{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,5]],"date-time":"2026-07-05T15:15:14Z","timestamp":1783264514093,"version":"3.54.6"},"reference-count":47,"publisher":"Wiley","issue":"3","license":[{"start":{"date-parts":[[2026,6,4]],"date-time":"2026-06-04T00:00:00Z","timestamp":1780531200000},"content-version":"vor","delay-in-days":3,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,6,1]],"date-time":"2026-06-01T00:00:00Z","timestamp":1780272000000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2026,6]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>The involvement of family\/friends in the care planning of an older adult residing in a care home can help to foster person\u2010centred care. This study explored and incorporated family\/friends' views on the relevance and usefulness of a draft information resource focusing on care planning to address and support older adults' needs.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>The research team drafted an information resource to help family\/friends better understand care planning. The contents of the draft resource were informed by previous research on care planning in older adult care homes, which included a scoping review, a modified Delphi survey and consultations with health and social care professionals. Feedback on the draft resource was collected through remote focus group discussions with family\/friends of older adults residing in care homes in England in November 2024. Participants were invited to share their views on the draft information resource and if\/how it could be improved. Audio recordings were transcribed verbatim and the data thematically analysed in NVivo.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Findings<\/jats:title>\n                    <jats:p>The views of 28 family\/friends were obtained across four focus group discussions. Three main themes were generated: experiences with care planning, usefulness of the information resource and improving and sharing the information resource. Findings depict a heterogeneity in awareness of, and involvement in, care planning. Most participants perceived the information resource to have the potential to raise awareness of care planning and promote family\/friend involvement. Subject to changes, several participants said that they would share the document. Some, largely due its presentation, said they would not.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Most participants believed that an information resource on care planning would be helpful. Future research is required to explore whether the document leads to increased family\/friend involvement in care planning.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patient or Public Contribution<\/jats:title>\n                    <jats:p>Two family members with experience of supporting a relative in a care home were involved in devising and revising the different iterations of the information resource and topic guide, and in interpreting findings.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hex.70715","type":"journal-article","created":{"date-parts":[[2026,6,4]],"date-time":"2026-06-04T11:34:01Z","timestamp":1780572841000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Promoting Family\/Friend Involvement in Care Planning in Care Homes: A Qualitative Exploration of the Usefulness and Relevance of an Information Resource"],"prefix":"10.1111","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5681-0569","authenticated-orcid":false,"given":"Tha\u00efs","family":"Caprioli","sequence":"first","affiliation":[{"name":"Department of Primary Care and Mental Health University of Liverpool Liverpool UK"},{"name":"NIHR ARC North West Coast University of Liverpool Liverpool UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1790-7699","authenticated-orcid":false,"given":"Jonathan","family":"Taylor","sequence":"additional","affiliation":[{"name":"Nuffield Department of Population Health University of Oxford Oxford UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yuri","family":"Hamashima","sequence":"additional","affiliation":[{"name":"The National Institute for Health and Care Research Applied Research Collaboration West (NIHR ARC West) at University Hospitals Bristol and Weston NHS Foundation Trust Bristol UK"},{"name":"Population Health Sciences, Bristol Medical School University of Bristol Bristol UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alison","family":"Charles","sequence":"additional","affiliation":[{"name":"Centre for Health Services Studies University of Kent Canterbury UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jacqueline","family":"Damant","sequence":"additional","affiliation":[{"name":"Care and Policy Evaluation Centre, London School of Economics London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0746-0566","authenticated-orcid":false,"given":"Clarissa","family":"Giebel","sequence":"additional","affiliation":[{"name":"Department of Primary Care and Mental Health University of Liverpool Liverpool UK"},{"name":"NIHR ARC North West Coast University of Liverpool Liverpool UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0076-5981","authenticated-orcid":false,"given":"Michele","family":"Peters","sequence":"additional","affiliation":[{"name":"Nuffield