{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,27]],"date-time":"2026-08-27T02:19:08Z","timestamp":1787797148419,"version":"build-2784847793"},"reference-count":44,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2026,8,21]],"date-time":"2026-08-21T00:00:00Z","timestamp":1787270400000},"content-version":"vor","delay-in-days":20,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,8,1]],"date-time":"2026-08-01T00:00:00Z","timestamp":1785542400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/501100003522","name":"Crohn's and Colitis UK","doi-asserted-by":"publisher","award":["P2021\/1"],"award-info":[{"award-number":["P2021\/1"]}],"id":[{"id":"10.13039\/501100003522","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2026,8]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background<\/jats:title>\n                    <jats:p>Patient and public involvement (PPI) enhances the relevance, acceptability and implementation potential of interventions.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Objective<\/jats:title>\n                    <jats:p>To describe the adaptation of a cognitive\u2010behavioural therapy (CBT) based intervention (COMPASS) into an inflammatory bowel disease (IBD)\u2010specific version (COMPASS\u2010IBD), in partnership with individuals with IBD and healthcare professionals (HCPs).<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Setting and Participants<\/jats:title>\n                    <jats:p>Twelve individuals with IBD, recruited through previous COMPASS PPI networks and wider outreach to the IBD community, and three HCPs\u00a0contributed to an iterative adaptation process.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design<\/jats:title>\n                    <jats:p>A four\u2010stage iterative adaptation process was conducted. First, an online workshop, one\u2010to\u2010one calls and clinic observations were conducted to explore the specific challenges of living with IBD and insights from these discussions were then used to guide adaptations. Proposed changes were reviewed through email and phone correspondence with PPI to check for acceptability and suitability. Finally, a post\u2010process reflection with collaborators was undertaken to inform future work.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Key themes included the invisible and unpredictable nature of IBD, symptom burden, stigma and isolation. These informed IBD\u2010specific patient stories and refinement of content to enhance relevance and specificity. Sixty\u2010four recommendations were made, of which 56 were implemented.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusions<\/jats:title>\n                    <jats:p>Collaboration with PPI and HCP partners identified IBD\u2010specific needs and ensured that COMPASS\u2010IBD was acceptable and contextually appropriate. Embedding lived experience within intervention adaption may help to enhance implementation and engagement for interventions supporting individuals living with long\u2010term health conditions.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Lived Experience or Public Contribution<\/jats:title>\n                    <jats:p>Our PPI collaborators were involved throughout the study, via an online workshop, one\u2010to\u2010one calls, and follow up email correspondence. They identified key challenges of living with IBD, reviewed adaptations and provided iterative feedback on changes to COMPASS\u2010IBD. Their input shaped the patient stories, programme content, and the framing of IBD\u2010specific issues, ensuring the relevance, tone and acceptability of the adapted intervention. PPI contributors also supported with the interpretation of findings and refinement of the manuscript. This work documents a meaningful partnership in the adaptation of a digital intervention.<\/jats:p>\n                    <jats:p>\n                      <jats:bold>Clinical Trials Registration:<\/jats:bold>\n                      The wider study was registered on ClinicalTrials.gov (NCT05330299).\n                    <\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hex.70818","type":"journal-article","created":{"date-parts":[[2026,8,21]],"date-time":"2026-08-21T14:09:54Z","timestamp":1787321394000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Using a Person\u2010Centred Approach to Adapt a Digital Therapy for Inflammatory Bowel Disease (COMPASS\u2010IBD)"],"prefix":"10.1111","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2221-6684","authenticated-orcid":false,"given":"Sophie","family":"Harding","sequence":"first","affiliation":[{"name":"Health Psychology Section, Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience King's College London London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Harinder","family":"Singh","sequence":"additional","affiliation":[{"name":"Lead Patient and Public Involvement Representative King's College London London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katrin","family":"Hulme","sequence":"additional","affiliation":[{"name":"Health Psychology Section, Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience King's College London London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1088-1396","authenticated-orcid":false,"given":"Natasha","family":"Seaton","sequence":"additional","affiliation":[{"name":"Health Psychology Section, Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience King's College London London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Abigail","family":"Wroe","sequence":"additional","affiliation":[{"name":"Health Psychology Section, Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience King's College London London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0742-4290","authenticated-orcid":false,"given":"Alexa","family":"Duff","sequence":"additional","affiliation":[{"name":"Psychological Medicine Unit, St Mark's National Bowel Hospital London North West University Healthcare NHS trust London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joanna","family":"Hudson","sequence":"additional","affiliation":[{"name":"Health Psychology Section, Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience King's College London