{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,27]],"date-time":"2026-08-27T02:19:13Z","timestamp":1787797153674,"version":"build-2784847793"},"reference-count":57,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2026,7,18]],"date-time":"2026-07-18T00:00:00Z","timestamp":1784332800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,7,18]],"date-time":"2026-07-18T00:00:00Z","timestamp":1784332800000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2026,8]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Rheumatoid arthritis affects young women during critical life\u2010course stages, requiring ongoing adaptation to illness\u2010related uncertainty while managing social roles and expectations. Women in their 20s to 40s face distinctive challenges related to illness disclosure, stigma and life\u2010course tasks, particularly around childbirth and caregiving roles.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>This qualitative study explored the illness experiences of women with rheumatoid arthritis in their 20s to 40s and examined how they construct everyday normality amid uncertainty and life\u2010course tasks.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>Colaizzi's descriptive phenomenological method.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting and Participants<\/jats:title>\n                    <jats:p>Semi\u2010structured in\u2010depth interviews were conducted with 20 women aged 20\u201349 years who met the 2010 American College of Rheumatology\/European Alliance of Associations for Rheumatology classification criteria. The mean interview duration was 58\u2009min. Colaizzi's seven\u2010step phenomenological analysis was applied; coding consistency was checked (Cohen's kappa\u2009=\u20090.90).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>From 529 meaning units, 42 subthemes, 12 core themes and 5 theme clusters were derived, with an overarching theme of \u2018Constructing normality between uncertainty and life\u2010course tasks\u2019. Participants employed differentiated disclosure strategies, transitioning from concealment to selective disclosure around childbirth. Two novel concepts were identified: \u2018forced disclosure\u2019, wherein illness was unintentionally exposed due to structural factors, and \u2018legitimised vulnerability\u2019, wherein social approval for help\u2010seeking was obtained through the maternal role.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion<\/jats:title>\n                    <jats:p>Young Korean women with rheumatoid arthritis reported experiencing patterns of diagnostic delay, shifts in disclosure strategies with childbirth as the turning point, and maternal role conflict. Participants did not experience disclosure as a purely individual decision. Instead, they feared that disclosure would lead to being devalued as \u2018a sick person\u2019 or \u2018a weak person\u2019, which shaped their disclosure strategies.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Childbirth serves as a turning point in illness disclosure strategies, highlighting the need for nursing interventions tailored to life\u2010course tasks.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Lived Experience or Public Contribution<\/jats:title>\n                    <jats:p>A registered nurse who is herself living with rheumatoid arthritis contributed to developing and refining the interview questions during the study design phase. She also provided limited input during analysis by helping to confirm the meaning of some participant statements, enhancing the study's credibility and relevance to the experiences of young women with RA.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hex.70771","type":"journal-article","created":{"date-parts":[[2026,7,18]],"date-time":"2026-07-18T10:33:56Z","timestamp":1784370836000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Illness Experiences of Young Women With Rheumatoid Arthritis in South Korea"],"prefix":"10.1111","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9832-231X","authenticated-orcid":false,"given":"Wonhee","family":"Baek","sequence":"first","affiliation":[{"name":"College of Nursing Gyeongsang National University Jinju Gyeongnam South Korea"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0823-5651","authenticated-orcid":false,"given":"Hyunjung","family":"Doo","sequence":"additional","affiliation":[{"name":"Department of Nursing, College of Health Sciences Kyungnam University Changwon Gyeongnam South Korea"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,7,18]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S2665-9913(23)00211-4"},{"key":"e_1_2_12_3_1","doi-asserted-by":"publisher","DOI":"10.31138\/mjr.301223.eaf"},{"key":"e_1_2_12_4_1","doi-asserted-by":"publisher","DOI":"10.55563\/clinexprheumatol\/r9rruc"},{"key":"e_1_2_12_5_1","doi-asserted-by":"publisher","DOI":"10.3904\/kjim.2021.339"},{"key":"e_1_2_12_6_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0248151"},{"key":"e_1_2_12_7_1","doi-asserted-by":"publisher","DOI":"10.1186\/s41927-018-0049-0"},{"key":"e_1_2_12_8_1","doi-asserted-by":"publisher","DOI":"10.1002\/acr.25245"},{"key":"e_1_2_12_9_1","doi-asserted-by":"publisher","DOI":"10.1002\/acr2.1016"},{"key":"e_1_2_12_10_1","doi-asserted-by":"publisher","DOI":"10.3389\/flupu.2024.1497518"},{"key":"e_1_2_12_11_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13075-021-02493-z"},{"key":"e_1_2_12_12_1","doi-asserted-by":"publisher","DOI":"10.1093\/rheumatology\/keq"},{"key":"e_1_2_12_13_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0020-7489(03)00132-9"},{"key":"e_1_2_12_14_1","doi-asserted-by":"publisher","DOI":"10.4069\/kjwhn.2023.06.05"},{"key":"e_1_2_12_15_1","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.15428"},{"key":"e_1_2_12_16_1","doi-asserted-by":"publisher","DOI":"10.1002\/nop2.1446"},{"key":"e_1_2_12_17_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.ep11339939"},{"key":"e_1_2_12_18_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.13269"},{"key":"e_1_2_12_19_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.00191"},{"key":"e_1_2_12_20_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.70100"},{"key":"e_1_2_12_21_1","volume-title":"Stigma: Notes on the Management of Spoiled Identity","author":"Goffman E.","year":"2009"},{"key":"e_1_2_12_22_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12916-019-1271-3"},{"key":"e_1_2_12_23_1","doi-asserted-by":"publisher","DOI":"10.1111\/spc3.12005"},{"key":"e_1_2_12_24_1","doi-asserted-by":"publisher","DOI":"10.1111\/j.1939-0025.1951.tb00003.x"},{"key":"e_1_2_12_25_1","doi-asserted-by":"publisher","DOI":"10.1111\/1467-9566.13692"},{"key":"e_1_2_12_26_1","first-page":"48","volume-title":"Existential\u2010Phenomenological Alternatives for Psychology","author":"Colaizzi P. 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