Department of Population Health University of Oxford Oxford UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Madalina","family":"Toma","sequence":"additional","affiliation":[{"name":"Centre for Health Services Studies University of Kent Canterbury UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anna Ferguson","family":"Montague","sequence":"additional","affiliation":[{"name":"Patient, Carer and Public Involvement and Engagement Advisor  UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lynne","family":"Wright","sequence":"additional","affiliation":[{"name":"Patient, Carer and Public Involvement and Engagement Advisor  UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9793-6988","authenticated-orcid":false,"given":"Nick","family":"Smith","sequence":"additional","affiliation":[{"name":"Centre for Health Services Studies University of Kent Canterbury UK"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,6,4]]},"reference":[{"key":"e_1_2_11_2_1","unstructured":"Office for National Statistics(ONS) Older People Living in Care Homes and Changes Over Time England and Wales Census 2021 2023 https:\/\/www.ons.gov.uk\/peoplepopulationandcommunity\/birthsdeathsandmarriages\/ageing\/datasets\/olderpeoplelivingincarehomesandchangesovertimeenglandandwalescensus2021."},{"key":"e_1_2_11_3_1","doi-asserted-by":"publisher","DOI":"10.1093\/ageing\/afaa227"},{"key":"e_1_2_11_4_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.colegn.2013.11.001"},{"key":"e_1_2_11_5_1","doi-asserted-by":"publisher","DOI":"10.1080\/08959420.2022.2134691"},{"key":"e_1_2_11_6_1","unstructured":"National Health ServiceNHS Care and Support Plans 2022 https:\/\/www.nhs.uk\/conditions\/social-care-and-support-guide\/help-from-social-services-and-charities\/care-and-support-plans\/."},{"key":"e_1_2_11_7_1","unstructured":"Care Quality Commission(CQC) Regulation 9: Person\u2010Centred Care 2024 https:\/\/www.cqc.org.uk\/guidance-providers\/regulations\/regulation-9-person-centred-care."},{"key":"e_1_2_11_8_1","unstructured":"Social Care Institue for Excellence(SCIE) The Mental Capacity Act (MCA) and Care Planning 2014 https:\/\/www.gov.uk\/government\/publications\/care-act-statutory-guidance\/care-and-support-statutory-guidance#person-centred-care-and-support-planninghttps:\/\/www.careuk.com\/help-advice\/what-is-a-care-plan."},{"key":"e_1_2_11_9_1","unstructured":"Department of Health and Social Care(DHSC) Statutory Guidance. Care and Support Statutory Guidance 2024 https:\/\/www.gov.uk\/government\/publications\/care-act-statutory-guidance\/care-and-support-statutory-guidance#person-centred-care-and-support-planninghttps:\/\/www.careuk.com\/help-advice\/what-is-a-care-plan."},{"key":"e_1_2_11_10_1","unstructured":"National Health Service(NHS) National End of Life Care Programme The Difference Between General Care Planning and Decisions Made in Advance 2012 https:\/\/www.c-a-s-t-l-e.org.uk\/documents\/planning-ahead\/differences_between_general_care_planning_-_decisions_made_in_acp.pdf."},{"key":"e_1_2_11_11_1","doi-asserted-by":"publisher","DOI":"10.1080\/13607863.2016.1255715"},{"key":"e_1_2_11_12_1","doi-asserted-by":"publisher","DOI":"10.1111\/hsc.12647"},{"key":"e_1_2_11_13_1","doi-asserted-by":"publisher","DOI":"10.1332\/23978821Y2024D000000092"},{"key":"e_1_2_11_14_1","doi-asserted-by":"publisher","DOI":"10.1111\/jan.16965"},{"key":"e_1_2_11_15_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jamda.2025.105704"},{"key":"e_1_2_11_16_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen-2024-090243"},{"key":"e_1_2_11_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.70433"},{"key":"e_1_2_11_18_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0060412"},{"key":"e_1_2_11_19_1","doi-asserted-by":"publisher","DOI":"10.1177\/0269216317722413"},{"key":"e_1_2_11_20_1","doi-asserted-by":"publisher","DOI":"10.1093\/ageing\/afad027"},{"key":"e_1_2_11_21_1","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.17071"},{"key":"e_1_2_11_22_1","doi-asserted-by":"publisher","DOI":"10.2147\/CIA.S128937"},{"key":"e_1_2_11_23_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ijnurstu.2020.103576"},{"key":"e_1_2_11_24_1","doi-asserted-by":"publisher","DOI":"10.31389\/jltc.223"},{"key":"e_1_2_11_25_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2021.06.008"},{"key":"e_1_2_11_26_1","doi-asserted-by":"publisher","DOI":"10.2196\/33320"},{"key":"e_1_2_11_27_1","doi-asserted-by":"publisher","DOI":"10.2196\/15578"},{"key":"e_1_2_11_28_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jamda.2011.02.005"},{"key":"e_1_2_11_29_1","doi-asserted-by":"publisher","DOI":"10.1177\/2333721417747323"},{"key":"e_1_2_11_30_1","unstructured":"Age UK Care Plans 2024 https:\/\/www.ageuk.org.uk\/information-advice\/care\/arranging-care\/care-needs-assessment\/care-plans\/."},{"key":"e_1_2_11_31_1","unstructured":"The Fremantle Trust What Is a Care Plan & Why Is It important? n.d. https:\/\/www.fremantletrust.org\/help-and-advice\/why-is-care-planning-important."},{"key":"e_1_2_11_32_1","unstructured":"Care UK What Is a Care Plan? n.d. https:\/\/www.careuk.com\/help-advice\/what-is-a-care-plan."},{"key":"e_1_2_11_33_1","unstructured":"Lottie What Is a Care Plan in a Care Homes? 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