230229"},{"key":"e_1_2_15_6_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamaneurol.2022.1783"},{"key":"e_1_2_15_7_1","doi-asserted-by":"publisher","DOI":"10.3233\/JPD-212735"},{"key":"e_1_2_15_8_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ensci.2016.12.001"},{"key":"e_1_2_15_9_1","doi-asserted-by":"publisher","DOI":"10.1586\/14737167.2016.1135740"},{"key":"e_1_2_15_10_1","volume-title":"Parkinson Disease: A Public Health Approach. 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