{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,27]],"date-time":"2026-08-27T02:19:03Z","timestamp":1787797143315,"version":"build-2784847793"},"reference-count":49,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T00:00:00Z","timestamp":1787011200000},"content-version":"vor","delay-in-days":17,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,8,1]],"date-time":"2026-08-01T00:00:00Z","timestamp":1785542400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2026,8]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Introduction<\/jats:title>\n                    <jats:p>Australia's National Lung Cancer Screening (LCS) Program commenced in July 2025, targeting people at high risk of lung cancer based on age and smoking history. This study aimed to co\u2010design evidence\u2010based decision support tools to facilitate shared decision\u2010making (SDM) for LCS in collaboration with intended end\u2010users.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Methods<\/jats:title>\n                    <jats:p>\n                      Co\u2010design workshops were conducted with consumers, including Aboriginal and Torres Strait Islander peoples (4 workshops;\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200954), and clinicians\/experts (2 workshops;\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u20097). Participants were recruited through an independent social research company, an ongoing wellbeing support group, an Aboriginal Community Controlled Health Service and purposive sampling. Sessions involved structured activities to identify key content priorities and preferred formats for decision support tools. Workshop data were analysed concerning preferences regarding the key priorities for content and design of the tools. Cognitive interviews (\n                      <jats:italic>n<\/jats:italic>\n                      \u2009=\u200915) with an independent group of consumers were undertaken to test comprehensibility and refine design elements. Interviews were analysed against the key content areas that needed to be improved and the views of participants across the three tools developed. For each participant, their likes, dislikes, suggested changes, and how they compared across the three resources were documented. All resources were developed iteratively in alignment with International Patient Decision Aid Standards.\n                    <\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Key shared priorities across consumers and clinicians included information about the screening process, what happens after the scan, benefits of screening, the need to manage cancer and smoking\u2010related stigma and discrimination, tailoring for different language groups, and cultural safety. Consumers emphasised the need for visual representations of the screening pathway and testimonials from previous participants, while finding icon arrays confusing and overly statistical. Both groups highlighted the importance of supporting engagement with screening and reframing potential harms as \u2018other considerations\u2019 rather than deterrents. Feedback from cognitive interviews informed refinements to improve clarity and usability. The final suite of resources comprised a 16\u2010page A5 booklet, a 2\u2010page A4 leaflet, and a 3\u2010min animated video.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Conclusion<\/jats:title>\n                    <jats:p>This co\u2010design process produced three decision support tools to support informed choice within Australia's National LCS Program. The tools were found to be clear, acceptable, and adaptable, with potential for broader use in international LCS implementation.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patient or Public contribution<\/jats:title>\n                    <jats:p>An Aboriginal Reference Group of seven members was formed at project inception and provided cultural oversight and support in the design and conduct of the research with Aboriginal and Torres Strait Islander peoples. Members of the public who might be eligible or may have a family member eligible for lung cancer screening, were included in the conduct of the research.