London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2927-3446","authenticated-orcid":false,"given":"Rona","family":"Moss\u2010Morris","sequence":"additional","affiliation":[{"name":"Health Psychology Section, Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience King's College London London UK"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Annie S. K.","family":"Jones","sequence":"additional","affiliation":[{"name":"Health Psychology Section, Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience King's College London London UK"},{"name":"Faculty of Medical and Health Sciences, Psychological Medicine University of Auckland Auckland New Zealand"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,8,21]]},"reference":[{"key":"e_1_2_12_2_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140\u20106736(07)60750\u20108"},{"key":"e_1_2_12_3_1","unstructured":"IBD UK The Hidden Cost and a Vision for Change Crohn's and Colitis Care in the UK 2021 accessed June 1 2023 https:\/\/crohnsandcolitis.org.uk\/our\u2010work\/campaigns\/improving\u2010your\u2010healthcare\/ibd\u2010uk\u2010and\u2010the\u2010ibd\u2010standards\/crohn\u2010s\u2010and\u2010colitis\u2010care\u2010in\u2010the\u2010uk\u2010the\u2010hidden\u2010cost\u2010and\u2010a\u2010vision\u2010for\u2010change."},{"key":"e_1_2_12_4_1","doi-asserted-by":"publisher","DOI":"10.1053\/J.GASTRO.2011.10.001"},{"key":"e_1_2_12_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/J.CGH.2011.05.016"},{"key":"e_1_2_12_6_1","doi-asserted-by":"publisher","DOI":"10.1016\/J.IJNURSTU.2018.07.017"},{"key":"e_1_2_12_7_1","doi-asserted-by":"publisher","DOI":"10.12968\/bjhc.2022.0075"},{"key":"e_1_2_12_8_1","doi-asserted-by":"publisher","DOI":"10.1111\/jocn.15080"},{"key":"e_1_2_12_9_1","doi-asserted-by":"publisher","DOI":"10.1080\/17474124.2021.1911644"},{"key":"e_1_2_12_10_1","doi-asserted-by":"publisher","DOI":"10.1016\/S2468\u20101253(21)00014\u20105"},{"key":"e_1_2_12_11_1","doi-asserted-by":"publisher","DOI":"10.1053\/j.gastro.2022.03.014"},{"key":"e_1_2_12_12_1","doi-asserted-by":"publisher","DOI":"10.1136\/ebmental\u20102020\u2010300223"},{"key":"e_1_2_12_13_1","doi-asserted-by":"publisher","DOI":"10.1136\/flgastro\u20102022\u2010102094"},{"key":"e_1_2_12_14_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.crohns.2014.07.009"},{"key":"e_1_2_12_15_1","doi-asserted-by":"publisher","DOI":"10.1136\/gutjnl\u20102022\u2010328221"},{"key":"e_1_2_12_16_1","doi-asserted-by":"publisher","DOI":"10.1136\/flgastro\u20102019\u2010101260"},{"key":"e_1_2_12_17_1","doi-asserted-by":"publisher","DOI":"10.1186\/1471\u20102296\u201012\u201010"},{"key":"e_1_2_12_18_1","unstructured":"IBD UK Crohn's and Colitis Care in the UK: The Hidden Cost and a Vision for Change. (2021)."},{"key":"e_1_2_12_19_1","doi-asserted-by":"publisher","DOI":"10.2196\/38030"},{"key":"e_1_2_12_20_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.eclinm.2020.100442"},{"key":"e_1_2_12_21_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmjopen\u20102021\u2010053971"},{"key":"e_1_2_12_22_1","doi-asserted-by":"publisher","DOI":"10.1097\/PSY.0000000000001076"},{"key":"e_1_2_12_23_1","doi-asserted-by":"publisher","DOI":"10.1192\/bjo.2023.519"},{"key":"e_1_2_12_24_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13012\u2010017\u20100553\u20104"},{"key":"e_1_2_12_25_1","doi-asserted-by":"publisher","DOI":"10.1017\/S0033291723003756"},{"key":"e_1_2_12_26_1","doi-asserted-by":"publisher","DOI":"10.1093\/ibd\/izaf259"},{"key":"e_1_2_12_27_1","doi-asserted-by":"publisher","DOI":"10.2196\/jmir.4055"},{"key":"e_1_2_12_28_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyt.2018.00481"},{"key":"e_1_2_12_29_1","doi-asserted-by":"publisher","DOI":"10.1136\/medhum\u20102017\u2010011398"},{"key":"e_1_2_12_30_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.13506"},{"key":"e_1_2_12_31_1","doi-asserted-by":"publisher","DOI":"10.3389\/fdgth.2021.764079"},{"key":"e_1_2_12_32_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.n2061"},{"key":"e_1_2_12_33_1","doi-asserted-by":"publisher","DOI":"10.1145\/1900441.1900476"},{"key":"e_1_2_12_34_1","doi-asserted-by":"publisher","DOI":"10.2196\/39913"},{"key":"e_1_2_12_35_1","doi-asserted-by":"publisher","DOI":"10.1136\/bmj.j3453"},{"key":"e_1_2_12_36_1","unstructured":"NIHR. Payment Guidance for Researchers and Professionals | NIHR. October 2025."},{"key":"e_1_2_12_37_1","doi-asserted-by":"publisher","DOI":"10.1093\/ecco\u2010jcc\/jjac190.0612"},{"key":"e_1_2_12_38_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.bodyim.2025.101916"},{"key":"e_1_2_12_39_1","doi-asserted-by":"publisher","DOI":"10.1111\/jan.70199"},{"key":"e_1_2_12_40_1","doi-asserted-by":"publisher","DOI":"10.1186\/s40814\u2010021\u201000829\u20109"},{"key":"e_1_2_12_41_1","doi-asserted-by":"publisher","DOI":"10.3389\/fpsyg.2024.1367913"},{"key":"e_1_2_12_42_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.13362"},{"key":"e_1_2_12_43_1","doi-asserted-by":"publisher","DOI":"10.1186\/s13012\u2010019\u20100898\u2010y"},{"key":"e_1_2_12_44_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.eclinm.2024.102739"},{"key":"e_1_2_12_45_1","doi-asserted-by":"publisher","DOI":"10.1093\/ibd\/izae077"}],"container-title":["Health Expectations"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/hex.70818","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/hex.70818","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/hex.70818","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,8,27]],"date-time":"2026-08-27T02:14:19Z","timestamp":1787796859000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/hex.70818"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,8]]},"references-count":44,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2026,8]]}},"alternative-id":["10.1111\/hex.70818"],"URL":"https:\/\/doi.org\/10.1111\/hex.70818","archive":["Portico"],"relation":{},"ISSN":["1369-6513","1369-7625"],"issn-type":[{"value":"1369-6513","type":"print"},{"value":"1369-7625","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,8]]},"assertion":[{"value":"2026-04-16","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-08-03","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-08-21","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e70818"}}