{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,28]],"date-time":"2026-09-28T16:43:25Z","timestamp":1790613805745,"version":"4.1.0"},"reference-count":53,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2026,5,16]],"date-time":"2026-05-16T00:00:00Z","timestamp":1778889600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,5,16]],"date-time":"2026-05-16T00:00:00Z","timestamp":1778889600000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2026,6]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Children and adolescents diagnosed with cancer and their families have unique medical and psychosocial needs. Addressing these requires research centred on issues most relevant to them. Currently, Australia lacks a research agenda grounded in lived experience and clinical expertise to guide inquiry into child and adolescent cancer.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To identify the top 10 research priorities for child and adolescent cancer in Australia.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>We conducted a James Lind Alliance Priority Setting Partnership involving two national online surveys and an online workshop. Individuals diagnosed with cancer before age 19, caregivers, and health professionals providing care were involved in the process.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>In Survey 1, 229 respondents (41 patients\/survivors, 118 caregivers, 70 professionals) submitted 602 in\u2010scope research questions. These were grouped and refined into 49 summary questions and verified as unanswered through literature reviews. In Survey 2, 474 respondents (32 patients\/survivors, 289 caregivers, 139 professionals) selected and ranked the questions most important to them, narrowing the list. The top\u2010ranked 19 questions were then discussed in a workshop with 27 participants (7 survivors, 9 caregivers, 11 professionals) to reach consensus on the final top 10. Priorities span treatment, survivorship, psychosocial support, and service delivery.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>These priorities provide the first step toward establishing a child and adolescent cancer research agenda in Australia that reflects both lived experience and clinical expertise. They call for future research into safe and personalised care across the trajectory, delivered with equality using culturally safe approaches. Collaboratively advancing these priorities will accelerate translation of evidence into meaningful outcomes.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hex.70689","type":"journal-article","created":{"date-parts":[[2026,5,16]],"date-time":"2026-05-16T15:14:41Z","timestamp":1778944481000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":1,"title":["What Matters Most: The Top 10 Child and Adolescent Cancer Research Priorities in Australia"],"prefix":"10.1111","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-9176-9306","authenticated-orcid":false,"given":"Gayani","family":"De Silva","sequence":"first","affiliation":[{"name":"Cancer &amp; Palliative Care Outcomes Centre, Centre for Healthcare Transformation, Faculty of Health Queensland University of Technology Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eden G.","family":"Robertson","sequence":"additional","affiliation":[{"name":"Behavioural Sciences Unit, School of Clinical Medicine, UNSW Medicine &amp; Health, Discipline of Paediatrics and Child Health, Randwick Clinical Campus, UNSW Sydney Randwick New South Wales Australia"},{"name":"Kids Cancer Centre, Sydney Children's Hospital Randwick New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9870-0931","authenticated-orcid":false,"given":"Alison","family":"Bowers","sequence":"additional","affiliation":[{"name":"Cancer &amp; Palliative Care Outcomes Centre, Centre for Healthcare Transformation, Faculty of Health Queensland University of Technology Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Clarissa","family":"Schilstra","sequence":"additional","affiliation":[{"name":"Behavioural Sciences Unit, School of Clinical Medicine, UNSW Medicine &amp; Health, Discipline of Paediatrics and Child Health, Randwick Clinical Campus, UNSW Sydney Randwick New South Wales Australia"},{"name":"Kids Cancer Centre, Sydney Children's Hospital Randwick New South Wales Australia"},{"name":"Representation With Childhood Cancer Experience on the Child and Adolescent Cancer Priority Setting Partnership Sydney New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sheila K.","family":"Patel","sequence":"additional","affiliation":[{"name":"Parent Representative on the Child and Adolescent Cancer Priority Setting Partnership Melbourne Victoria Australia"},{"name":"Department of Medicine University of Melbourne Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6543-3921","authenticated-orcid":false,"given":"Maria C.","family":"McCarthy","sequence":"additional","affiliation":[{"name":"Children's Cancer Centre, Royal Children's Hospital Parkville Victoria Australia"},{"name":"Murdoch Children's Research Institute Parkville Victoria Australia"},{"name":"Department of Paediatrics University of Melbourne Melbourne Victoria Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2604-9975","authenticated-orcid":false,"given":"Jordana","family":"McLoone","sequence":"additional","affiliation":[{"name":"Behavioural Sciences Unit, School of Clinical Medicine, UNSW Medicine &amp; Health, Discipline of Paediatrics and Child Health, Randwick Clinical Campus, UNSW Sydney Randwick New South Wales Australia"},{"name":"Kids Cancer Centre, Sydney Children's Hospital Randwick New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0413-5434","authenticated-orcid":false,"given":"Jason D.","family":"Pole","sequence":"additional","affiliation":[{"name":"Queensland Digital Health Centre, Centre for Health Services Research, Faculty of Health, Medicine and Behavioural Sciences University of Queensland Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4200-8900","authenticated-orcid":false,"given":"Ursula M.","family":"Sansom\u2010Daly","sequence":"additional","affiliation":[{"name":"Behavioural Sciences Unit, School of Clinical Medicine, UNSW Medicine &amp; Health, Discipline of Paediatrics and Child Health, Randwick Clinical Campus, UNSW Sydney Randwick New South Wales Australia"},{"name":"Kids Cancer Centre, Sydney Children's Hospital Randwick New South Wales Australia"},{"name":"Sydney Youth Cancer Service, Prince of Wales Hospital Randwick New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sabina","family":"Oppelaar","sequence":"additional","affiliation":[{"name":"School of Nursing, Faculty of Health Queensland University of Technology Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joanne","family":"Cummings","sequence":"additional","affiliation":[{"name":"Anglicare Sydney New South Wales Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Natalie","family":"Bradford","sequence":"additional","affiliation":[{"name":"Cancer &amp; Palliative Care Outcomes Centre, Centre for Healthcare Transformation, Faculty of Health Queensland University of Technology Brisbane Queensland Australia"},{"name":"Viertel Cancer Research Centre, Cancer Council Queensland Brisbane Queensland Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,5,16]]},"reference":[{"key":"e_1_2_12_2_1","unstructured":"AIWH. 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