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hex.70824","type":"journal-article","created":{"date-parts":[[2026,8,18]],"date-time":"2026-08-18T07:29:36Z","timestamp":1787038176000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Development, Co\u2010Design and Pilot Testing of Resources to Support Informed Decision\u2010Making for Lung Cancer Screening in Australia: A Study Engaging Diverse Communities and Expert Healthcare Professionals"],"prefix":"10.1111","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-8080-6359","authenticated-orcid":false,"given":"Rachael H.","family":"Dodd","sequence":"first","affiliation":[{"name":"The Daffodil Centre The University of Sydney, and Cancer Council NSW Sydney Australia"},{"name":"Sydney Health Literacy Lab, School of Public Health, Faculty of Medicine and Health The University of Sydney Sydney Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1546-8901","authenticated-orcid":false,"given":"Kathleen","family":"McFadden","sequence":"additional","affiliation":[{"name":"The Daffodil Centre The University of Sydney, and Cancer Council NSW Sydney Australia"},{"name":"Sydney Health Literacy Lab, School of Public Health, Faculty of Medicine and Health The University of Sydney Sydney Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5731-9651","authenticated-orcid":false,"given":"Marianne","family":"Weber","sequence":"additional","affiliation":[{"name":"Cancer Elimination Collaboration, School of Public Health, Faculty of Medicine and Health The University of Sydney Sydney Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dana","family":"Mouwad","sequence":"additional","affiliation":[{"name":"Statewide Health Literacy Hub NSW Health Sydney Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4216-2895","authenticated-orcid":false,"given":"Mei Ling","family":"Yap","sequence":"additional","affiliation":[{"name":"The George Institute for Global Health, UNSW Sydney, Randwick Sydney Australia"},{"name":"The Collaboration for Cancer Outcomes, Research and Evaluation (CCORE) Ingham Institute for Applied Medical Research, Liverpool Sydney Australia"},{"name":"Liverpool and Macarthur Cancer Therapy Centres Western Sydney University, Campbelltown, NSW Sydney Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0713-7803","authenticated-orcid":false,"given":"Michelle","family":"Dickson","sequence":"additional","affiliation":[{"name":"The Poche Centre for Indigenous Health The University of Sydney Sydney Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6864-8346","authenticated-orcid":false,"given":"Simone","family":"Sheriff","sequence":"additional","affiliation":[{"name":"The Poche Centre for Indigenous Health The University of Sydney Sydney Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-9021-8449","authenticated-orcid":false,"given":"Emily","family":"Stone","sequence":"additional","affiliation":[{"name":"Department of Thoracic Medicine and Lung Transplantation St Vincent's Hospital Sydney Australia"},{"name":"School of Clinical Medicine Faculty of Medicine and Health, UNSW Sydney Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dipti","family":"Zachariah","sequence":"additional","affiliation":[{"name":"Multicultural Health Western Sydney Local Health District Sydney Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alicia","family":"King","sequence":"additional","affiliation":[{"name":"Cancer Council Western Australia Subiaco WA Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0715-1405","authenticated-orcid":false,"given":"Nicole M.","family":"Rankin","sequence":"additional","affiliation":[{"name":"Evaluation &amp; Implementation Science Unit, Melbourne School of Population and Global Health The University of Melbourne Melbourne Australia"},{"name":"School of Public Health, Faculty of Medicine and Health The University of Sydney Sydney Australia"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,8,18]]},"reference":[{"key":"e_1_2_14_2_1","doi-asserted-by":"publisher","DOI":"10.3322\/CAAC.21660"},{"key":"e_1_2_14_3_1","unstructured":"Australian Institute of Health and Welfare.Lung Cancer in Australia Statistics.2024 Accessed; April 8 2024.https:\/\/www.canceraustralia.gov.au\/cancer\u2010types\/lung\u2010cancer\/statistics."},{"key":"e_1_2_14_4_1","unstructured":"Australian Institute of Health and Welfare.Cancer in Australia2021 Accessed; April 8 2025.https:\/\/www.aihw.gov.au\/getmedia\/0ea708eb\u2010dd6e\u20104499\u20109080\u20101cc7b5990e64\/aihw\u2010can\u2010144.pdf?v=20230605165731&inline=true."},{"key":"e_1_2_14_5_1","doi-asserted-by":"publisher","DOI":"10.1016\/J.EJCA.2020.04.035"},{"key":"e_1_2_14_6_1","unstructured":"Medical Services Advisory Committee.1699 \u2013 National Lung Cancer Screening Program.2022 Accessed; June 18 2026.https:\/\/www.msac.gov.au\/applications\/1699."