{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,27]],"date-time":"2026-08-27T02:19:07Z","timestamp":1787797147145,"version":"build-2784847793"},"reference-count":73,"publisher":"Wiley","issue":"4","license":[{"start":{"date-parts":[[2026,8,21]],"date-time":"2026-08-21T00:00:00Z","timestamp":1787270400000},"content-version":"vor","delay-in-days":20,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"},{"start":{"date-parts":[[2026,8,1]],"date-time":"2026-08-01T00:00:00Z","timestamp":1785542400000},"content-version":"tdm","delay-in-days":0,"URL":"http:\/\/doi.wiley.com\/10.1002\/tdm_license_1.1"}],"funder":[{"DOI":"10.13039\/501100000024","name":"Canadian Institutes of Health Research","doi-asserted-by":"publisher","award":["CIHR; FRN #178437"],"award-info":[{"award-number":["CIHR; FRN #178437"]}],"id":[{"id":"10.13039\/501100000024","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["Health Expectations"],"published-print":{"date-parts":[[2026,8]]},"abstract":"<jats:title>ABSTRACT<\/jats:title>\n                  <jats:sec>\n                    <jats:title>Background and Objective<\/jats:title>\n                    <jats:p>Gastrointestinal (GI) cancers pose a substantial burden on patients and care partners, yet outcomes research and clinical tools remain heavily weighted toward clinical endpoints over patient\u2010centred outcomes (PCOs). Without standardised PCOs, risk communication and shared decision\u2010making may revolve around endpoints misaligned with patient priorities. We aimed to identify PCOs meaningful to patients with GI cancer and their care partners.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Design, Setting and Participants<\/jats:title>\n                    <jats:p>We conducted a qualitative focus group study with adult patients with a GI cancer diagnosis and their care partners, recruited from a tertiary cancer centre and patient partner organisations in Canada. Focus groups used open\u2010ended questions and hypothetical patient personas to elicit PCOs. Two researchers independently extracted PCO concepts from verbatim transcripts and synthesised them using a deductive\u2010inductive clustering approach informed by thematic analysis and the patient\u2010centred care framework.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Results<\/jats:title>\n                    <jats:p>Overall, 15 patients and 13 care partners participated. We extracted 254 PCO concepts and consolidated them into 55 unique PCOs organised under 7 parent clusters: care experience (31% of mentions), psychosocial (25%), treatment (16%), lifestyle (12%), healthcare utilisation (8%), functional status (4%), and symptoms (3%). Six PCOs accounted for approximately half of all mentions: communication, care access, information access, treatment understanding, coping abilities, and finances. Patients most often raised psychosocial PCOs, whereas care partners more frequently mentioned functional status and symptom PCOs. Treatment\u2010related PCOs were a mutual concern.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Discussion and Conclusions<\/jats:title>\n                    <jats:p>Patients and care partners identified 55 PCOs spanning dimensions not consistently captured in existing GI cancer instruments. These PCOs can be integrated in the development of a core outcome set for patient\u2010centred risk assessment and individualised prediction in GI cancer care.<\/jats:p>\n                  <\/jats:sec>\n                  <jats:sec>\n                    <jats:title>Patient and Public Contribution<\/jats:title>\n                    <jats:p>Three patient partners with lived experience of cancer contributed to the study as co\u2010investigators. They informed the focus group guide and its sequencing, advised on the language of recruitment materials, and refined data analysis and interpretation. Patients and care partners also took part as focus group participants.<\/jats:p>\n                  <\/jats:sec>","DOI":"10.1111\/hex.70835","type":"journal-article","created":{"date-parts":[[2026,8,21]],"date-time":"2026-08-21T14:13:48Z","timestamp":1787321628000},"update-policy":"https:\/\/doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":0,"title":["Outcomes That Matter in Gastrointestinal Cancer Care: A Focus Group Study of Patient\u2010Centred Outcomes Identified by Patients and Care Partners"],"prefix":"10.1111","volume":"29","author":[{"ORCID":"https:\/\/orcid.org\/0009-0006-6078-9199","authenticated-orcid":false,"given":"Anna","family":"Gombay","sequence":"first","affiliation":[{"name":"Evaluative Clinical Sciences Sunnybrook Research Institute Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anna","family":"Ding","sequence":"additional","affiliation":[{"name":"Evaluative Clinical Sciences Sunnybrook Research Institute Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-6862-3760","authenticated-orcid":false,"given":"Alyson","family":"Mahar","sequence":"additional","affiliation":[{"name":"Health Quality Program, School of Nursing Queen's University Kingston Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2747-4121","authenticated-orcid":false,"given":"Amy T.","family":"Hsu","sequence":"additional","affiliation":[{"name":"Ottawa Hospital Research Institute Ottawa Ontario Canada"},{"name":"Bruy\u00e8re Research Institute Ottawa Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lesley","family":"Gotlib Conn","sequence":"additional","affiliation":[{"name":"Institute of Health Policy, Management and Evaluation University of Toronto Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jessica","family":"Armah","sequence":"additional","affiliation":[{"name":"Evaluative Clinical Sciences Sunnybrook Research Institute Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ekaterina","family":"Kosyachkova","sequence":"additional","affiliation":[{"name":"Stomach Cancer Foundation of Canada Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Julie","family":"Deleemans","sequence":"additional","affiliation":[{"name":"Cumming School of Medicine University of Calgary Calgary Alberta Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Claire","family":"Ludwig","sequence":"additional","affiliation":[{"name":"School of Nursing, Faculty of Health Sciences University of Ottawa Ottawa Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0734-0975","authenticated-orcid":false,"given":"Allia","family":"Karim","sequence":"additional","affiliation":[{"name":"Reserca Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Natalie","family":"Coburn","sequence":"additional","affiliation":[{"name":"Evaluative Clinical Sciences Sunnybrook Research Institute Toronto Ontario Canada"},{"name":"Institute of Health Policy, Management and Evaluation University of Toronto Toronto Ontario Canada"},{"name":"Department of Surgery University of Toronto Toronto Ontario Canada"},{"name":"Division of Surgical Oncology Odette Cancer Centre \u2013 Sunnybrook Health Sciences Centre Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5108-1072","authenticated-orcid":false,"given":"Julie","family":"Hallet","sequence":"additional","affiliation":[{"name":"Evaluative Clinical Sciences Sunnybrook Research Institute Toronto Ontario Canada"},{"name":"Institute of Health Policy, Management and Evaluation University of Toronto Toronto Ontario Canada"},{"name":"Department of Surgery University of Toronto Toronto Ontario Canada"},{"name":"Division of Surgical Oncology Odette Cancer Centre \u2013 Sunnybrook Health Sciences Centre Toronto Ontario Canada"}],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"311","published-online":{"date-parts":[[2026,8,21]]},"reference":[{"issue":"3","key":"e_1_2_13_2_1","first-page":"236","article-title":"Global Burden of Five Major Types of Gastrointestinal Cancer","volume":"19","author":"Singh A.","year":"2024","journal-title":"Przeglad 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