{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T00:52:03Z","timestamp":1787014323179,"version":"build-2736575974"},"reference-count":30,"publisher":"Wiley","issue":"2","license":[{"start":{"date-parts":[[2026,3,27]],"date-time":"2026-03-27T00:00:00Z","timestamp":1774569600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,3,27]],"date-time":"2026-03-27T00:00:00Z","timestamp":1774569600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/501100003065","name":"Universit\u00e4t Wien","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100003065","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2026,4]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>This study examines the lived experiences of family caregivers navigating the legal and emotional complexities of Austria's newly enacted Dying Decree Law.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>A qualitative interview study was conducted with nine family caregivers (eight women) of people seeking assisted suicide (PSAS) in Austria. Participants were recruited through purposive sampling through multiple recruitment channels. Interviews were analysed using thematic analysis (supported by MAXQDA).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Seven overarching themes emerged: (1) Dynamics of Dying and Saying Goodbye; (2) Inclusion versus Exclusion in the Decision\u2010Making Process; (3) Role Negotiation and Responsibilities; (4) Bureaucratic and Legal Barriers; (5) Social Exclusion and Stigmatisation; (6) Support Needs and Structures; and (7) Ramifications in the Post\u2010Mortem Phase. Family caregivers reported a lack of formal guidance, often leading to isolation and exhaustion. Open communication was repeatedly highlighted as essential in order to honour the PSAS's wishes and alleviate family caregivers' grief.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>Family caregivers function as advocates and bureaucratic managers while simultaneously serving as carers who provide the PSAS with physical and emotional support. Rather than relying on the legal framework alone, public policy should also formally acknowledge this dual role and deliver government\u2011led structural support for family caregivers to lessen their emotional and bureaucratic burden.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patient or Public Contribution<\/jats:title>\n                    <jats:p>Family caregivers of PSAS were central to this research. We interviewed family caregivers about their experiences with assisted dying under Austria's Dying Decree Law, and incorporated their suggestions for addressing the identified challenges and improving support structures. Their contributions were integral to the study's findings and its focus on enhancing support structures for family caregivers within assisted dying systems.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hex.70651","type":"journal-article","created":{"date-parts":[[2026,3,27]],"date-time":"2026-03-27T16:56:11Z","timestamp":1774630571000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":2,"title":["\u2018It Simply Required Far Too Many Steps and Made You Feel You Were Just a Number\u2019. Family Caregivers' Experiences With Assisted Suicide in Austria: A Qualitative Study"],"prefix":"10.1111","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0009-0003-9183-9206","authenticated-orcid":false,"given":"Tamina\u2010Laetitia","family":"Vielgrader","sequence":"first","affiliation":[{"name":"Institute for Ethics and Law in Medicine University of Vienna and Medical University of Vienna Vienna Austria"},{"name":"Vienna Doctoral School in Cognition, Behaviour and Neuroscience University of Vienna Vienna Austria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ricarda","family":"Mewes","sequence":"additional","affiliation":[{"name":"Faculty of Social Sciences Institute of Psychology, University of Klagenfurt Klagenfurt Austria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Julia","family":"Fischer","sequence":"additional","affiliation":[{"name":"Institute for Ethics and Law in Medicine University of Vienna and Medical University of Vienna Vienna Austria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jana Marica","family":"Hluch","sequence":"additional","affiliation":[{"name":"Institute for Ethics and Law in Medicine University of Vienna and Medical University of Vienna Vienna Austria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maria","family":"Kletecka\u2010Pulker","sequence":"additional","affiliation":[{"name":"Institute for Ethics and Law in Medicine University of Vienna and Medical University of Vienna Vienna Austria"},{"name":"Ludwig Boltzmann Institute Digital Health and Patient Safety Ludwig Boltzmann Gesellschaft Vienna Austria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gudrun","family":"Kreye","sequence":"additional","affiliation":[{"name":"Division of Palliative Care, Division of Internal Medicine 2 University Hospital Krems Krems Austria"},{"name":"Karl Landsteiner University of Health Sciences Krems Austria"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0625-500X","authenticated-orcid":false,"given":"Elisabeth Lucia","family":"Zeilinger","sequence":"additional","affiliation":[{"name":"Department of Clinical and Health Psychology, Faculty of Psychology University of Vienna Vienna Austria"},{"name":"Department of Clinical Research SBG Academy for Ageing Research, Haus der Barmherzigkeit Vienna Austria"},{"name":"Division of Health Psychology, Faculty of Psychology Karl Landsteiner University of Health Sciences Krems Austria"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,3,27]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11606-021-07012-z"},{"key":"e_1_2_12_3_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12910-019-0361-2"},{"key":"e_1_2_12_4_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12910-023-00902-3"},{"key":"e_1_2_12_5_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjph-2023-000646"},{"key":"e_1_2_12_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jpainsymman.2017.12.482"},{"key":"e_1_2_12_7_1","doi-asserted-by":"publisher","DOI":"10.21037\/apm-20-637"},{"key":"e_1_2_12_8_1","doi-asserted-by":"publisher","DOI":"10.1177\/10497323231196827"},{"key":"e_1_2_12_9_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjspcare-2016-001291"},{"key":"e_1_2_12_10_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.14107"},{"key":"e_1_2_12_11_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12910-024-01031-1"},{"key":"e_1_2_12_12_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12904-021-00882-4"},{"key":"e_1_2_12_13_1","doi-asserted-by":"publisher","DOI":"10.1093\/acprof:oso\/9780199993123.001.0001"},{"key":"e_1_2_12_14_1","doi-asserted-by":"publisher","DOI":"10.1093\/geront\/gnad119"},{"key":"e_1_2_12_15_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyt.2024.1421582"},{"key":"e_1_2_12_16_1","doi-asserted-by":"publisher","DOI":"10.15173\/glj.v11i2.4090"},{"key":"e_1_2_12_17_1","unstructured":"E.Dowling \u201cThe Care Crisis: What Caused It and How Can We End It?\u201dVerso; 2021 accessed December 15 2025 https:\/\/research.ebsco.com\/linkprocessor\/plink?id=1aedd059-2546-3aab-9d4b-9c270794c2a6."},{"key":"e_1_2_12_18_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0326142"},{"key":"e_1_2_12_19_1","doi-asserted-by":"publisher","DOI":"10.1191\/1478088706qp063oa"},{"key":"e_1_2_12_20_1","unstructured":"MAXQDA 2022. 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