},{"key":"e_1_2_14_7_1","doi-asserted-by":"publisher","DOI":"10.1177\/0141076821991108"},{"key":"e_1_2_14_8_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamainternmed.2018.3054"},{"key":"e_1_2_14_9_1","doi-asserted-by":"publisher","DOI":"10.1007\/s11606\u2010012\u20102077\u20106"},{"key":"e_1_2_14_10_1","doi-asserted-by":"publisher","DOI":"10.1177\/0272989X20978208"},{"key":"e_1_2_14_11_1","doi-asserted-by":"publisher","DOI":"10.1177\/0272989X211035681"},{"key":"e_1_2_14_12_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.chest.2020.05.610"},{"key":"e_1_2_14_13_1","doi-asserted-by":"publisher","DOI":"10.1002\/PON.6252"},{"key":"e_1_2_14_14_1","doi-asserted-by":"publisher","DOI":"10.1093\/tbm\/ibz029"},{"key":"e_1_2_14_15_1","doi-asserted-by":"publisher","DOI":"10.3390\/cancers15153867"},{"key":"e_1_2_14_16_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0094670"},{"key":"e_1_2_14_17_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamanetworkopen.2024.19624"},{"key":"e_1_2_14_18_1","doi-asserted-by":"publisher","DOI":"10.1186\/1472\u20106947\u201013\u2010S2\u2010S2"},{"key":"e_1_2_14_19_1","doi-asserted-by":"publisher","DOI":"10.1177\/0272989X13501721"},{"key":"e_1_2_14_20_1","doi-asserted-by":"publisher","DOI":"10.1093\/intqhc\/mzm042"},{"key":"e_1_2_14_21_1","unstructured":"Agency for Clinical Innovation.A Guide to Build Co\u2010Design Capability.2019."},{"key":"e_1_2_14_22_1","doi-asserted-by":"publisher","DOI":"10.1177\/0969141319876961"},{"key":"e_1_2_14_23_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.12975"},{"key":"e_1_2_14_24_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ypmed.2023.107459"},{"key":"e_1_2_14_25_1","doi-asserted-by":"publisher","DOI":"10.1371\/journal.pone.0227304"},{"key":"e_1_2_14_26_1","doi-asserted-by":"publisher","DOI":"10.1016\/S0140\u20106736(15)60123\u20104"},{"key":"e_1_2_14_27_1","doi-asserted-by":"publisher","DOI":"10.1001\/jamaoncol.2022.3766"},{"key":"e_1_2_14_28_1","doi-asserted-by":"publisher","DOI":"10.1513\/ANNALSATS.201902\u2010102OC"},{"key":"e_1_2_14_29_1","doi-asserted-by":"publisher","DOI":"10.21037\/TLCR.2016.11.05"},{"key":"e_1_2_14_30_1","doi-asserted-by":"publisher","DOI":"10.1183\/09031936.00197712"},{"key":"e_1_2_14_31_1","doi-asserted-by":"publisher","DOI":"10.1136\/BMJRESP\u20102023\u2010001664"},{"key":"e_1_2_14_32_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.jtho.2019.05.044"},{"key":"e_1_2_14_33_1","doi-asserted-by":"publisher","DOI":"10.1056\/NEJMoa1911793"},{"key":"e_1_2_14_34_1","unstructured":"Australian Government.The Basics of Plain Language.2023 https:\/\/www.stylemanual.gov.au\/blog\/basics\u2010plain\u2010language."},{"key":"e_1_2_14_35_1","doi-asserted-by":"publisher","DOI":"10.2196\/40645"},{"key":"e_1_2_14_36_1","doi-asserted-by":"publisher","DOI":"10.1207\/s15327884mca0503_3"},{"key":"e_1_2_14_37_1","doi-asserted-by":"publisher","DOI":"10.1016\/S1470\u20102045(23)00104\u20103"},{"key":"e_1_2_14_38_1","doi-asserted-by":"publisher","DOI":"10.1177\/0018720817690634"},{"key":"e_1_2_14_39_1","doi-asserted-by":"publisher","DOI":"10.1016\/J.SOCSCIMED.2009.11.031"},{"key":"e_1_2_14_40_1","doi-asserted-by":"publisher","DOI":"10.1016\/J.PEC.2008.07.023"},{"key":"e_1_2_14_41_1","unstructured":"Agency for Clinical Innovation.Yarning to Make Health Decisions Together.2021 https:\/\/aci.health.nsw.gov.au\/shared\u2010decision\u2010making."},{"key":"e_1_2_14_42_1","doi-asserted-by":"publisher","DOI":"10.1055\/s\u20100038\u20101676807"},{"key":"e_1_2_14_43_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.ypmed.2014.02.006"},{"key":"e_1_2_14_44_1","doi-asserted-by":"publisher","DOI":"10.1513\/AnnalsATS.201604\u2010289OC"},{"key":"e_1_2_14_45_1","doi-asserted-by":"publisher","DOI":"10.1186\/s12911\u2010018\u20100582\u20101"},{"key":"e_1_2_14_46_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.12675"},{"key":"e_1_2_14_47_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.pec.2012.06.036"},{"key":"e_1_2_14_48_1","doi-asserted-by":"publisher","DOI":"10.1007\/s10552\u2010025\u201001987\u20104"},{"key":"e_1_2_14_49_1","doi-asserted-by":"publisher","DOI":"10.1016\/j.lungcan.2025.108874"},{"key":"e_1_2_14_50_1","doi-asserted-by":"publisher","DOI":"10.1111\/hex.70557"}],"container-title":["Health Expectations"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/hex.70824","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/full-xml\/10.1111\/hex.70824","content-type":"application\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1111\/hex.70824","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2026,8,27]],"date-time":"2026-08-27T02:11:00Z","timestamp":1787796660000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/hex.70824"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,8]]},"references-count":49,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2026,8]]}},"alternative-id":["10.1111\/hex.70824"],"URL":"https:\/\/doi.org\/10.1111\/hex.70824","archive":["Portico"],"relation":{},"ISSN":["1369-6513","1369-7625"],"issn-type":[{"value":"1369-6513","type":"print"},{"value":"1369-7625","type":"electronic"}],"subject":[],"published":{"date-parts":[[2026,8]]},"assertion":[{"value":"2026-05-27","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-08-06","order":2,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2026-08-18","order":3,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}],"article-number":"e70824"}}