{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,2]],"date-time":"2026-05-02T12:41:46Z","timestamp":1777725706577,"version":"3.51.4"},"reference-count":19,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2026,3,20]],"date-time":"2026-03-20T00:00:00Z","timestamp":1773964800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,3,20]],"date-time":"2026-03-20T00:00:00Z","timestamp":1773964800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/501100000272","name":"National Institute for Health and Care Research","doi-asserted-by":"publisher","award":["+ MRC: MR\/V027859\/1"],"award-info":[{"award-number":["+ MRC: MR\/V027859\/1"]}],"id":[{"id":"10.13039\/501100000272","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000272","name":"National Institute for Health and Care Research","doi-asserted-by":"publisher","award":["COV0319"],"award-info":[{"award-number":["COV0319"]}],"id":[{"id":"10.13039\/501100000272","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2026,4]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>At the start of the coronavirus disease\u20102019 (COVID\u201019) pandemic in early 2020, the long\u2010term outcomes for survivors of COVID\u201019 were unknown. The PHOSP\u2010COVID cohort study was set up at scale and pace in Spring 2020 to determine the short\u2010 to long\u2010term health consequences of COVID\u201019 in post\u2010hospitalisation survivors; to understand the impact of interventions during and after the acute illness on these long\u2010term sequelae and to build the foundation for multiple in\u2010depth studies. A consortium infrastructure of hospital trusts, academic partners, industry, patients and charities was created. From the study inception, patients were central to the PHOSP\u2010COVID consortium, whereby a Patient and Public involvement and Engagement (PPIE) group was convened, including charity groups, people with lived experience recruited through clinical care from NHS sites, and patient support groups through Long Covid Support. Embedding high\u2010quality, meaningful PPIE within a large consortium brings challenges and benefits. In this article, we describe our experiences of setting up and sustaining the PHOSP\u2010COVID Consortium PPIE group, including a PIRIT\u2010focussed evaluation of the impact of our PPIE work and provide top tips for researchers to take forward when embedding PPIE in future consortium research.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>This article outlines the set\u2010up and sustainability of the PHOSP\u2010COVID study PPIE group, in consultation with the National Institute for Health and Care Research (NIHR) guidance. To evaluate PPIE impact, we used PIRIT (Public Involvement in Research Impact Tool, 2023\u2010 Cardiff), and we provide our honest reflections of our PPIE work according to the PIRIT planning tool. The results highlight the benefits of a consortium approach to PPIE as well as the challenges, with quotes from PPIE contributors and academics. In addition, we have created top tips for researchers to take forward when embedding PPIE in future consortium research, linked to the NIHR standards.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Learning and Reflection<\/jats:title>\n                    <jats:p>This manuscript has identified gaps in PPIE considerations for the PHOSP\u2010COVID study and specific challenges around a consortium\u2010based approach for PPIE. These are largely due to time scale (i.e. the pace of setting up the study within a pandemic) and communication factors (diverse and large numbers of people to include\/inform). Through reflection on the challenges and successes experienced in the PHOSP\u2010COVID consortium PPIE via a PIRIT\u2010focused impact evaluation, we have developed recommendations to support future good practice.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patient or Public Contribution<\/jats:title>\n                    <jats:p>Patients and members of the public were involved in all aspects of this work from idea inception, design and conduct of the work, analysis and interpretation of the data. Eight patients prepared the manuscript and are included as co\u2010authors.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hex.70591","type":"journal-article","created":{"date-parts":[[2026,3,20]],"date-time":"2026-03-20T10:46:21Z","timestamp":1774003581000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Consortium\u2010Based Patient and Public Involvement and Engagement for Long COVID Research: A Pirit\u2010Focused Impact Evaluation of the PHOSP\u2010COVID Study"],"prefix":"10.1111","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4940-8835","authenticated-orcid":false,"given":"Linzy","family":"Houchen\u2010Wolloff","sequence":"first","affiliation":[{"name":"NIHR Leicester Biomedical Research Centre Leicester UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Joanna","family":"Bell","sequence":"additional","affiliation":[{"name":"NIHR Leicester Biomedical Research Centre Leicester UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rebecca","family":"Pritchard","sequence":"additional","affiliation":[{"name":"NIHR Leicester Biomedical Research Centre Leicester UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Krisnah","family":"Poinasamy","sequence":"additional","affiliation":[{"name":"Asthma and Lung UK London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kate","family":"Holmes","sequence":"additional","affiliation":[{"name":"National Institute for Health Research London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Samantha","family":"Walker","sequence":"additional","affiliation":[{"name":"Asthma and Lung UK London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Nikki","family":"Smith","sequence":"additional","affiliation":[{"name":"PHOSP\u2010COVID Patient and Public Involvement Group, Leicester Biomedical Research Centre Leicester UK"},{"name":"Long Covid Support London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Claire","family":"Hastie","sequence":"additional","affiliation":[{"name":"PHOSP\u2010COVID Patient and Public Involvement Group, Leicester Biomedical Research Centre Leicester UK"},{"name":"Long Covid Support London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Natalie","family":"Rogers","sequence":"additional","affiliation":[{"name":"PHOSP\u2010COVID Patient and Public Involvement Group, Leicester Biomedical Research Centre Leicester UK"},{"name":"Long Covid Support London UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dawn","family":"Adams","sequence":"additional","affiliation":[{"name":"PHOSP\u2010COVID Patient and Public Involvement Group, Leicester Biomedical Research Centre Leicester UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rashmita","family":"Nathu","sequence":"additional","affiliation":[{"name":"PHOSP\u2010COVID Patient and Public Involvement Group, Leicester Biomedical Research Centre Leicester UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Rhyan","family":"Gill","sequence":"additional","affiliation":[{"name":"PHOSP\u2010COVID Patient and Public Involvement Group, Leicester Biomedical Research Centre Leicester UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jenny","family":"Bunker","sequence":"additional","affiliation":[{"name":"PHOSP\u2010COVID Patient and Public Involvement Group, Leicester Biomedical Research Centre Leicester UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lily","family":"Staunton","sequence":"additional","affiliation":[{"name":"PHOSP\u2010COVID Patient and Public Involvement Group, Leicester Biomedical Research Centre Leicester UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"James","family":"Chalmers","sequence":"additional","affiliation":[{"name":"University of Dundee, Ninewells Hospital and Medical School Dundee UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Ling\u2010Pei","family":"Ho","sequence":"additional","affiliation":[{"name":"MRC Human Immunology Unit, University of Oxford Oxford UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Victoria","family":"Harris","sequence":"additional","affiliation":[{"name":"NIHR Leicester Biomedical Research Centre Leicester UK"}],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alexander","family":"Horsley","sequence":"additional","affiliation":[{"name":"Division of Infection, Immunity &amp; 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